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Property rights in blood, genes & data : naturally yours?
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ISBN: 9004150536 9786612396786 1282396781 9047417682 9789004150539 Year: 2006 Volume: 66 Publisher: Leiden ; Boston : Martinus Nijhoff Publishers,

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Abstract

Who owns our DNA? The intuitive answer to this question is readily apparent: you own your own DNA. However, since Watson and Crick discovered its molecular structure, our DNA has gradually evolved from the Secret of Life to a potentially lucrative Commodity . This development has triggered conflicting perspectives as to who holds legal title to our blood, genes and related health data. Rather than focusing on a specific property claim in isolation, this book is the first to provide an integrated analysis of the merits of each of these perspectives. While the United Nations have proclaimed human DNA as the Heritage of Humanity, industry claims it to be patentable subject matter. Whereas populations whose DNA is used in national biobanks claim their DNA as their National Property, individual patients increasingly stand up for their Personal Property Rights in their samples. Meanwhile academic researchers claim their collections of biological materials as their Academic Property. Taking a case and context driven approach and backing up traditional legal analysis with historical analogies, web-surveys and practical experience, Jasper Bovenberg provides counter-intuitive, provocative and practical answers and recommendations for such controversial issues as how to share the benefits of DNA research, whether or not to recognize personal property rights in bodily material and access to biomedical datasets in academia. This book will interest not only lawyers and researchers, but also universities, funding agencies, industry and policymakers worldwide. It is also written to inform patients, their relatives, doctors and anyone else with an interest in a dilemma that is as universal as our DNA.

Gene mapping: using law and ethics as guides
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ISBN: 0195073037 Year: 1992 Publisher: New York Oxford University Press

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Keywords

Law --- General ethics --- Genoom-Project [Menselijk ] --- Génome Humain [Projet de ] --- Human Genome Project --- Menselijk Genoom-Project --- Projet de Génome Humain --- Chromosome Mapping --- Ethics, Medical. --- Genetic Testing --- Genetics, Medical. --- Public Policy. --- Human gene mapping --- -Human gene mapping --- -Human Genome Project --- #GBIB:CBMER --- Human chromosome mapping --- Human genome mapping --- Mapping, Human gene --- Gene mapping --- Migration Policy --- Population Policy --- Social Protection --- Social Policy --- Migration Policies --- Policies, Migration --- Policies, Population --- Policies, Public --- Policies, Social --- Policy, Migration --- Policy, Population --- Policy, Public --- Policy, Social --- Population Policies --- Protection, Social --- Public Policies --- Social Policies --- Policy Making --- Social Control, Formal --- Human Genetics --- Medical Genetics --- Genetics, Human --- Anthropology, Physical --- Chromosome Disorders --- Sex Chromosome Disorders --- Genetic Diseases, Inborn --- Molecular Medicine --- Medical Ethics --- Medicine --- Professionalism --- Bioethics --- methods. --- legislation & jurisprudence. --- Law and legislation --- Moral and ethical aspects --- ethics --- United States. --- Genetic Screening --- Public Policy --- Law and legislation. --- Moral and ethical aspects. --- legislation. --- Public policy --- Ethics, Medical --- Genetics, Medical --- Medical laws and legislation --- methods --- legislation & jurisprudence --- Human Genome Project. --- HGP --- H.G.P. --- Human gene mapping - Moral and ethical aspects. --- Human gene mapping - Law and legislation. --- Affirmative Action --- Action, Affirmative --- Predictive Genetic Testing --- Predictive Testing, Genetic --- Testing, Genetic Predisposition --- Genetic Predisposition Testing --- Genetic Predictive Testing --- Genetic Screenings --- Genetic Testing, Predictive --- Predisposition Testing, Genetic --- Screening, Genetic --- Screenings, Genetic --- Testing, Genetic --- Testing, Genetic Predictive --- Testing, Predictive Genetic --- Genetic Predisposition to Disease --- Prenatal Diagnosis --- Preimplantation Diagnosis --- Cytogenetic Analysis --- Molecular Diagnostic Techniques --- Databases, Genetic --- Databases, Nucleic Acid --- Genetic Privacy --- diagnosis

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