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Book
New challenges for biobanks : ethics, law and governance
Authors: ---
ISBN: 9789050959742 9050959741 Year: 2009 Publisher: Antwerp : Intersentia,

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Abstract

The last few years have witnessed an important expansion in the collection and processing of human biological samples and related information data. Biobanks - huge repositories of human biological specimens - have a strategic importance for genetic research, clinical care, and future treatments. However, biobanks are facing many major ethical, legal, and governance challenges, including informed consent, privacy, ownership, commercialization, and harmonization. In addition, forensic DNA-databases raise specific issues. These databases can be an important tool for the police services in their search for the perpetrator of a crime, yet this raises ethical questions with regard to the relationship between liberty and security. This book - a publication of the European Commission funded research project GeneBanC - offers a rich source of material on the ethical, legal, and governance aspects of clinical biobanks, population biobanks, and forensic biobanks. It's research will be of interest to policy makers, academics, and legislators.

Keywords

Medical law --- Professional ethics. Deontology --- Preservation of organs, tissues, etc --- Biobanks --- Donation of organs, tissues, etc --- Procurement of organs, tissues, etc --- Biological specimens --- Law and legislation --- Moral and ethical aspects --- Government policy --- Academic collection --- Biological Specimen Banks --- Informed Consent. --- 17.023.33 --- biobank (bank voor menselijk lichaamsmateriaal) --- 17.023.33 Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Consent, Informed --- Treatment Refusal --- Mental Competency --- Disclosure --- Therapeutic Misconception --- ethics. --- legislation & jurisprudence. --- biobanque (banque de matériel corporel humain) --- Conferences - Meetings --- Informed Consent --- Organ procurement (Surgery) --- Tissue procurement (Surgery) --- Tissue banks --- Transplantation of organs, tissues, etc. --- Organ preservation (Anatomy) --- Organs (Anatomy) --- Anatomical gifts --- Organ donation --- Tissue donation --- Tissues --- Specimens, Biological --- Biological products --- Bio-banks --- Biological specimen banks --- Biological resource centers --- ethics --- legislation & jurisprudence --- Preservation --- Donation --- Preservation of organs, tissues,etc --- Congresses --- Donation of organs, tissues, etc. --- Procurement of organs, tissues, etc. --- biobanque (banque de matériel corporel humain) --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Preservation of organs, tissues, etc - Law and legislation - Congresses --- Biobanks - Moral and ethical aspects - Congresses --- Donation of organs, tissues, etc - Law and legislation - Congresses --- Procurement of organs, tissues, etc - Law and legislation - Congresses --- Biological specimens - Law and legislation - Congresses --- Biobanks - Government policy - Congresses --- Droit médical --- Bioéthique --- Droit comparé --- Banques d'organes --- Banques d'échantillons biologiques --- Études comparatives


Book
Trust in Biobanking : Dealing with Ethical, Legal and Social Issues in an Emerging Field of Biotechnology
Authors: --- ---
ISBN: 3540788441 9786613708557 1280798165 354078845X Year: 2012 Publisher: Berlin, Heidelberg : Springer Berlin Heidelberg : Imprint: Springer,

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Abstract

Biobanks are promising instruments of biomedical research and of transnational medicine in particular. Ethical, legal and social issues associated with biobanking, however, have recently led to a more critical view on this concept. All efforts addressing these concerns have been grounded on well-established standards of biomedical ethics such as informed consent procedures, protection of individual autonomy, benefit sharing etc. By additionally highlighting the widely neglected aspect of trust, this book aims at broadening the horizon of the ELSI-debate and thus filling a gap in current research on biobanking. The contributions of leading experts and junior researchers cover a wide field of disciplines relevant for biobanking including law, ethics, medicine, public health, social sciences, philosophy and theology.

Keywords

Biobanks -- Moral and ethical aspects -- Congresses. --- Biobanks. --- Bioethics -- Congresses. --- Bioethics. --- Ethics --- Genetics --- Medicine --- Health Facilities --- Health Occupations --- Health Care Quality, Access, and Evaluation --- Health Care Facilities, Manpower, and Services --- Biology --- Humanities --- Health Care --- Disciplines and Occupations --- Biological Science Disciplines --- Natural Science Disciplines --- Bioethics --- Biological Specimen Banks --- Genetics, Medical --- Law, Politics & Government --- Health & Biological Sciences --- Biology - General --- Law, General & Comparative --- Biotechnology --- Moral and ethical aspects. --- Social aspects. --- Bio-banks --- Biological specimen banks --- Law. --- Biotechnology. --- Ethics. --- Medical laws and legislation. --- Public international law. --- Public International Law. --- Medical Law. --- Philosophy of Medicine. --- Biomedicine general. --- Philosophy. --- Law of nations --- Nations, Law of --- Public international law --- Law --- Law, Medical --- Medical personnel --- Medical registration and examination --- Physicians --- Surgeons --- Medical policy --- Medical jurisprudence --- Medical logic --- Deontology --- Ethics, Primitive --- Ethology --- Moral philosophy --- Morality --- Morals --- Philosophy, Moral --- Science, Moral --- Philosophy --- Values --- Chemical engineering --- Genetic engineering --- Acts, Legislative --- Enactments, Legislative --- Laws (Statutes) --- Legislative acts --- Legislative enactments --- Jurisprudence --- Legislation --- Legal status, laws, etc. --- Law and legislation --- Biological resource centers --- Biological specimens --- Public health laws. --- Medicine-Philosophy. --- Medicine. --- Public International Law . --- Clinical sciences --- Medical profession --- Human biology --- Life sciences --- Medical sciences --- Pathology --- Communicable diseases --- Public health --- Medical laws and legislation --- Health Workforce --- Medicine—Philosophy. --- Biomedicine, general.

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