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Book
Sickle cell disease : screening, diagnosis, management, and counseling in newborns and infants
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Year: 1993 Publisher: Rockville (MD) : Agency for Health Care Policy and Research (US),

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Book
La maladie génétique au quotidien : la drépanocytose : histoires de vies
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ISBN: 9782130621607 2130621600 Year: 2013 Publisher: Paris: PUF,

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Quatre cents enfants naissent chaque année en France avec la drépanocytose, la plus fréquente des maladies génétiques dans notre pays. Vingt mille patients doivent vivre au quotidien avec cette maladie, qui ne se voit pas en dehors de crises douloureuses extrêmement violentes liées au blocage des globules rouges anormaux dans les vaisseaux sanguins. Elle peut toucher tous les organes et laisser de graves séquelles fonctionnelles. Encore ignorée du grand public, elle est également méconnue de beaucoup de soignants. Ce livre est basé sur des entretiens tenus avec vingt-neuf patients vivant en Ile-de-France. Dans ces " histoires de vie " souvent poignantes, chacun dit son parcours professionnel, sa stratégie pour concilier travail et problèmes de santé. Il s'interroge : doit-il se considérer comme normal ou handicapé, ou comme les deux à la fois ? Derrière une normalité apparente, il se sait atteint d'une maladie imprévisible, qui peut à tout moment se révéler grave, rendant son présent incertain. L'idée de la mort est permanente, au hasard d'une crise. Comment envisager une famille, la possible transmission de la maladie aux enfants ? Comment apprendre à vivre malgré l'emprise de la drépanocytose ?


Book
The management of sickle cell disease
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Year: 2002 Publisher: [Bethesda, Md.] : National Institutes of Health, National Heart, Lung, and Blood Institute, Division of Blood Diseases and Resources,

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Book
La génétique de la sicklémie et l'intérêt anthropologique de sa fréquence en Afrique noire
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Year: 1952 Publisher: Tervuren: [éditeur inconnu],

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Book
Sickle cell disease and the social sciences : health, racism and disablement
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ISBN: 9780367702670 0367702673 Year: 2020 Publisher: London Routledge

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Sickle cell disease (SCD) is a severe chronic illness and one of the world’s most common genetic conditions, with 400,000 children born annually with the disorder, mainly in Sub-Saharan Africa, India, Brazil, the Middle East and in diasporic African populations in North America and Europe. Biomedical treatments for SCD are increasingly available to the world’s affluent populations, while such medical care is available only in attenuated forms in Africa, India and to socio-economically disadvantaged groups in North America and Europe.Often a condition rendered invisible in policy terms because of its problematic association with politically marginalized groups, the social study of sickle cell has been neglected. This illuminating volume explores the challenges and possibilities for developing a social view of sickle cell, and for improving the quality of lives of those living with SCD. Tackling the controversial role of screening and genetics in SCD, the book offers a brief thematic history of approaches to the condition, queries the role of ethnicity and includes a discussion of how the social model of disability can be applied, as well as featuring chapters focusing on athletics, prisons and schools.Bringing together a wide range of original research conducted in the USA, the UK, Ghana and Nigeria, Sickle Cell and the Social Sciences is anchored in the discipline of sociology, but draws upon a diverse range of fields, including public health, anthropology, social policy and disability studies.


Book
Sickle cell disease: tips for healthy living.
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Year: 2018 Publisher: [Bethesda, Md.] : Department of Health & Human Services - USA, National Institutes of Health, National Heart, Lung, and Blood Institute,

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Keywords

Sickle cell anemia --- Patients --- Care.


Book
The management of sickle cell disease
Author:
Year: 2002 Publisher: [Bethesda, Md.] : National Institutes of Health, National Heart, Lung, and Blood Institute, Division of Blood Diseases and Resources,

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Periodical
Journal of Sickle Cell Disease
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ISSN: 30290473 Publisher: [Place of publication not identified] : Oxford University Press,

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Proudly open access, the Journal of Sickle Cell Disease (JSCD) is committed to upholding rigorous scientific standards while ensuring researchers, clinicians, patients, and the public have unobstructed access to the latest discoveries. We eagerly invite contributions from all corners of the globe, united in our ambition to enhance the lives of all those affected by sickle cell disease.


Book
Sickle cell disease: tips for healthy living.
Author:
Year: 2018 Publisher: [Bethesda, Md.] : Department of Health & Human Services - USA, National Institutes of Health, National Heart, Lung, and Blood Institute,

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Sickle cell anemia --- Patients --- Care.

Sickle cell disease.
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ISBN: 0192615343 Year: 1985 Publisher: Oxford : Oxford university press,

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