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Spezielle Versorgungslagen in der Langzeitpflege Der Pflege-Report, der jährlich in Buchform und als Open-Access-Publikation erscheint, rückt im Schwerpunkt 2022 jene Pflegebedürftigen in den Mittelpunkt, die nicht wie im „Normalfall“ aus altersassoziierten Gründen Unterstützungsbedarf aufweisen: Fast ein Fünftel der Pflegebedürftigen ist noch keine 60 Jahre alt. Neben Kindern und Jugendlichen zählen hierzu auch Erwachsene im erwerbsfähigen Alter oder Menschen mit speziellen Grunderkrankungen wie beispielsweise frühen Demenzen, Beatmungspflicht oder Menschen mit Behinderungen. Alle diese Betroffenen fallen letztlich mit ihren spezifischen Bedarfen durch das Raster der „Altenpflege“. Die 16 Fachbeiträge des Pflege-Reports widmen sich ihren konkreten Versorgungs- und weiteren Unterstützungsbedarfen und wie diese gezielt gedeckt werden können: in Bezug auf das geeignete häusliche oder außerhäusliche Pflegesetting sowie hinsichtlich der erforderlichen Qualifizierung und Unterstützung informeller wie professioneller Pflegekräfte. Aus dem Inhalt Pflegebedürftige Kinder und Jugendliche: Pflegerische Versorgung, familiäre Situation und Teilhabe Versorgung am Lebensende: Infrastruktur der Palliativversorgung, Krankenhaustransfers am Lebensende, Advance Care Planning, Sozialethische Perspektiven Weitere spezielle Versorgungslagen: Menschen mit Körperbehinderungen, Außerklinische Intensivpflege, Pflege psychisch kranker Menschen und von Menschen mit Frontotemporaler Demenz, Menschen mit einer geistigen Behinderung und altersassoziiertem Pflegebedarf, Kinder und Jugendliche mit Pflegeverantwortung Strukturelle Rahmenbedingungen: Neue Wohnformen, Anforderungen an die Aus- und Weiterbildung, Angehörigenvertretung und Pflegeberatung Zudem präsentiert der Pflege-Report empirische Analysen zur Pflegebedürftigkeit in Deutschland sowie zur Inanspruchnahme verschiedener Pflegeformen. Ein besonderer Fokus gilt der gesundheitlichen Versorgung in der ambulanten Pflege und im Pflegeheim. Die Herausgebenden Der Pflege-Report wird von Prof. Dr. Klaus Jacobs, Jürgen Klauber und Dr. Antje Schwinger vom Wissenschaftlichen Institut der AOK (WIdO) in Kooperation mit Prof. Dr. Adelheid Kuhlmey von der Charité – Universitätsmedizin Berlin und Prof. Dr. Stefan Greß von der Hochschule Fulda herausgegeben.
Public health & preventive medicine --- Nursing --- Nursing research & theory --- Pflegebedürftigkeit --- Datenmaterial Pflegebedürftigkeit --- Analysen Pflegebedürftigkeit --- Pflegebedürftigkeit Deutschland --- Lebensqualität --- Pflegeinfrastruktur --- Pflege bei Kindern --- Pflege bei Jugendlichen --- Lebensende --- Palliativversorgung --- Advance Care Planning --- Langzeitbeatmete --- Pflegeberatung --- Psychiatrische häusliche Krankenpflege --- Pflege in der Familie --- Aus- und Weiterbildung in der Pflege --- Public health. --- Nursing. --- Public Health. --- Nursing Research. --- Research. --- Nursing research --- Clinical nursing --- Nurses and nursing --- Nursing process --- Care of the sick --- Medicine --- Community health --- Health services --- Hygiene, Public --- Hygiene, Social --- Public health services --- Public hygiene --- Social hygiene --- Health --- Human services --- Biosecurity --- Health literacy --- Medicine, Preventive --- National health services --- Sanitation
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This Special Issue of the journal Children constitutes an opportune moment to reflect on the psychosocial needs of children living with rare diseases and of their families. As medical advances, treatments, and developments have enabled many of these children to survive infancy and to live into adulthood, progress brings with it concerns and opportunities to enhance the psychosocial quality of life of children living with rare diseases, and of their families. This Special Issue reflects the current state of psychosocial research, which is primarily qualitative in nature. There are no scientifically rigorous randomized clinical trials to create an evidence base of effective psychosocial interventions for the provision of care to children with rare diseases and to their families; nevertheless, the papers within this Special Issue provide a reflection on the state of the science, including ideas about future research and practice. In this next section we share observations about the contributions made by each of the 13 articles, which cover a diverse range of topics.
