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Large-scale study of populations may contribute significantly to science’s understanding of the complex multi-factorial basis of disease and to improvements in prevention, detection, diagnosis, treatment and cure. This book summarises the proceedings of a conference on human genetic research databases.  It examines what they are and provides a number of examples. It looks at how they have been established, governed, and funded. And it looks at how they are managed and commercialised, exploring what the policy implications are for governments. 

Chromosome Mapping. --- Human genetics -- Databases -- Law and legislation -- Congresses. --- Human genetics -- Databases -- Moral and ethical aspects -- Congresses. --- Human genetics. --- Linkage (Genetics). --- Human genetics --- Databases, Factual --- Databases as Topic --- Information Storage and Retrieval --- Information Systems --- Medical Informatics Applications --- Information Science --- Medical Informatics --- Databases, Genetic --- Biology --- Health & Biological Sciences --- Genetics --- Moral and ethical aspects --- Databases --- Law and legislation --- Heredity, Human --- Human biology --- Physical anthropology

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Biology --- Human genetics --- Genetics --- Heredity, Human --- Human biology --- Physical anthropology --- Life sciences --- Biomass --- Life (Biology) --- Natural history --- Research --- Moral and ethical aspects --- Databases --- Conferences - Meetings --- Human genetics - Databases - Moral and ethical aspects - Congresses --- Biology - Research - Moral and ethical aspects - Congresses --- Droit médical

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"In recent years, a number of large population-based biobanks - genetic databases that combine genetic information derived from blood samples with personal data about environment, medical history, lifestyle or genealogy have been set up in order to study the interface between disease and genetic and environmental factors. Unsurprisingly, these studies have sparked a good deal of controversy and the ethical and social implications have been widely debated. Biobanks: Governance in Comparative Perspective is the first book to explore the political and governance implications of biobanks in Europe, the United States, Asia and Australia."--BOOK JACKET.

Human genetics --- DNA data banks --- Bioethics --- Génétique humaine --- Banques de données génétiques (Génétique légale) --- Bioéthique --- Moral and ethical aspects --- Aspect moral --- Biobanks --- Databases --- Government policy --- Political aspects --- JURISPRUDENCE -- 323.39 --- Databases, Genetic --- Confidentiality --- Public Policy. --- biobank (bank voor menselijk lichaamsmateriaal) --- Ijsland --- Estland --- Frankrijk --- Duitsland --- Verenigde Staten --- Japan --- Verenigd Koninkrijk (Groot-Brittannië) --- Scandinavië --- Australië --- Israël --- Migration Policy --- Population Policy --- Social Protection --- Social Policy --- Migration Policies --- Policies, Migration --- Policies, Population --- Policies, Public --- Policies, Social --- Policy, Migration --- Policy, Population --- Policy, Public --- Policy, Social --- Population Policies --- Protection, Social --- Public Policies --- Social Policies --- Policy Making --- Social Control, Formal --- Bio-banks --- Biological specimen banks --- Biological resource centers --- Biological specimens --- Genetics --- Heredity, Human --- Human biology --- Physical anthropology --- legislation & jurisprudence. --- ethics. --- biobanque (banque de matériel corporel humain) --- Islande --- Estonie --- France --- Allemagne --- Etats Unis --- Japon --- Royaume-Uni (Grande-Bretagne) --- Scandinavie --- Australy --- Génétique humaine --- Banques de données génétiques (Génétique légale) --- Bioéthique --- Public Policy --- legislation & jurisprudence --- ethics --- Affirmative Action --- Action, Affirmative --- Human genetics - Databases - Moral and ethical aspects - Cross-cultural studies --- Biobanks - Government policy - Cross-cultural studies --- Biobanks - Political aspects - Cross-cultural studies --- Droit médical