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Today anyone can purchase technology that can track, quantify, and measure the body and its environment. Wearable or portable sensors detect heart rates, glucose levels, steps taken, water quality, genomes, and microbiomes, and turn them into electronic data. Is this phenomenon empowering, or a new form of social control? Who volunteers to enumerate bodily experiences, and who is forced to do so? Who interprets the resulting data? How does all this affect the relationship between medical practice and self care, between scientific and lay knowledge? Quantified examines these and other issues that arise when biosensing technologies become part of everyday life. The book offers a range of perspectives, with views from the social sciences, cultural studies, journalism, industry, and the nonprofit world. The contributors consider data, personhood, and the urge to self-quantify; legal, commercial, and medical issues, including privacy, the outsourcing of medical advice, and self-tracking as a "paraclinical" practice; and technical concerns, including interoperability, sociotechnical calibration, alternative views of data, and new space for design.

Biosensors. --- Medical instruments and apparatus. --- Biosensing Techniques. --- Monitoring, Physiologic --- Confidentiality. --- #SBIB:316.334.3M30 --- #SBIB:316.334.3M50 --- #SBIB:316.334.3M40 --- Confidential Information --- Secrecy --- Patient Data Privacy --- Privacy of Patient Data --- Privileged Communication --- Communication, Privileged --- Communications, Privileged --- Data Privacy, Patient --- Information, Confidential --- Privacy, Patient Data --- Privileged Communications --- Duty to Warn --- Privacy --- Disclosure --- Anonymous Testing --- Parental Notification --- Biosensing Technics --- Bioprobes --- Biosensors --- Electrodes, Enzyme --- Bioprobe --- Biosensing Technic --- Biosensing Technique --- Biosensor --- Electrode, Enzyme --- Enzyme Electrode --- Enzyme Electrodes --- Technic, Biosensing --- Technics, Biosensing --- Technique, Biosensing --- Techniques, Biosensing --- Microchemistry --- Apparatus, Medical --- Instruments, Medical --- Medical apparatus --- Medical devices --- Medical products --- Medicine --- Biomedical engineering --- Medical supplies --- Scientific apparatus and instruments --- Biodetectors --- Biological detectors --- Biological sensors --- Biomedical detectors --- Biomedical sensors --- Detectors --- Medical instruments and apparatus --- Physiological apparatus --- trends. --- Medische sociologie: gezondheidsgedrag --- Organisatie van de gezondheidszorg: algemeen, beleid --- Medische sociologie: zorgenverstrekkers, relatie met hulpvragers --- Apparatus --- Equipment and supplies --- Instruments --- Wearable Electronic Devices --- INFORMATION SCIENCE/Communications & Telecommunications --- INFORMATION SCIENCE/General --- COMPUTER SCIENCE/Human Computer Interaction --- Biosensing Techniques --- Confidentiality --- trends

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Hygiene. Public health. Protection --- Information systems --- Privacy, Right of --- Medical records --- Droit à la vie privée --- Dossiers médicaux --- Congresses --- Data processing --- Access control --- Congrès --- Informatique --- Accès --- Contrôle --- 34:681.3 --- Confidentiality. --- Information Systems. --- Medical Informatics. --- Medical Records. --- #GBIB:CBMER --- Records, Medical --- Transcription, Medical --- Health Diaries --- Medical Transcription --- Diaries, Health --- Diary, Health --- Health Diary --- Medical Record --- Medical Transcriptions --- Record, Medical --- Transcriptions, Medical --- Computer Science, Medical --- Health Information Technology --- Informatics, Clinical --- Informatics, Medical --- Information Science, Medical --- Clinical Informatics --- Medical Computer Science --- Medical Information Science --- Health Information Technologies --- Information Technologies, Health --- Information Technology, Health --- Medical Computer Sciences --- Medical Information Sciences --- Science, Medical Computer --- Technologies, Health Information --- Technology, Health Information --- Computational Biology --- Biomedical Technology --- American Recovery and Reinvestment Act --- Ancillary Information Systems --- Data Systems --- Emergency Care Information Systems --- Information Retrieval Systems --- Ancillary Information System --- Data System --- Information Retrieval System --- Information System --- Information System, Ancillary --- Information Systems, Ancillary --- System, Ancillary Information --- System, Data --- System, Information --- System, Information Retrieval --- Systems, Ancillary Information --- Systems, Data --- Systems, Information --- Systems, Information Retrieval --- Confidential Information --- Secrecy --- Patient Data Privacy --- Privacy of Patient Data --- Privileged Communication --- Communication, Privileged --- Communications, Privileged --- Data Privacy, Patient --- Information, Confidential --- Privacy, Patient Data --- Privileged Communications --- Duty to Warn --- Privacy --- Disclosure --- Anonymous Testing --- Parental Notification --- Informaticarecht --- 34:681.3 Informaticarecht --- Droit à la vie privée --- Dossiers médicaux --- Congrès --- Accès --- Contrôle --- Health Informatics --- Informatics, Health --- Perinatal Information System --- Information System, Perinatal --- Perinatal Information Systems --- Confidentiality --- Information Systems --- Medical Informatics --- Medical Records

