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1993 (3)

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Book
Music Therapy in palliative- hospice care
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ISBN: 0918812372 Year: 1993 Publisher: Saint Louis MMB Music

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Hospice care for children
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ISBN: 1280441437 9786610441433 0198023723 1423737555 9781423737551 9781280441431 9780195073126 0195073126 0195073126 661044143X 9780198023722 Year: 1993 Publisher: New York Oxford University Press

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Children with life-threatening and terminal illnesses - and their families - require a unique kind of care to meet a wide variety of needs. This book provides an authoritative source for the many people involved in caring for dying children. It draws together contributions from leading authorities in a comprehensive, fully up-to-date resource, with an emphasis on practical topics that can be put to immediate use. The book covers the entire range of issues related to the hospice environment: organizational structure, clinical issues, the complementary roles of medical professionals and volunteers, the particular circumstances of neonatal and AIDS-related deaths, pain and symptom control, and bereavement support. It explains the developmental stages of children's understanding of death and offers useful advice about school programs and the helpful role of children's literature. Special consideration is given to the need to provide support to hospice staff as well as to grieving parents and surviving siblings. The book is intended for all those who participate in the hospice care process: physicians, nurses, social workers, teachers, clergy, family therapists, parents and community service volunteers


Book
Final choices : to live or to die in an age of medical technology
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ISBN: 0306444623 Year: 1993 Publisher: New York : Insight Books,

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The staggering advances in medical technology over the past few decades have enormously increased the number of treatment techniques available at the concluding stages of life. For countless patients and families, this situation is challenging and confusing, especially if an unexpected crisis occurs in a hospital or hospice, or at home. Final Choices is an extraordinary presentation of the issues, options, and obstacles concerning the right and ability of a dying person to control his or her future. George M. Burnell, M.D., a psychiatrist with direct experience in grief and bereavement counseling, emphasizes the development of open communication within the family and with members of the treatment staff. He sensitively discusses many important concerns so as to facilitate such dialogue, for example: the questions to ask a doctor at the onset of illness; the fear of pain or physical deterioration (e.g., from AIDS or chemotherapy); the spiritual, legal, and financial counsel available to patient and family; the medical "choices" a patient may have in pursuit of a dignified death; the official documents to prepare (e.g., a living will, a power of attorney, a healthcare proxy) for the patient's last wishes; the possible merits of hospice care for the medical and spiritual benefits of patient and family. Featuring poignant case histories, Dr. Burnell describes in clear, nontechnical language the painful ethical and legal complications that surface when patients and families do not pursue the possibility of "do not resuscitate" (DNR) orders in lieu of life-prolonging measures. Unlike other books in the field, Final Choices does not underplay the dilemmas posed by modern medical technology. Featuring a fascinating breakdown of landmark cases, the author weighs the opinions posed by the medical and legal communities, and the increasingly important role of a bioethics committee in its capacity as a family-hospital mediator. An extensive list of sample forms, charts, a helpful glossary of medical terms, and a diagram of states' policies on "right-to-die" issues make this inspirational book invaluable to the terminally ill and their families, experts in traditional and alternative medical treatment, psychiatrists, clinical psychologists, members of the legal profession and the clergy, healthcare legislators, hospital administrators, and social workers.

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