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Integrating the patient and caregiver voice into serious illness care : proceedings of a workshop
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ISBN: 0309460298 030946031X Year: 2017 Publisher: Washington, District of Columbia : The National Academies Press,

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Supporting Family Caregivers of Adults With Communication Disorders
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ISBN: 159756804X 9781597568043 9781597565028 1597565024 Year: 2015 Publisher: San Diego Plural Publishing, Inc.

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This book provides professionals in speech-language pathology and audiology with tools to assist and support family caregivers of persons with communication disorders. It is intended for speech-language pathologists and audiologists who provide intervention for adults with chronic or disabling conditions. Family caregivers are those who provide continuous, unpaid care to family members and friends who are unable to care for themselves. Caregivers can be trained by speech-language pathologists and audiologist to augment goals established to remediate communication disorders.


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Caregivers
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ISBN: 9781626180314 1626180318 162618030X 9781626180307 Year: 2013 Publisher: New York

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Dementia care : issues, responses and international perspectives
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ISBN: 9811638640 9811638632 Year: 2021 Publisher: Singapore : Springer,

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Care and support rights after neoliberalism : balancing competing claims through law and policy
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ISBN: 1108485200 1108750478 1108620728 1108617867 Year: 2020 Publisher: Cambridge : Cambridge University Press,

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This book offers principles for designing care and support policy to address two persistent sources of tension in the field. The first is the tension between supporting women's unpaid caring and supporting their paid work participation. The second is the tension between carers' claims for support based on the 'burden' of caring and disability rights claims for support for choice and independence for people with disabilities. Policies tend to favor one activity and one constituency over the other. Consequently, individuals' access to resources and choices about how they live are constrained. Using a citizenship rights framework, with insights from human rights law, the principles provide guidance for designing policy and legislation that avoids 'either/or' approaches and addresses the interests of multiple constituencies. Analyses of Australian and English policies demonstrate the value of the principles for developing policy that reduces inequality, responds to 'failures' of neoliberalism, and expands choice for all.


Book
L'expérimentation des médiateurs de santé-pairs : une révolution intranquille
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ISSN: 21035520 ISBN: 2704014922 2704014914 9782704014910 9782704014729 2704014728 Year: 2016 Publisher: Montrouge, [France] : John Libbey Eurotext,

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Le programme « médiateurs de santé - pairs » est un projet pilote qui développe une stratégie inédite en France par la formation et la professionnalisation de la pair-aidance dans le cadre de la prise en charge des troubles psychiques. En d'autres termes, un ancien patient rétabli peut, au travers du savoir tiré de son expérience, apporter aide et soutien aux patients actuellement pris en charge. Ce projet révolutionnaire s'inscrit dans un mouvement plus général d'autonomisation des patients. Mais comme toute révolution, celle-ci ne se passe pas forcément dans la douceur, et les résistances, voire les oppositions, ont été et sont toujours nombreuses : reconnaissance du médiateur comme un professionnel et non plus comme un usager, crainte de la part des personnels de santé de cette nouvelle organisation, risque pour le médiateur de se confronter à sa maladie, etc. Et pourtant, cette expérience menée dans trois régions françaises a aussi apporté bon nombre de points positifs : revalorisation des malades, anciens patients qui gagnent en estime de soi et se sentent capables de revenir dans la vie active. Dans cet ouvrage, la parole a été donnée à tous les acteurs de ce projet ambitieux et novateur : psychiatres, sociologues, psychologues et bien entendu, médiateurs. Le résultat en est un patchwork de points de vue et d'expériences qui met en lumière la construction d'une révolution intranquille...

Close to me, but far away
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ISBN: 0826263615 9780826263612 9780826213808 0826213804 Year: 2001 Publisher: Columbia, MO University of Missouri Press

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Reconceptualising work with "carers" : new directions for policy and practice
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ISBN: 1283904128 1417501987 184642366X 9781417501984 9781846423666 9781843101185 1843101181 Year: 2003 Publisher: London ; Philadelphia : Jessica Kingsley Publishers,

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Demonstrating the scope and diversity of 'caring', the contributors highlight the positive aspects of caring and the interdependence of many caring relationships but also broach the sensitive and complex subject of 'poor' care and the importance of identifying and meeting the needs of 'hidden carers'.

Care work : present and future
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ISBN: 1134277377 1134277385 0203640764 9786610244713 1280244712 9780203640760 0415347726 0415347734 9781134277377 9781134277384 6610244715 9781280244711 9781134277339 9780415347723 9780415347730 Year: 2006 Publisher: London : Routledge,

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Book
A return journey
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ISBN: 1612495095 1612495109 9781612495095 9781612495101 1557537909 9781557537904 Year: 2017 Publisher: West Lafayette, Ind. Purdue University Press

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