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Communication. --- Confidentiality. --- Physician-Patient Relations. --- 316.472.42 --- #SBIB:309H517 --- #SBIB:316.334.3M40 --- 316.472.42 Face-to-face relaties. Interactie --- Face-to-face relaties. Interactie --- Confidential Information --- Secrecy --- Patient Data Privacy --- Privacy of Patient Data --- Privileged Communication --- Communication, Privileged --- Communications, Privileged --- Data Privacy, Patient --- Information, Confidential --- Privacy, Patient Data --- Privileged Communications --- Duty to Warn --- Privacy --- Disclosure --- Anonymous Testing --- Parental Notification --- Communication Programs --- Communications Personnel --- Misinformation --- Personal Communication --- Communication Program --- Communication, Personal --- Personnel, Communications --- Program, Communication --- Programs, Communication --- Verbale communicatie: sociale psychologie van de taal en de interactie, psycholinguistiek --- Medische sociologie: zorgenverstrekkers, relatie met hulpvragers --- Physicians. --- Confidential communications --- Interpersonal communication --- Physician and patient --- Communication --- Confidentiality --- Physician-Patient Relations --- Doctor Patient Relations --- Physician Patient Relations --- Physician Patient Relationship --- Doctor-Patient Relations --- Doctor Patient Relation --- Doctor-Patient Relation --- Physician Patient Relation --- Physician Patient Relationships --- Physician-Patient Relation --- Relation, Doctor Patient --- Relation, Doctor-Patient --- Relation, Physician Patient --- Relation, Physician-Patient --- Relations, Doctor Patient --- Relations, Doctor-Patient --- Relations, Physician Patient --- Relations, Physician-Patient --- Relationship, Physician Patient --- Relationships, Physician Patient --- Doctor and patient --- Doctor-patient relationships --- Patient and doctor --- Patient and physician --- Patient-doctor relationships --- Patient-physician relationships --- Patients and doctors --- Patients and physicians --- Physician-patient relationships --- Physicians and patients --- Interpersonal relations --- Fear of doctors --- Narrative medicine --- Doctor-patient privilege --- Patient-physician privilege --- Physician-patient privilege --- Physicians --- Medical ethics --- Medical laws and legislation --- Professional-Patient Relations --- Interpersonal Relations --- Interpersonal communication. --- Physician and patient. --- Social Communication --- Communication, Social --- Communications, Social --- Social Communications --- Confidential communications - Physicians

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This is the first history of public health surveillance in the United States to span more than a century of conflict and controversy. The practice of reporting the names of those with disease to health authorities inevitably poses questions about the interplay between the imperative to control threats to the public's health and legal and ethical concerns about privacy. Authors Amy L. Fairchild, Ronald Bayer, and James Colgrove situate the tension inherent in public health surveillance in a broad social and political context and show how the changing meaning and significance of privacy have marked the politics and practice of surveillance since the end of the nineteenth century.

Public Health Practice --- Privacy --- Health Policy --- Confidentiality --- Population Surveillance --- Privacy, Right of. --- Public health surveillance. --- Invasion of privacy --- Privacy, Right of --- Right of privacy --- Civil rights --- Libel and slander --- Personality (Law) --- Press law --- Computer crimes --- Confidential communications --- Data protection --- Right to be forgotten --- Secrecy --- Population surveillance (Public health) --- Surveillance, Public health --- Epidemiology --- Surveillance, Population --- Confidential Information --- Patient Data Privacy --- Privacy of Patient Data --- Privileged Communication --- Communication, Privileged --- Communications, Privileged --- Data Privacy, Patient --- Information, Confidential --- Privacy, Patient Data --- Privileged Communications --- Duty to Warn --- Disclosure --- Anonymous Testing --- Parental Notification --- Healthcare Policy --- National Health Policy --- Health Policies --- Health Policy, National --- Healthcare Policies --- National Health Policies --- Policy, Health --- Policy, Healthcare --- Policy, National Health --- Policy Making --- PL 93-579 --- PL93-579 --- Privacy Act --- Public Law 93-579 --- Act, Privacy --- Law 93-579, Public --- PL 93 579 --- PL93 579 --- Public Law 93 579 --- Health Practice, Public --- Health Practices, Public --- Practice, Public Health --- Practices, Public Health --- Public Health Practices --- history --- Law and legislation --- Health Care Policies --- Care Policies, Health --- Health Care Policy --- Policies, Health --- Policies, Health Care --- Policies, Healthcare --- Policy, Health Care --- 20th century american healthcare. --- 20th century american history. --- activism. --- aids. --- birth defects. --- cancer. --- conflict. --- controversy. --- democratic policy. --- detection. --- diagnosis. --- disease. --- ethical concerns. --- government and governing. --- health authorities. --- history. --- illness. --- immunization registry. --- legal concerns. --- medical. --- occupational disease. --- privacy. --- public health surveillance. --- public health. --- reporting. --- resistance. --- secrecy. --- surveillance. --- syphilis. --- united states of america.

