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Carrier testing of adults provides information about the risk of passing a genetic mutation to your children, leading to reproductive (and some say, eugenic) decisions. Excessive carrier screening may have adverse effects, but it can also prevent suffering and open up new reproductive options. Raz's study focuses on the interplay of community genetics (the medical organisation of carrier screening) and genetic alliances (networks of individuals at risk), exploring how 'genetic communities' are emerging both within existing ethnic groups and around patients' organisations. While the interplay between carrier testing, reproduction and eugenics has sparked many discussions, this study provides a novel and much-needed perspective on its actual implementation and interpretation by community members. Conflating a cross-cultural spectrum of genetic communities, the benefits and perils of supporting (or restricting) carrier screening are located within broader social issues such as religion, ethnicity, multiculturalism, abortion, stigmatisation, suffering and care-giving. While carrier screening emerges as ultimately a morally justified pronatalist endeavour for the reduction of suffering, thus being different in principle from the 'old' eugenics, it can also carry unintended adverse consequences if left unattended to consumers, communities or health professionals.
Community health services --- Genetic screening --- Social aspects
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Community health services. --- Chronically ill --- Medical care.
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Ze onderscheiden vijf patronen van samenwerking in vijf soorten netwerken, met grote verschillen in overbelasting en voldoening. Het boek geeft allen die beroepshalve of als vrijwilliger of mantelzorger met langdurige zorg te maken hebben, inzicht in de rol van samenwerking en netwerken in het voorkomen van overbelasting van mantelzorgers en vrijwilligers.
Social networks --- Health care teams --- Community health services
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Mother-Child Relations --- Perinatal Care --- Maternal Health Services --- Community Health Services --- Poverty
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Public housing --- Public service employment --- Community health services --- Poor --- Law and legislation --- Medical care
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Community Health Services. --- Community Health Planning. --- Community health services --- Managed care plans (Medical care) --- Disease management --- Medicine --- Social service. --- Services communautaires de santé --- Soins intégrés de santé --- Gestion thérapeutique --- Médecine --- Service social --- Practice. --- Pratique
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This fourth edition of Community Care Practice and the Law has been fully updated to reflect the rapid and continuing legal, policy and practice changes affecting community care. It provides comprehensive and jargon-free explanations of community care legislation, as well as other areas of law directly relevant to practitioners.
Public welfare --- Social service --- Community health services --- Neighborhood health centers --- Public health --- Regional medical programs --- Law and legislation
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