Psychology --- cancer --- childhood cancer --- adaptation --- psychological --- neoplasm --- oncology --- sibling --- social support --- social adjustment --- palliative care --- end-of-life care --- equity --- public health approach --- compassionate communities --- caregiving --- parents --- psychosocial support --- rare disease --- advance care planning --- decision-making --- family caregiver --- psychosocial care --- communication --- pediatric --- adolescents and young adults --- healthcare needs --- chronic illness --- AYA transition --- Beckwith–Wiedemann syndrome --- emotional-behavioral problems --- psychosocial difficulties --- psychomotor development --- preschool-age children --- pediatric chronic illness --- rare diseases --- family caregivers --- gender differences --- genetic or rare diseases --- health outcomes --- illness perception --- parenting stress --- siblings --- bereavement --- emotions --- psychosocial distress --- pediatrics --- complex chronic conditions --- pediatric to adult transition --- special needs --- interventions --- care coordination --- transition readiness --- family burden --- parental need --- urea cycle disorders --- E-IMD --- inherited metabolic diseases --- medullary thyroid carcinoma --- psychosocial --- young adults --- life-limiting conditions --- adolescents --- age-appropriate --- development --- cognitive functions --- children --- families --- medical complexity --- policy --- advocacy --- n/a --- Beckwith-Wiedemann syndrome
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Unhealthy food intake and insufficient physical activities are related to obesity or lifestyle diseases, which can cause cardiovascular diseases, ultimately leading to death. However, many people are not aware of the importance of these factors, especially before cardiovascular development, although there are several good food habits that can be adopted. After the development of obesity or lifestyle diseases, nutrition and exercise control with appropriate medical therapies are required. Still, many patients do not recognize the importance of these habits. After cardiovascular disease development, nutrition and exercise with optimal medical and/or interventional therapies are required. However, some patients are not able to control their food intake and physical activities. At the advanced stage of heart failure, many things are restricted, including food intake and quality of life issues. At the end of life, nutritional care should be discussed. This book, Nutrition, Exercise, and End-of-Life Discussion in the Cardiovascular Field, addresses the importance of nutrition control before and after cardiovascular disease development, which consists of 14 peer-reviewed papers that cover the general population and patients with end-stage cardiovascular diseases.
milk intake --- mortality --- stroke --- Bayesian survival analysis --- time-to-event data --- JACC study --- unhealthy eating habits --- accumulation --- obesity --- central obesity --- general Japanese population --- atherosclerotic cardiovascular disease --- polyunsaturated fatty acids --- eicosapentaenoic acid --- docosahexaenoic acid --- arachidonic acid --- descriptive study --- heart failure --- vitamin D --- big data --- heart failure with preserved ejection fraction --- geriatric nutritional risk index --- behavioral modification stages --- nutrition counseling --- patient education --- acute coronary syndrome --- healthy behaviors --- diet --- legumes --- fish --- red/processed meat --- physical activity --- anxiety --- depression --- season --- calorie intake --- hospitalization --- malnutrition --- D-dimer --- intervention --- elderly --- cardiovascular mortality --- selenium --- coenzyme Q10 --- acylcarnitine --- brain natriuretic peptide --- cardiac function --- cardiomyopathy --- carnitine deficiency --- CPT2 --- end-stage kidney disease --- free fatty acid --- hemodialysis --- continuous glucose monitoring --- glucose fluctuation --- intracranial artery stenosis --- mean amplitude of glycemic excursions --- standard deviation --- palliative care --- end-of-life care discussion --- advance care planning --- food intake --- artificial nutrition --- onco-cardiology --- nutrition status --- cancer --- acute myocardial infarction --- plant-based dietary patterns --- grains --- nuts --- fruits --- vegetables --- cardiovascular disease --- n/a
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Unhealthy food intake and insufficient physical activities are related to obesity or lifestyle diseases, which can cause cardiovascular diseases, ultimately leading to death. However, many people are not aware of the importance of these factors, especially before cardiovascular development, although there are several good food habits that can be adopted. After the development of obesity or lifestyle diseases, nutrition and exercise control with appropriate medical therapies are required. Still, many patients do not recognize the importance of these habits. After cardiovascular disease development, nutrition and exercise with optimal medical and/or interventional therapies are required. However, some patients are not able to control their food intake and physical activities. At the advanced stage of heart failure, many things are restricted, including food intake and quality of life issues. At the end of life, nutritional care should be discussed. This book, Nutrition, Exercise, and End-of-Life Discussion in the Cardiovascular Field, addresses the importance of nutrition control before and after cardiovascular disease development, which consists of 14 peer-reviewed papers that cover the general population and patients with end-stage cardiovascular diseases.
