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This is the first in-depth study of children and young people caring for parents affected by severe and enduring mental illness. Drawing on primary research data collected from forty families, the book presents the perspectives of children (young carers), their parents and the key professionals in contact with them.
Mentally ill --- Children of parents with disabilities. --- Child caregivers. --- Children of parents with disabilities --- Child caregivers --- Care. --- Care --- Great Britain. --- Children as caregivers --- Caregivers --- Children of handicapped parents --- Parents with disabilities --- Care and treatment
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In Zambia, due to the rise of tuberculosis and the closely connected HIV epidemic, a large number of children have experienced the illness or death of at least one parent. Children as Caregivers examines how well intentioned practitioners fail to realize that children take on active caregiving roles when their guardians become seriously ill and demonstrates why understanding children's care is crucial for global health policy. Using ethnographic methods, and listening to the voices of the young as well as adults, Jean Hunleth makes the caregiving work of children visible. She shows how children actively seek to "get closer" to ill guardians by providing good care. Both children and ill adults define good care as attentiveness of the young to adults' physical needs, the ability to carry out treatment and medication programs in the home, and above all, the need to maintain physical closeness and proximity. Children understand that losing their guardians will not only be emotionally devastating, but that such loss is likely to set them adrift in Zambian society, where education and advancement depend on maintaining familial, reciprocal relationships. View a gallery of images from the book (https://www.flickr.com/photos/childrenascaregivers)
Tuberculosis --- HIV-positive persons --- AIDS (Disease) --- Child caregivers --- Consumption (Disease) --- Lungs --- Phthisis --- Pulmonary tuberculosis --- TB (Disease) --- Chest --- Mycobacterial diseases --- Mycobacterium tuberculosis --- HIV-infected persons --- HIV infections --- HIV patients --- HIV-sero-positive persons --- HIV-seropositive persons --- People living with HIV/AIDS --- Positive persons, HIV --- -Sero-positive persons, HIV --- -Seropositive persons, HIV --- -Patients --- Acquired immune deficiency syndrome --- Acquired immunodeficiency syndrome --- Acquired immunological deficiency syndrome --- Immunological deficiency syndromes --- Virus-induced immunosuppression --- Children as caregivers --- Caregivers --- Patients --- Home care --- Diseases --- HIV, aids, guardians, legal guardian, children, childhood, child, childhood studies, zambia, africa, african children, ill, illness, caregiver, caregiving, health, public policy, health policy, public health, family, family illness.
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