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Renaissance of sickle cell disease research in the genome era
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ISBN: 1281120510 9786611120511 1860947964 9781860947964 9781860946455 1860946453 9781281120519 6611120513 Year: 2007 Publisher: London : Hackensack, NJ : Imperial College Press ; Distributed by World Scientific Pub.,

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The Human Genome Project has spawned a Renaissance of research faced with the daunting expectation of personalized medicine for individuals with sickle cell disease in the Genome Era. This book offers a comprehensive and timeless account of emerging concepts in clinical and basic science research, and community concerns of health disparity to educate professionals, students and the general public about meeting this challenging expectation. Contributions from physicians, research scientists, scientific administrators and community workers make Renaissance of Sickle Cell Disease Research in the

Comprehensive handbook of childhood cancer and sickle cell disease : a biopsychosocial approach
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ISBN: 0197562191 1280840986 0198037988 142942026X 9781429420266 0195169859 9780195169850 9781280840982 9780198037989 9786610840984 6610840989 9780197562192 0190290927 Year: 2006 Publisher: Oxford ; New York : Oxford University Press,

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This text represents multidisciplinary and international efforts and a combination of research and service. Containing information for patients and families, this volume will be useful to those helping children and their families through the treatment, recovery and grieving process.


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Sickle cell anemia : modern trends in treatment
Authors: ---
ISBN: 1634848500 9781634848503 9781634847049 Year: 2016 Publisher: New York, [New York] : Nova Biomedical,

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Sickle cell disease
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ISBN: 0897665120 0897665139 Year: 1989 Volume: 565 Publisher: New York, NY : New York Academy of Sciences,

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Book
Sickle cell disease : a new vision for an old problem
Authors: ---
ISBN: 9781626187740 1626187746 9781622574698 1622574699 Year: 2013 Publisher: [Hauppauge, NY] : Nova Science Publishers,

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Uncertain suffering
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ISBN: 0520945042 9780520945043 9780520259119 0520259114 9780520259126 0520259122 Year: 2009 Publisher: Berkeley University of California Press

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On average, black Americans are sicker and die earlier than white Americans. Uncertain Suffering provides a richly nuanced examination of what this fact means for health care in the United States through the lens of sickle cell anemia, a disease that primarily affects blacks. In a wide ranging analysis that moves from individual patient cases to the compassionate yet distanced professionalism of health care specialists to the level of national policy, Carolyn Moxley Rouse uncovers the cultural assumptions that shape the quality and delivery of care for sickle cell patients. She reveals a clinical world fraught with uncertainties over how to treat black patients given resource limitations and ambivalence. Her book is a compelling look at the ways in which the politics of racism, attitudes toward pain and suffering, and the reliance on charity for healthcare services for the underclass can create disparities in the U.S. Instead of burdening hospitals and clinics with the task of ameliorating these disparities, Rouse argues that resources should be redirected to community-based health programs that reduce daily forms of physical and mental suffering.


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The enculturated gene : sickle cell health politics and biological difference in West Africa
Author:
ISBN: 1400840414 9786613290939 1283290936 9781400840410 9781283290937 9780691123165 0691123160 9780691123172 0691123179 Year: 2011 Publisher: Princeton, N.J. : Princeton University Press,

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In the 1980's, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell ""mild"" in a social setting where public health priorities and economic austerity programs have forced people to

Keywords

Kinship --- Genetic disorders --- Sickle cell anemia --- Ethnology --- Clans --- Consanguinity --- Families --- Kin recognition --- Congenital diseases --- Disorders, Genetic --- Disorders, Inherited --- Genetic diseases --- Hereditary diseases --- Inherited diseases --- Diseases --- Medical genetics --- Drepanocytic anemia --- Meniscocytosis --- Sickle cell disease --- Blood hyperviscosity syndrome --- Hemoglobinopathy --- Hemolytic anemia --- Health aspects --- Social aspects --- Patients --- Services for --- Genetic aspects. --- Africa. --- African anthropology. --- African genetics. --- African sicklers. --- Albert Royer Children's Hospital. --- CNTS. --- Centre nationale de transfusion sanguine. --- DNA haplotypes. --- DNA sequences. --- HbAS. --- International Organization for the Fight against Sickle Cell. --- National Blood Transfusion Center. --- OILD. --- RFLP. --- Restriction Fragment Length Polymorphism. --- Senegal. --- Senegalese attitudes. --- Senegalese sickle cell. --- alternative care. --- biological expressions. --- biosocial politics. --- culture. --- disease experiences. --- disease expression. --- economic austerity. --- economically triaged care. --- ethnic population purity. --- fagara. --- genetic difference. --- genetic sequence. --- geneticists. --- global health problems. --- global health. --- healing practices. --- health intervention. --- health. --- healthy sicklers. --- heterozygous sickle cell. --- low-tech strategy. --- multilateral institutions. --- normalization techniques. --- patient advocacy. --- political apathy. --- population. --- public health. --- public neglect. --- self-care. --- sickle cell DNA markers. --- sickle cell anemia. --- sickle cell gene. --- sickle cell research. --- sickle cell trait. --- sicklers. --- social networks. --- traditional plants. --- vitality.

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