Medicine --- Pharmacology --- milk intake --- mortality --- stroke --- Bayesian survival analysis --- time-to-event data --- JACC study --- unhealthy eating habits --- accumulation --- obesity --- central obesity --- general Japanese population --- atherosclerotic cardiovascular disease --- polyunsaturated fatty acids --- eicosapentaenoic acid --- docosahexaenoic acid --- arachidonic acid --- descriptive study --- heart failure --- vitamin D --- big data --- heart failure with preserved ejection fraction --- geriatric nutritional risk index --- behavioral modification stages --- nutrition counseling --- patient education --- acute coronary syndrome --- healthy behaviors --- diet --- legumes --- fish --- red/processed meat --- physical activity --- anxiety --- depression --- season --- calorie intake --- hospitalization --- malnutrition --- D-dimer --- intervention --- elderly --- cardiovascular mortality --- selenium --- coenzyme Q10 --- acylcarnitine --- brain natriuretic peptide --- cardiac function --- cardiomyopathy --- carnitine deficiency --- CPT2 --- end-stage kidney disease --- free fatty acid --- hemodialysis --- continuous glucose monitoring --- glucose fluctuation --- intracranial artery stenosis --- mean amplitude of glycemic excursions --- standard deviation --- palliative care --- end-of-life care discussion --- advance care planning --- food intake --- artificial nutrition --- onco-cardiology --- nutrition status --- cancer --- acute myocardial infarction --- plant-based dietary patterns --- grains --- nuts --- fruits --- vegetables --- cardiovascular disease --- milk intake --- mortality --- stroke --- Bayesian survival analysis --- time-to-event data --- JACC study --- unhealthy eating habits --- accumulation --- obesity --- central obesity --- general Japanese population --- atherosclerotic cardiovascular disease --- polyunsaturated fatty acids --- eicosapentaenoic acid --- docosahexaenoic acid --- arachidonic acid --- descriptive study --- heart failure --- vitamin D --- big data --- heart failure with preserved ejection fraction --- geriatric nutritional risk index --- behavioral modification stages --- nutrition counseling --- patient education --- acute coronary syndrome --- healthy behaviors --- diet --- legumes --- fish --- red/processed meat --- physical activity --- anxiety --- depression --- season --- calorie intake --- hospitalization --- malnutrition --- D-dimer --- intervention --- elderly --- cardiovascular mortality --- selenium --- coenzyme Q10 --- acylcarnitine --- brain natriuretic peptide --- cardiac function --- cardiomyopathy --- carnitine deficiency --- CPT2 --- end-stage kidney disease --- free fatty acid --- hemodialysis --- continuous glucose monitoring --- glucose fluctuation --- intracranial artery stenosis --- mean amplitude of glycemic excursions --- standard deviation --- palliative care --- end-of-life care discussion --- advance care planning --- food intake --- artificial nutrition --- onco-cardiology --- nutrition status --- cancer --- acute myocardial infarction --- plant-based dietary patterns --- grains --- nuts --- fruits --- vegetables --- cardiovascular disease
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