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The ethics of research with children and young people
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ISBN: 9781526477866 9781526477859 1526477858 1526477866 Year: 2020 Publisher: Beverly Hills (Calif.) : Sage publications,

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Abstract

"This classic text offers a complete guide to carrying out ethical research with children and young people. It examines the ethical questions that arise at each stage of research, from planning to dissemination and impact. Packed with case studies from international and inter-disciplinary researchers, it offers advice for addressing the myriad ethical considerations present in research with young participants. In this second edition, the authors: Showcase best practice for approaching new issues like data protection Offer practical guidance for responding to recent global changes in ethics policy, practice and law Discuss the challenges and opportunities of digital research with children Priscilla Alderson is Professor Emerita of Childhood Studies at University College London Institute of Education. Virginia Morrow is a Visiting Professor at University College London Institute of Education and Research Associate, Young Lives, Department of International Development, University of Oxford"--

Children in medical research: access versus protection
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ISBN: 0199273286 9780199273287 0191603651 0199230420 9786611164539 0191534218 1281164534 1423768159 Year: 2006 Publisher: Oxford Clarendon

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Lainie Ross presents a rigorous critical investigation of the development of policy governing the involvement of children in medical research. She examines the shift in focus from protection of medical research subjects, enshrined in post-World War II legislation, to the current era in which access is assuming greater precedence. Infamous studies such as Willowbrook (where mentally retarded children were infected with hepatitis) are evidence that before the policy shift protection was not always adequate, even for the most vulnerable groups. Additional safeguards for children were first implemented in many countries in the 1970s and 1980s; more recent policies and guidelines are trying to promote greater participation. Ross examines whether the safeguards work, whether they are fair, and how they apply in actual research practice, and she offers specific recommendations to modify current policies and guidelines.

Children as research subjects: science, ethics, and law
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ISBN: 0195071034 Year: 1994 Publisher: New York (N.Y.) Oxford University Press

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An authoritative, interdisciplinary approach to the field of biomedical and behavioural research with children, which encompasses aspects of science, medicine, child psychology, ethics and the law. This interdisciplinary text is the first to address the many questions and controversies surrounding the use of children as research subjects. Experts in the field of biomedical and behavioural research with children consider the issues in terms of biomedical science, child psychology, ethics, and the law, providing a careful balance between individual and societal benefits. This practical guide will be invaluable to everyone involved in performing or reviewing research involving children.

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