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Testing Baby
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ISBN: 1280492392 9786613587626 0813552028 9780813552026 0813551358 0813551366 9780813551357 9780813551364 9781280492396 6613587621 Year: 2011 Publisher: New Brunswick, NJ

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Abstract

Within forty-eight hours after birth, the heel of every baby in the United States has been pricked and the blood sent for compulsory screening to detect or rule out a large number of disorders. Newborn screening is expanding rapidly, fueled by the prospect of saving lives. Yet many lives are also changed by it in ways not yet recognized. Testing Baby is the first book to draw on parents’ experiences with newborn screening in order to examine its far-reaching sociological consequences. Rachel Grob’s cautionary tale also explores the powerful ways that parents’ narratives have shaped this emotionally charged policy arena. Newborn screening occurs almost always without parents’ consent and often without their knowledge or understanding, yet it has the power to alter such things as family dynamics at the household level, the context of parenting, the way we manage disease identity, and how parents’ interests are understood and solicited in policy debates.


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Genetisch gezond ? : ethische en sociale aspecten van genetische tests en screenings
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ISBN: 9050950752 9789050950756 Year: 1999 Publisher: Antwerpen Groningen Intersentia

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Keywords

Medical law --- Human genetics --- Professional ethics. Deontology --- screening --- medische genetica --- Erfelijkheidsleer --- Ethique philosophique --- Hérédité --- Wijsgerige ethiek --- Genetic Testing. --- Neonatal Screening. --- Bioethics. --- Ethics, Medical. --- Genetic Predisposition to Disease. --- 241.63*5 --- 17.023.33 --- Genetic screening --- -Genetic screening --- -#GBIB:CBMER --- #RBIB:gift.1999.2 --- #SBIB:316.334.3M51 --- #SBIB:316.334.3M20 --- #SBIB:316.334.3M50 --- #gsdb5 --- #GGSB: Moraaltheologie (algemeen) --- #GGSB: Bio-ethiek --- #GGSB: Medische ethiek --- genetica --- ethiek --- 351.84*7 --- 575 --- 614 --- genetische test (genetische zelftest) --- genetische screening --- Genetische manipulatie --- Medische ethiek --- Eugenetica --- Genetica --- Bio-ethiek --- ethiek (moraal) --- tests --- genetisch advies --- prenatale diagnose --- erfelijkheidsleer --- genetische manipulatie --- 603.1 --- Human chromosome abnormalities --- Medical screening --- Medical Ethics --- Medicine --- Professionalism --- Bioethics --- Biomedical Ethics --- Health Care Ethics --- Ethics, Biomedical --- Ethics, Health Care --- Ethics, Medical --- Ethicists --- Infant, Newborn, Screening --- Newborn Infant Screening --- Neonatal Screenings --- Newborn Infant Screenings --- Screening, Neonatal --- Screening, Newborn Infant --- Screenings, Neonatal --- Screenings, Newborn Infant --- Prenatal Diagnosis --- Genetic Screening --- Predictive Genetic Testing --- Predictive Testing, Genetic --- Testing, Genetic Predisposition --- Genetic Predisposition Testing --- Genetic Predictive Testing --- Genetic Screenings --- Genetic Testing, Predictive --- Predisposition Testing, Genetic --- Screening, Genetic --- Screenings, Genetic --- Testing, Genetic --- Testing, Genetic Predictive --- Testing, Predictive Genetic --- Genetic Predisposition to Disease --- Preimplantation Diagnosis --- Cytogenetic Analysis --- Molecular Diagnostic Techniques --- Databases, Genetic --- Databases, Nucleic Acid --- Genetic Privacy --- Predisposition, Genetic --- Susceptibility, Genetic --- Genetic Predisposition --- Genetic Susceptibility --- Genetic Predispositions --- Genetic Susceptibilities --- Predispositions, Genetic --- Susceptibilities, Genetic --- Disease Susceptibility --- Genetic Testing --- Anticipation, Genetic --- Genetic Association Studies --- Gene-Environment Interaction --- Theologische ethiek: bio-ethiek (bioethiek); genetische experimenten; transplantatie; eugenetica --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Moral and ethical aspects --- Social aspects --- Organisatie van de gezondheidszorg: modellen van therapeutisch handelen --- Sociale epidemiologie en etiologie: sociale aspecten van ziekte en gezondheid --- Organisatie van de gezondheidszorg: algemeen, beleid --- test génétique (autotest génétique) --- dépistage génétique --- Manipulations génétiques --- Ethique médicale --- Eugénique --- Génétique --- (zie ook: genetisch advies) --- Diagnosis --- ethics --- diagnosis --- genetics --- Genetics --- Medicine and ethics --- Medicine and society --- Moral and ethical aspects. --- Social aspects. --- Genetics. --- Medicine and ethics. --- Medicine and society. --- 17.023.33 Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- 241.63*5 Theologische ethiek: bio-ethiek (bioethiek); genetische experimenten; transplantatie; eugenetica --- Neonatal Screening --- #GBIB:CBMER --- Newborn Screening --- Newborn Screenings --- Screening, Newborn --- Screenings, Newborn --- dépistage génétique --- test génétique (autotest génétique) --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Eugénique --- Génétique --- Manipulations génétiques --- Ethique médicale --- Moraaltheologie (algemeen) --- Genetic screening - Moral and ethical aspects --- Genetic screening - Social aspects

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