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Information technology is transforming the practices of medicine, nursing, and biomedical research. Computers can now render diagnoses and prognoses more accurately than humans. The concepts of privacy and confidentiality are evolving as data moves from paper to silicon to clouds. Big data promises financial wealth, as well as riches of information and benefits to science and public health. Online access and mobile apps provide patients with an unprecedented connection to their health and health records. This transformation is as unsettling as it is exhilarating. This unique new book is essential for anyone who uses computers in health care, biomedical research or public health, and cares about the ethical issues that arise in their work. With chapters spanning issues from professionalism and quality to mobile health and bioinformatics, it establishes what will become the 'core curriculum' in ethics and health informatics, a growing field which encourages truly inter- and multidisciplinary inquiry.

Confidentiality --- Medical Informatics Applications --- Electronic Health Records --- Telemedicine --- Biomedical Research --- Ethics --- Medical Records Systems, Computerized --- Morals --- Jurisprudence --- Medical Informatics --- Telecommunications --- Delivery of Health Care --- Patient Rights --- Forensic Psychiatry --- Research --- Medicine --- Medical Records --- Social Control, Formal --- Psychology, Social --- Human Rights --- Health Occupations --- Patient Care Management --- Science --- Psychiatry --- Information Science --- Communications Media --- Disciplines and Occupations --- Sociology --- Health Care Economics and Organizations --- Natural Science Disciplines --- Records as Topic --- Behavioral Sciences --- Behavior and Behavior Mechanisms --- Health Services Administration --- Social Sciences --- Health Care --- Data Collection --- Behavioral Disciplines and Activities --- Psychiatry and Psychology --- Anthropology, Education, Sociology and Social Phenomena --- Epidemiologic Methods --- Investigative Techniques --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Medical & Biomedical Informatics --- Health & Biological Sciences --- Investigative Technics --- Investigative Technic --- Investigative Technique --- Technic, Investigative --- Technics, Investigative --- Technique, Investigative --- Techniques, Investigative --- Epidemiologic Method --- Epidemiological Methods --- Methods, Epidemiologic --- Epidemiological Method --- Method, Epidemiologic --- Method, Epidemiological --- Methods, Epidemiological --- Epidemiology --- Data Collection Methods --- Dual Data Collection --- Collection Method, Data --- Collection Methods, Data --- Collection, Data --- Collection, Dual Data --- Data Collection Method --- Method, Data Collection --- Methods, Data Collection --- Medical History Taking --- Empirical Research --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Science, Social --- Sciences, Social --- Social Science --- Administration, Health Services --- Health Services --- Behavior And Behavior Mechanism --- Proxemics --- Behavioral Science --- Proxemic --- Science, Behavioral --- Sciences, Behavioral --- Personal Identification Systems --- Travel Documents --- Documents, Travel --- Identification Systems, Personal --- Personal Identification System --- Record --- Records as Topics --- Documentation --- Natural Sciences --- Physical Sciences --- Discipline, Natural Science --- Disciplines, Natural Science --- Natural Science --- Natural Science Discipline --- Physical Science --- Science, Natural --- Science, Physical --- Sciences, Natural --- Sciences, Physical --- Healthcare Economics and Organizations --- Health Care Economics --- Health Economics --- Healthcare Economics --- Care Economic, Health --- Economic, Health --- Economic, Health Care --- Economic, Healthcare --- Economics, Health Care --- Health Care Economic --- Health Economic --- Healthcare Economic --- General Social Development and Population --- Media, Communications --- Information Sciences --- Science, Information --- Sciences, Information --- Psychiatrists --- Psychiatrist --- Sciences --- Care Management, Patient --- Management, Patient Care --- Health Professions --- Health Occupation --- Health Profession --- Profession, Health --- Professions, Health --- Occupations --- Collective Human Rights --- Equal Rights --- Linguistic Rights --- Right to Housing and Shelter --- Rights of Indigenous Peoples --- Human Rights, Collective --- Indigenous Peoples Rights --- Rights, Collective Human --- Rights, Equal --- Rights, Linguistic --- Social Justice --- Human Rights Abuses --- Psychology, Perceptual --- Social Psychology --- Perceptual Psychology --- Regulation --- Social Control --- Control, Social --- Controls, Social --- Formal Social Control --- Formal Social Controls --- Regulations --- Social Controls --- Public Policy --- Records, Medical --- Transcription, Medical --- Health Diaries --- Medical Transcription --- Diaries, Health --- Diary, Health --- Health Diary --- Medical Record --- Medical Transcriptions --- Record, Medical --- Transcriptions, Medical --- Medical Specialities --- Medical Specialties --- Medical Specialty --- Specialities, Medical --- Specialties, Medical --- Specialty, Medical --- Medical Speciality --- Speciality, Medical --- Health Workforce --- Laboratory Research --- Research Activities --- Research and Development --- Research Priorities --- Activities, Research --- Activity, Research --- Development and Research --- Priorities, Research --- Priority, Research --- Research Activity --- Research Priority --- Research, Laboratory --- Ethics, Research --- Jurisprudence, Psychiatric --- Psychiatric Jurisprudence --- Psychiatry, Forensic --- Patient's Rights --- Patients' Rights --- Right to Treatment --- Patient Right --- Patient's Right --- Patients Rights --- Patients' Right --- Right to Treatments --- Right, Patient --- Right, Patient's --- Right, Patients' --- Rights, Patient --- Rights, Patient's --- Rights, Patients' --- Treatment, Right to --- Treatments, Right to --- Patient Advocacy --- Truth Disclosure --- Bioethical Issues --- Teleconference --- Telegraphy --- Telecommunication --- Teleconferences --- Telegraphies --- Computer Science, Medical --- Health Informatics --- Health Information Technology --- Informatics, Clinical --- Informatics, Medical --- Information Science, Medical --- Clinical Informatics --- Medical Computer Science --- Medical Information Science --- Health Information Technologies --- Informatics, Health --- Information Technology, Health --- Medical Computer Sciences --- Medical Information Sciences --- Science, Medical Computer --- Technology, Health Information --- Computational Biology --- Biomedical Technology --- American Recovery and Reinvestment Act --- Constitutional Law --- Court Decision --- Law --- Legal Aspects --- Legal Obligations --- Legal Status --- State Interest --- Litigation --- Medical Jurisprudence --- Aspect, Legal --- Aspects, Legal --- Constitutional Laws --- Court Decisions --- Decision, Court --- Decisions, Court --- Interest, State --- Interests, State --- Jurisprudence, Medical --- Law, Constitutional --- Laws --- Laws, Constitutional --- Legal Aspect --- Legal Obligation --- Litigations --- Obligation, Legal --- Obligations, Legal --- State Interests --- Status, Legal --- Defamation --- Lawyers --- Morality --- Retrospective Moral Judgment --- Automated Medical Record System --- Automated Medical Record Systems --- Automated Medical Records System --- Computerized Medical Record System --- Computerized Medical Record Systems --- Computerized Medical Records System --- Computerized Patient Medical Records --- Medical Record System, Automated --- Medical Record System, Computerized --- Medical Record Systems, Automated --- Medical Record Systems, Computerized --- Medical Records System, Automated --- Medical Records System, Computerized --- Medical Records Systems, Automated --- Automated Medical Records Systems --- Computerized Medical Records Systems --- Forms and Records Control --- Egoism --- Ethical Issues --- Metaethics --- Moral Policy --- Natural Law --- Situational Ethics --- Ethical Issue --- Ethics, Situational --- Issue, Ethical --- Issues, Ethical --- Law, Natural --- Laws, Natural --- Moral Policies --- Natural Laws --- Policies, Moral --- Policy, Moral --- Censorship, Research --- Experimental Medicine --- Investigational Medicine --- Investigative Medicine --- Research, Biomedical --- Research, Medical --- Medical Research --- Medicine, Experimental --- Medicine, Investigational --- Medicine, Investigative --- Animals, Laboratory --- Mobile Health --- Telehealth --- eHealth --- mHealth --- Health, Mobile --- Telemetry --- Computerized Medical Record --- Computerized Medical Records --- Electronic Health Record --- Medical Record, Computerized --- Medical Records, Computerized --- Electronic Medical Record --- Electronic Medical Records --- Health Record, Electronic --- Health Records, Electronic --- Medical Record, Electronic --- Medical Records, Electronic --- Medical Record Linkage --- Application, Medical Informatics --- Applications, Medical Informatics --- Informatics Applications, Medical --- Informatics Application, Medical --- Medical Informatics Application --- Biomedical Engineering --- Confidential Information --- Secrecy --- Patient Data Privacy --- Privacy of Patient Data --- Privileged Communication --- Communication, Privileged --- Communications, Privileged --- Data Privacy, Patient --- Information, Confidential --- Privacy, Patient Data --- Privileged Communications --- Duty to Warn --- Privacy --- Disclosure --- Anonymous Testing --- Parental Notification --- methods --- organization & administration --- Medical informatics. --- Clinical informatics --- Health informatics --- Medical information science --- Information science --- Data processing