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Patient organizations today play a major role in the scientific, economic and political arenas. They have become the quasi-obliged partners of researchers, industrialists and political authorities. This book investigates this quite recent configuration by offering an in-depth exploration of three thematic issues: To what social and political stakes are patient organizations confronted as regards the transformation, production, circulation, and governance of knowledge? The involvement of patient organizations in the economic world is acknowledged as confrontational, especially when it comes to relationships with the pharmaceutical industry. To what extent do opposition, "instrumentalization", or cooperation constitute relevant models if we are to account for the multifaceted relationships between patient organizations and economic actors? Patient organisations are the structuring actors of networks, coalitions, and collectives throughout Europe. What social and political concerns arise from these particular forms of collective action on a national or European scale? Each question is first examined through an academic and grey literature review. Then the emerging topics and critical issues are identified and discussed, drawing upon exchanges of experiences, viewpoints, and reflections between actors involved in patients' and users' movements and social scientists. The dynamics of patient organizations in Europe raises a number of questions of interest for all actors from the health system, as well as for social scientists. This book intends to contribute to the reflection on further research agenda setting and policy-making.

Social Control, Formal --- Organization and Administration --- Sociology --- Health Care Economics and Organizations --- Health Services Administration --- Health Care --- Social Sciences --- Anthropology, Education, Sociology and Social Phenomena --- Patient Advocacy --- Organizational Objectives --- Objectives, Organizational --- Organizational Goals --- Goals, Organizational --- Goal, Organizational --- Objective, Organizational --- Organizational Goal --- Organizational Objective --- Clinical Ombudsman --- Patient Ombudsman --- Patient Ombudsmen --- Patient Representatives --- Advocacy, Patient --- Ombudsman, Clinical --- Ombudsman, Patient --- Ombudsmen, Patient --- Patient Representative --- Representative, Patient --- Representatives, Patient --- Science, Social --- Sciences, Social --- Social Science --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Administration, Health Services --- Health Services --- Healthcare Economics and Organizations --- General Social Development and Population --- Administration and Organization --- Administrative Technics --- Administrative Techniques --- Coordination, Administrative --- Logistics --- Supervision --- Technics, Administrative --- Techniques, Administrative --- Administration --- Administrative Coordination --- Administrative Technic --- Administrative Technique --- Technic, Administrative --- Technique, Administrative --- Regulation --- Social Control --- Control, Social --- Controls, Social --- Formal Social Control --- Formal Social Controls --- Regulations --- Social Controls --- organization & administration --- Commitment of Mentally Ill --- Patient Rights --- Public Policy --- Goal Setting, Organizational --- Goal Settings, Organizational --- Organizational Goal Setting --- Organizational Goal Settings --- Setting, Organizational Goal --- Settings, Organizational Goal --- Health Care Economics --- Health Economics --- Healthcare Economics --- Care Economic, Health --- Economic, Health --- Economic, Health Care --- Economic, Healthcare --- Economics, Health Care --- Health Care Economic --- Health Economic --- Healthcare Economic --- pharmaceutical industry --- patient organizations --- public health