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Over the last 50 years palliative care has usually been associated with cancer patients but more recently there has been increased discussion of the role of palliative care for neurological patients. In the past years, neurology has moved from being a purely diagnostic area to a very therapeutically active one. A further step needs to be taken to modify the therapeutic activity from “cure” to “care” depending on the patient’s disease trajectory. Palliative care has been associated with care at the end of life, whereas it may be appropriate earlier in the disease progression, and will extend after death in the support of bereaved families. The care of patients with neurological disease, and their families, will encompass the psychological, spiritual and existential issues and neurologists, and the teams in which they work, should develop skills to consider all aspects of care, in order to maximize the quality of life of all involved, and enable patients to die peacefully.
palliative care --- symptom control --- bereavement --- dying --- psychological care
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Neurological emergencies. --- Emergencies, Neurological --- Neurologic emergencies --- Medical emergencies --- Nervous system --- Diseases
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This comprehensive book addresses the acute emergencies in neuromuscular disease from a novel perspective, focusing on clinical management and treatment of these disorders rather than the more traditional neuropathology, neurogenetics, and neurophysiology approaches. The book fills the gap in guidelines by providing an evidence-based guidance for the clinical adult or pediatric neurologist confronted by an acutely ill patient in a potentially life-threatening situation. The book is structured according to pathophysiological principles, but each chapter is strictly organised around case vignettes that emphasize clinical relevance allowing the non-specialist to access complex scientific backgrounds. The electronic supplementary material and multimedia are provided as an integral tool to facilitate accessibility and understanding of a notoriously difficult field of neurology. Finally, the role of patients, who are increasingly involved in many management decisions, is highlighted in a chapter on ethical issues discussing withholding or withdrawing life-sustaining therapy, patient end-of-life values, wishes and preferences, and on advanced directives. The publication is aimed equally at the non-specialist neurologist in frontline clinical practice confronted by a rare disorder needing immediate management decisions, at the clinical specialist referring for guidance in specific management aspects, and at the specialist researcher keen to maintain clinic relevance.
Neuropathology --- Orthopaedics. Traumatology. Plastic surgery --- Human medicine --- hersenen --- spoedgevallen --- intensieve zorgen --- intensieve-zorgen afdeling
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De WRR stelt voor om het preventiebeleid een nieuwe impuls te geven door niet langer de gezondheidsverschillen centraal te stellen maar het gezondheidspotentieel. We dienen ons dan af te vragen hoe zoveel mogelijk gezondheidswinst kan worden behaald, en hoe gezondheidsverlies zoveel mogelijk kan worden voorkomen.Dat brengt ons tot drie prioriteiten......
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