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This is a book written to celebrate the humanity of people, and to share experiences of what brilliant care and support can look like for families with learning disabled or autistic children and adults. Sara Ryan steers clear of jargon and 'doublespeak' to conjure authentic experiences of families. Speaking with families and professionals, she conveys the love, laughter and joy which binds families and the harsh realities many face; of separation from loved ones, substandard care and frustration and helplessness in the face of inflexible services. From their experiences, Sara looks to capture those pockets of brilliance that families have encountered, and which outstanding practitioners have pioneered, for us all to learn from. We know so much about what support and services should look like in order to enable flourishing lives - this book aims to help families and professionals to achieve it, together.
Learning disabled --- Learning disabled --- People with mental disabilities --- Care. --- Family relationships. --- Family relationships.
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"On July 4th 2013, Connor Sparrowhawk, also known as Laughing Boy or LB, was found in dead in a specialist NHS unit. Connor, who had autism and epilepsy, had a seizure while in the bath and no member of staff was on hand to stop him from drowning. An entirely preventable death. Connor's mother Sara Ryan tells the touching story of her remarkable son's early life, then premature death. She articulates the harrowing experience of not only losing a child, but then having to fight to discover the truth about the circumstances of his death. Following Connor's death, Sara and others start the dynamic #JusticeforLB campaign to highlight the injustice of Connor's death. It quickly gains momentum and becomes a rallying cry not only for Connor, but for the many other injustices learning disabled adults experience, leading to high-profile inquiries which uncover shocking rates of premature death among this group. Justice for Laughing Boy tells a very uncomfortable truth about the experiences of people with learning disabilities in inpatient settings today. It serves as a wake-up call to all of us and asks: can we really claim that we respect the life and dignity of learning disabled people?"--
Learning disabled --- LD adults --- Learning disabled adults --- Slow-learning adults --- People with mental disabilities --- Institutional care --- Sparrowhawk, Connor, --- Death and burial. --- Laughing Boy,
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