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Il est insupportable, vaniteux, orgueilleux, brutal, inconstant, humain. Sans lui, je serais mort de décomposition. Abdel m’a soigné sans discontinuité, comme si j’étais un nourrisson. Attentif au moindre signe, présent, pendant toutes mes absences, il m’a délivré quand j’étais prisonnier, protégé quand j’étais faible. Il m’a fait rire quand je craquais. Il est mon diable gardien. P. P. d. B. L’histoire vraie de la rencontre improbable du riche tétraplégique et du jeune beur de banlieue qui a inspiré le film Intouchables. D’une écriture fluide, sincère, confiante, [Philippe Pozzo di Borgo] partage son quotidien de douleurs, et trouve le recul nécessaire pour s’adresser à tous. On sort de ce livre comme après un bon film, avec une respiration plus ample, un souffle retrouvé, dilaté.

Quadriplegia --- Caregivers

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Family members provide the majority of care for individuals with disabilities in the United States. Recognition is growing that family caregiving deserves and may require societal support, and evidence-based practices have been established for reducing stress associated with caregiving. Despite the substantial research literature on family support that has developed, researchers, advocates and professionals have often worked in separate categorical domains such as family support for caregiving for the frail elderly, for individuals with mental illness, or for people with development disabiliti

People with disabilities --- Caregivers --- Care

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Non-professional caregivers are an important source of physical, emotional and other support to ill or injured Veterans. With an increasing number of Veterans who require care and assistance for traumatic brain injuries (TBI), physical impairments, or other debilitating disorders such as post-traumatic stress (PTSD) and dementia, there is a greater growing demand for spouses, parents or other family members and friends to assume the role of caregiver.^Electronic health applications and tools are increasingly available and have the potential to facilitate caregiving outside of traditional healthcare settings, especially in the context of the rising use of smartphones and mobile technologies.^Lessons learned from prior consumer health information technology (CHIT) interventions could help inform the development of health-related mobile applications.^CHIT applications are defined as electronic tools or technologies intended for use by consumers, by patients or family members, that interact directly with users for the management of their health or healthcare, and in which data, information, or other recommendations are tailored and/or individualized; the system may or may not link to a health professional or health system services.^The Veterans Health Administration (VA) is currently developing mobile applications intended for use by seriously injured post-9/11 Veterans and their family caregivers enrolled in the Comprehensive Assistance for Family Caregivers program.^This report was requested on behalf of the VA offices that are developing these mobile tools.^The objectives of this report are the following: 1) to identify studies of CHIT applications that aim to support the needs of caregivers; 2) examine the usage and effects of CHIT applications on caregiver burden outcomes, and patient outcomes, clinical process measures, and healthcare utilization of interest; 3) discuss parallels that can be drawn from pediatric literature, and 4) identify gaps in the literature.

Caregivers. --- Telecommunication in medicine. --- United States.

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Non-professional caregivers are an important source of physical, emotional and other support to ill or injured Veterans. With an increasing number of Veterans who require care and assistance for traumatic brain injuries (TBI), physical impairments, or other debilitating disorders such as post-traumatic stress (PTSD) and dementia, there is a greater growing demand for spouses, parents or other family members and friends to assume the role of caregiver.^Electronic health applications and tools are increasingly available and have the potential to facilitate caregiving outside of traditional healthcare settings, especially in the context of the rising use of smartphones and mobile technologies.^Lessons learned from prior consumer health information technology (CHIT) interventions could help inform the development of health-related mobile applications.^CHIT applications are defined as electronic tools or technologies intended for use by consumers, by patients or family members, that interact directly with users for the management of their health or healthcare, and in which data, information, or other recommendations are tailored and/or individualized; the system may or may not link to a health professional or health system services.^The Veterans Health Administration (VA) is currently developing mobile applications intended for use by seriously injured post-9/11 Veterans and their family caregivers enrolled in the Comprehensive Assistance for Family Caregivers program.^This report was requested on behalf of the VA offices that are developing these mobile tools.^The objectives of this report are the following: 1) to identify studies of CHIT applications that aim to support the needs of caregivers; 2) examine the usage and effects of CHIT applications on caregiver burden outcomes, and patient outcomes, clinical process measures, and healthcare utilization of interest; 3) discuss parallels that can be drawn from pediatric literature, and 4) identify gaps in the literature.

Caregivers. --- Telecommunication in medicine. --- United States.

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Every day, large numbers of altruistic individuals, in the absence of any legal duty, provide substantial and essential services for elderly and disabled people. In doing so, many such informal carers suffer financial and other disadvantages. This book considers the scope for a "private law" approach to rewarding, supporting or compensating carers, an increasingly vital topic in the context of an ageing population and the need for savings in public expenditure. Adopting a comparative approach, the book explores the recognition of the informal carer and his or her relationship with the care recipient within diverse fields of private law, from unjust enrichment to succession. Aspects of the analysis include the importance of a promise of a reward from the care recipient and the appropriate measure of any remedy. In considering the potential for expansion of a "private law" approach for carers, the book addresses the fundamental and controversial question of the price of altruism. Winner of the University of Cambridge's Yorke Prize 2014

Caregivers --- Home care services --- Home health agencies --- Home health care --- Community health services --- Care givers --- Carers --- Family caregivers --- Home health caregivers --- Informal caregivers --- Volunteers --- Legal status, laws, etc. --- Law and legislation