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The last few years have witnessed an important expansion in the collection and processing of human biological samples and related information data. Biobanks - huge repositories of human biological specimens - have a strategic importance for genetic research, clinical care, and future treatments. However, biobanks are facing many major ethical, legal, and governance challenges, including informed consent, privacy, ownership, commercialization, and harmonization. In addition, forensic DNA-databases raise specific issues. These databases can be an important tool for the police services in their search for the perpetrator of a crime, yet this raises ethical questions with regard to the relationship between liberty and security. This book - a publication of the European Commission funded research project GeneBanC - offers a rich source of material on the ethical, legal, and governance aspects of clinical biobanks, population biobanks, and forensic biobanks. It's research will be of interest to policy makers, academics, and legislators.
Medical law --- Professional ethics. Deontology --- Preservation of organs, tissues, etc --- Biobanks --- Donation of organs, tissues, etc --- Procurement of organs, tissues, etc --- Biological specimens --- Law and legislation --- Moral and ethical aspects --- Government policy --- Academic collection --- Biological Specimen Banks --- Informed Consent. --- 17.023.33 --- biobank (bank voor menselijk lichaamsmateriaal) --- 17.023.33 Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Consent, Informed --- Treatment Refusal --- Mental Competency --- Disclosure --- Therapeutic Misconception --- ethics. --- legislation & jurisprudence. --- biobanque (banque de matériel corporel humain) --- Conferences - Meetings --- Informed Consent --- Organ procurement (Surgery) --- Tissue procurement (Surgery) --- Tissue banks --- Transplantation of organs, tissues, etc. --- Organ preservation (Anatomy) --- Organs (Anatomy) --- Anatomical gifts --- Organ donation --- Tissue donation --- Tissues --- Specimens, Biological --- Biological products --- Bio-banks --- Biological specimen banks --- Biological resource centers --- ethics --- legislation & jurisprudence --- Preservation --- Donation --- Preservation of organs, tissues,etc --- Congresses --- Donation of organs, tissues, etc. --- Procurement of organs, tissues, etc. --- biobanque (banque de matériel corporel humain) --- Biologische doeleinden. Bio-ethiek; bioethiek. Übermensch. Medische deontologie --- Preservation of organs, tissues, etc - Law and legislation - Congresses --- Biobanks - Moral and ethical aspects - Congresses --- Donation of organs, tissues, etc - Law and legislation - Congresses --- Procurement of organs, tissues, etc - Law and legislation - Congresses --- Biological specimens - Law and legislation - Congresses --- Biobanks - Government policy - Congresses --- Droit médical --- Bioéthique --- Droit comparé --- Banques d'organes --- Banques d'échantillons biologiques --- Études comparatives
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