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Letters to the home front
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ISBN: 0857006789 9780857006783 1299711189 9781299711181 9781849053327 1849053324 Year: 2013 Publisher: London Jessica Kingsley Publishers

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Abstract

This book provides a source of support for parents facing the everyday realities of bringing up children with developmental disabilities, especially those with autism.


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Raising Henry
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ISBN: 0300184298 9780300184297 1299841295 9781299841291 9780300180008 0300180004 Year: 2013 Publisher: New Haven

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Rachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with disability, Raising Henry is also an insightful exploration of today's knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family's story is impossible to forget.


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Transforming systems for parental depression and early childhood developmental delays : findings and lessons learned from the Helping Families Raise Healthy Children initiative
Authors: --- ---
ISBN: 0833079972 0833079999 0833079964 9780833079978 9780833079992 9780833079985 0833079980 9780833079961 Year: 2013 Publisher: Santa Monica, CA : RAND Corporation,

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The Helping Families Raise Healthy Children initiative addressed depression among parents of children with early childhood developmental delays, aligning the early intervention and behavioral health systems with a focus on relationship-based care. The initiative focused on identification of at-risk families, referral, and engagement in services that addressed the needs of parents and young children in the context of their relationship.


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The disabled child : memoirs of a normal future
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ISBN: 0472903039 0472075691 9780472903030 Year: 2023 Publisher: Ann Arbor, Michigan : University of Michigan Press,

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When children are born with disabilities or become disabled in childhood, parents often experience bewilderment: they find themselves unexpectedly in another world, without a roadmap, without community, and without narratives to make sense of their experiences. The Disabled Child: Memoirs of a Normal Future tracks the narratives that have emerged from the community of parent-memoirists who, since the 1980s, have written in resistance of their children's exclusion from culture. Though the disabilities represented in the genre are diverse, the memoirs share a number of remarkable similarities; they are generally written by white, heterosexual, middle or upper-middle class, ablebodied parents, and they depict narratives in which the disabled child overcomes barriers to a normal childhood and adulthood. Apgar demonstrates that in the process of telling these stories, which recuperate their children as productive members of society, parental memoirists write their children into dominant cultural narratives about gender, race, and class. By reinforcing and buying into these norms, Apgar argues, "special needs" parental memoirs reinforce ableism at the same time that they're writing against it.

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