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Book
Galileo's Middle Finger : Heretics, Activists, and One Scholar's Search for Justice
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ISBN: 9780143108115 Year: 2016 Publisher: New York Penguin books

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Galileo's Middle Fingeris one American's eye-opening story of life in the trenches of scientific controversy. For two decades, historian Alice Dreger has led a life of extraordinary engagement, combining activist service to victims of unethical medical research with defense of scientists whose work has outraged identity politics activists. With spirit and wit, Dreger offers inGalileo's Middle Finger an unforgettable vision of the importance of rigorous truth seeking in today's America, where both the free press and free scholarly inquiry struggle under dire economic and political threats. This illuminating chronicle begins with Dreger's own research into the treatment of people born intersex (once called hermaphrodites). Realization of the shocking surgical and ethical abuses conducted in the name of normalizing intersex children's gender identities moved Dreger to become an internationally recognized patient rights activist. But even as the intersex rights movement succeeded, Dreger began to realize how some fellow progressive activists were employing lies and personal attacks to silence scientists whose data revealed uncomfortable truths about humans. In researching one such case, Dreger suddenly became the target of just these kinds of attacks. Troubled, she decided to try to understand more-to travel the country to ferret out the truth behind various controversies, to obtain a global view of the nature and costs of these battles.Galileo's Middle Fingerdescribes Dreger's long and harrowing journeys between the two camps for which she felt equal empathy- social justice activists determined to win and researchers determined to put hard truths before comfort. Ultimately what emerges is a lesson about the intertwining of justice and of truth-and a lesson of the importance of responsible scholars and journalists to our fragile democracy.

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Hermaphrodites and the medical invention of sex
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ISBN: 0674034333 9780674034334 9780674089273 0674089278 9780674001893 0674001893 Year: 1998 Publisher: Cambridge, MA : Harvard University Press,

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Punctuated with remarkable case studies, this book explores extraordinary encounters between hermaphrodites--people born with "ambiguous" sexual anatomy--and the medical and scientific professionals who grappled with them. Alice Dreger focuses on events in France and Britain in the late nineteenth century, a moment of great tension for questions of sex roles. While feminists, homosexuals, and anthropological explorers openly questioned the natures and purposes of the two sexes, anatomical hermaphrodites suggested a deeper question: just how many human sexes are there? Ultimately hermaphrodites led doctors and scientists to another surprisingly difficult question: what is sex, really? Hermaphrodites and the Medical Invention of Sex takes us inside the doctors' chambers to see how and why medical and scientific men constructed sex, gender, and sexuality as they did, and especially how the material conformation of hermaphroditic bodies--when combined with social exigencies--forced peculiar constructions. Throughout the book Dreger indicates how this history can help us to understand present-day conceptualizations of sex, gender, and sexuality. This leads to an epilogue, where the author discusses and questions the protocols employed today in the treatment of intersexuals (people born hermaphroditic). Given the history she has recounted, should these protocols be reconsidered and revised? A meticulously researched account of a fascinating problem in the history of medicine, this book will compel the attention of historians, physicians, medical ethicists, intersexuals themselves, and anyone interested in the meanings and foundations of sexual identity.


Book
Hermaphrodites and the medical invention of sex
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Year: 1998 Publisher: Cambridge (Mass.) : Harvard university press,

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One of us : conjoined twins and the future of normal
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ISBN: 0674012941 Year: 2004 Publisher: Cambridge (Mass.) : Harvard university press,

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Book
Bioethics in action
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ISBN: 9781107120891 Year: 2018 Publisher: Cambridge Cambridge University Press

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Book
Hermaphrodites and the medical invention of sex
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Year: 1998 Publisher: Cambridge : Harvard University Press,

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Fonds Suzan Daniel (FSD)

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Book
One of Us
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ISBN: 9780674258082 Year: 2005 Publisher: Cambridge, MA

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Book
Bioethics in action
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ISBN: 1108584071 1316343197 1108695701 1107120896 1107543932 Year: 2018 Publisher: Cambridge : Cambridge University Press,

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Speaking from and to the growing movement among academics to become involved with 'socially-engaged' work, this volume presents first-person case studies of attempts to fix serious ethical problems in medical practice and research. It highlights the critical difference between the pundit approach to bioethics and the interventional approach - the talkers and the doers - and points to how abused and damaged the doers often end up. Chapters cover a diverse set of topics, including the troubling influence of for-profit businesses on public health policy, the politics of exposing histories of unjust medical research, the challenges of patient rights' work in sexuality and reproduction, collaborations between NGOs and academics, methods for changing entrenched yet harmful medical practices, engaging public policy through educating governmental leaders, and whistleblowing. The trending interest in the interplay of academia and advocacy and the growing importance of 'socially-engaged' work by academics make this a timely and much-needed resource.


Book
Health humanities reader
Authors: --- --- --- --- --- et al.
ISBN: 0813562481 9780813562483 1322111111 9781322111117 9780813562476 0813562473 9780813562469 0813562465 Year: 2014 Publisher: New Brunswick, NJ : Rutgers University Press,

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Over the past forty years, the health humanities, previously called the medical humanities, has emerged as one of the most exciting fields for interdisciplinary scholarship, advancing humanistic inquiry into bioethics, human rights, health care, and the uses of technology. It has also helped inspire medical practitioners to engage in deeper reflection about the human elements of their practice. In Health Humanities Reader, editors Therese Jones, Delese Wear, and Lester D. Friedman have assembled fifty-four leading scholars, educators, artists, and clinicians to survey the rich body of work that has already emerged from the field—and to imagine fresh approaches to the health humanities in these original essays. The collection’s contributors reflect the extraordinary diversity of the field, including scholars from the disciplines of disability studies, history, literature, nursing, religion, narrative medicine, philosophy, bioethics, medicine, and the social sciences. With warmth and humor, critical acumen and ethical insight, Health Humanities Reader truly humanizes the field of medicine. Its accessible language and broad scope offers something for everyone from the experienced medical professional to a reader interested in health and illness.

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