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Grounded in intimate moments of family life in and out of hospitals, this book explores the hope that inspires us to try to create lives worth living, even when no cure is in sight. The Paradox of Hope focuses on a group of African American families in a multicultural urban environment, many of them poor and all of them with children who have been diagnosed with serious chronic medical conditions. Cheryl Mattingly proposes a narrative phenomenology of practice as she explores case stories in this highly readable study. Depicting the multicultural urban hospital as a border zone where race, class, and chronic disease intersect, this theoretically innovative study illuminates communities of care that span both clinic and family and shows how hope is created as an everyday reality amid trying circumstances.
African Americans. --- African Americans --- Chronically ill children --- Medical anthropology --- Poor --- Social medicine --- Medical personnel and patient --- Medical care. --- Medical care --- affect theory. --- african american. --- chronic disease. --- chronic illness. --- class. --- clinical narrative. --- ethnography. --- family life. --- health care delivery. --- health policy. --- health. --- hospitals. --- living while dying. --- medical humanities. --- medicine. --- modern healthcare. --- multicultural. --- nonfiction. --- poverty. --- public hospitals. --- race. --- sick children. --- social issues. --- social science. --- terminal illness. --- urban hospital. --- urban life.
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