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This innovative and engaging book argues that because our genetic information is directly linked to the genetic information of others, it is impossible to assert a 'right to privacy' in the same way that we can in other areas of life.

Data privacy.

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This This chapter aims to explore the challenge that big data brings to medical privacy. Section I offers a brief overview of the role of privacy in medical settings. I define define privacy as having one's personal information and one's personal sensorial space (what I call autotopos) unaccessed. Section II discusses how the challenge of big data differs differs from other risks to medical privacy. Section III is about what can be done to minimise those risks. I argue that the most effective way of protecting people from suffering suffering suffering unfair medical consequences is by having a public universal healthcare system in which coverage is not influenced influenced influenced by personal data (e.g., genetic predisposition, exercise habits, eating habits, etc.).

Data privacy.

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Big data. --- Data privacy.

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Open banking has emerged strongly in the past few years as a system to give customers the right to share with parties they trust the information that banks have about them in a secure manner and also as a way to open up processes and services in banking. The main objectives pursued by regulatory frameworks that define open banking are generally encouraging innovation and fostering competition, resulting in new products and services at competitive prices to the benefit of consumers. With that in mind, and with the United Kingdom as a first mover, different regulatory approaches have been developed. Some of them are regulatory driven, while in other cases, with a hands-off approach, they have been led by industry. In between, we also find collaborative models in which both the public sector and private-party players are instrumental to the definition and adoption of open banking. Regulatory approaches also differ in the scope of data that is to be shared, the definition of the financial institutions that have to publish their application programming inter-faces and share data, the mandatory or voluntary nature of the framework, the definition of the type of license that third-party providers need to operate, and the definition or not of concrete standards, among other things. While there is no single right approach, there are common challenges that countries considering regulation certainly need to bear in mind in terms of the definition and interoperability of technical standards, security, governance, and consent and authentication mechanisms. Although open-banking regulatory frameworks have been operating for less than two years at most, early lessons can be drawn from the first movers and the debates that are taking place between regulators and market participants.

Banking law. --- Data privacy.

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Trotz aller genealogischen Unschärfe und normativen Uneinigkeit hinsichtlich ihrer politischen Bewertung gilt die Praxis des Unterscheidens zwischen Privatem und Öffentlichem nicht nur als zentrales Strukturprinzip der Moderne, sondern ebenso als gegenwärtig soziodigital gefährdeter Strukturierungsmodus. Informationelle Privatheit, so scheint es, löst sich auf unter dem Ansturm von digital-vernetzter Selbst-Konstitution, allgegenwärtiger Datafizierung und den probabilistischen Vorhersageverfahren des maschinellen Lernens.Aber worum geht es überhaupt bei der informationellen Privatheit? Wie lässt sie sich theoretisch fassen, wie sich ihre europäisch-amerikanische Gesellschaftsgeschichte rekonstruieren - und was geschieht mit ihr unter den datafizierten Vergesellschaftungsbedingungen der Gegenwart? Die Soziologie hat auf diese Fragen bislang nur Teilantworten gefunden, und zwar nicht zuletzt deshalb, weil sie die Strukturierung von Gesellschaften mithilfe der Unterscheidung privat/öffentlich seit Habermas' Strukturwandel vordringlich ›von der öffentlichen Seite her‹ untersucht, die Privatheit hingegen allzu oft der normativ orientierten Sozialphilosophie und den Rechtswissenschaften überlassen hat.Die vorliegende Monographie schließt die verbliebene Lücke der soziologischen Theoriebildung und Forschung, indem sie zunächst eine Sozial- und Gesellschaftstheorie der Privatheit ausarbeitet, diese daraufhin in eine genealogische Rekonstruktion der Gesellschaftsgeschichte informationeller Privatheit ab dem 18. Jahrhundert überführt und schließlich in eine empirisch gesättigte Zeitdiagnose der Privatheit in der digitalen Gegenwartsgesellschaft einmündet.

Data privacy. --- Privacy. --- Adult education.