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Confidentiality --- Data Management --- Internationality --- Privacy --- methods
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"This timely book examines the interaction of health research and regulation with law through empirical analysis and the application of key anthropological concepts to reveal the inner workings of human health research. Through ground-breaking empirical inquiry, Regulatory Stewardship of Health Research explores how research ethics committees (RECs) work in practice to both protect research participants and promote ethical research. This thought-provoking book provides new perspectives on the regulation of health research by demonstrating how RECs and other regulatory actors seek to fulfil these two functions by performing a role of 'regulatory stewardship'. This involves guiding researchers through stages of research approval, as well as seeking to maximise benefits for participants and society while minimising risks. Arguing that participant protection and research promotion should rightly be treated as twin objectives for health research regulators, this book asserts that there is a need for more overt recognition of the importance and function of the deliberative space in which RECs can negotiate the risks relevant to a research application. This book is a key resource for academics and students interested in health research and regulation, and the dynamic interaction of ethics and the law. Regulators and policy-makers will also find it to be an insightful and illuminating text for the practical insights that it reveals about research governance in action"--
Health --- Research. --- Personal health --- Wellness --- Medicine --- Physiology --- Diseases --- Holistic medicine --- Hygiene --- Well-being --- Health Research Regulation --- Research Ethics --- Health Law --- Research Governance --- Anthropology --- Research Ethics Committees
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Graeme Laurie stepped down from the Chair in Medical Jurisprudence at the University of Edinburgh in 2019. This edited collection pays tribute to his extraordinary contributions to the field. Graeme often spoke about the importance of 'legacy' in academic work and forged a remarkable intellectual legacy of his own, notably through his work on genetic privacy, human tissue and information governance, and the regulatory salience of the concept of liminality. The essays in this volume animate the concept of legacy to analyse the study and practice of medical jurisprudence. In this light, legacy reveals characteristics of both benefit and burden, as both an encumbrance to and facilitator of the development of law, policy and regulation. The contributions reconcile the ideas of legacy and responsiveness and show that both dimensions are critical to achieve and sustain the health of medical jurisprudence itself as a dynamic, interdisciplinary and policy-engaged field of thinking.
Medical laws and legislation. --- Human chromosome abnormalities --- Medical ethics. --- Medical genetics --- Diagnosis --- Moral and ethical aspects. --- Law and legislation. --- Laurie, G. T. --- Medical laws and legislation --- Biomedical ethics --- Clinical ethics --- Ethics, Medical --- Health care ethics --- Medical care --- Medicine --- Bioethics --- Professional ethics --- Nursing ethics --- Social medicine --- Human chromosomes --- Chromosome abnormalities --- Genetic disorders --- Law, Medical --- Medical personnel --- Medical registration and examination --- Physicians --- Surgeons --- Medical policy --- Medical jurisprudence --- Moral and ethical aspects --- Abnormalities --- Legal status, laws, etc. --- Law and legislation --- Laurie, Graeme T.
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