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The Human Genome Project has spawned a Renaissance of research faced with the daunting expectation of personalized medicine for individuals with sickle cell disease in the Genome Era. This book offers a comprehensive and timeless account of emerging concepts in clinical and basic science research, and community concerns of health disparity to educate professionals, students and the general public about meeting this challenging expectation. Contributions from physicians, research scientists, scientific administrators and community workers make Renaissance of Sickle Cell Disease Research in the
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This text represents multidisciplinary and international efforts and a combination of research and service. Containing information for patients and families, this volume will be useful to those helping children and their families through the treatment, recovery and grieving process.
Cancer in children. --- Sickle cell anemia in children. --- Cancer in children --- Childhood cancer --- Pediatric cancer --- Tumors in children --- Anemia in children --- Psychological aspects. --- Sickle cell anemia in children
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Sickle cell anemia --- Drepanocytic anemia --- Meniscocytosis --- Sickle cell disease --- Blood hyperviscosity syndrome --- Hemoglobinopathy --- Hemolytic anemia --- Treatment.
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Pathological haematology --- Sickle cell anemia --- Anemia, Sickle Cell --- ANEMIA --- Congresses. --- congresses. --- SICKLE CELL --- Anemia --- Anemia, sickle cell --- Sickle cell --- Congresses --- ANEMIA, SICKLE CELL --- CONGRESSES
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Sickle cell anemia. --- Hemolytic anemia. --- Anemia --- Hemolysis and hemolysins --- Drepanocytic anemia --- Meniscocytosis --- Sickle cell disease --- Blood hyperviscosity syndrome --- Hemoglobinopathy --- Hemolytic anemia
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On average, black Americans are sicker and die earlier than white Americans. Uncertain Suffering provides a richly nuanced examination of what this fact means for health care in the United States through the lens of sickle cell anemia, a disease that primarily affects blacks. In a wide ranging analysis that moves from individual patient cases to the compassionate yet distanced professionalism of health care specialists to the level of national policy, Carolyn Moxley Rouse uncovers the cultural assumptions that shape the quality and delivery of care for sickle cell patients. She reveals a clinical world fraught with uncertainties over how to treat black patients given resource limitations and ambivalence. Her book is a compelling look at the ways in which the politics of racism, attitudes toward pain and suffering, and the reliance on charity for healthcare services for the underclass can create disparities in the U.S. Instead of burdening hospitals and clinics with the task of ameliorating these disparities, Rouse argues that resources should be redirected to community-based health programs that reduce daily forms of physical and mental suffering.
Sickle cell anemia --- Discrimination in medical care --- Health services accessibility --- Minorities --- Race discrimination --- Social medicine --- Drepanocytic anemia --- Meniscocytosis --- Sickle cell disease --- Blood hyperviscosity syndrome --- Hemoglobinopathy --- Hemolytic anemia --- Patients --- Medical care --- african americans. --- ambivalence. --- american healthcare system. --- anthropology. --- black americans. --- community based health programs. --- cultural assumptions. --- disease. --- doctor. --- health disparity. --- healthcare services. --- healthcare. --- human condition. --- life and death. --- medical treatment. --- medicine. --- mental suffering. --- national policy. --- pain and suffering. --- physical suffering. --- politics of racism. --- race in america. --- resource limitations. --- sicker. --- sickle cell anemia. --- sickle cell patients. --- sickness. --- symptoms. --- united states of america. --- wealth disparity.
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In the 1980's, a research team led by Parisian scientists identified several unique DNA sequences, or haplotypes, linked to sickle cell anemia in African populations. After casual observations of how patients managed this painful blood disorder, the researchers in question postulated that the Senegalese type was less severe. The Enculturated Gene traces how this genetic discourse has blotted from view the roles that Senegalese patients and doctors have played in making sickle cell ""mild"" in a social setting where public health priorities and economic austerity programs have forced people to
Kinship --- Genetic disorders --- Sickle cell anemia --- Ethnology --- Clans --- Consanguinity --- Families --- Kin recognition --- Congenital diseases --- Disorders, Genetic --- Disorders, Inherited --- Genetic diseases --- Hereditary diseases --- Inherited diseases --- Diseases --- Medical genetics --- Drepanocytic anemia --- Meniscocytosis --- Sickle cell disease --- Blood hyperviscosity syndrome --- Hemoglobinopathy --- Hemolytic anemia --- Health aspects --- Social aspects --- Patients --- Services for --- Genetic aspects. --- Africa. --- African anthropology. --- African genetics. --- African sicklers. --- Albert Royer Children's Hospital. --- CNTS. --- Centre nationale de transfusion sanguine. --- DNA haplotypes. --- DNA sequences. --- HbAS. --- International Organization for the Fight against Sickle Cell. --- National Blood Transfusion Center. --- OILD. --- RFLP. --- Restriction Fragment Length Polymorphism. --- Senegal. --- Senegalese attitudes. --- Senegalese sickle cell. --- alternative care. --- biological expressions. --- biosocial politics. --- culture. --- disease experiences. --- disease expression. --- economic austerity. --- economically triaged care. --- ethnic population purity. --- fagara. --- genetic difference. --- genetic sequence. --- geneticists. --- global health problems. --- global health. --- healing practices. --- health intervention. --- health. --- healthy sicklers. --- heterozygous sickle cell. --- low-tech strategy. --- multilateral institutions. --- normalization techniques. --- patient advocacy. --- political apathy. --- population. --- public health. --- public neglect. --- self-care. --- sickle cell DNA markers. --- sickle cell anemia. --- sickle cell gene. --- sickle cell research. --- sickle cell trait. --- sicklers. --- social networks. --- traditional plants. --- vitality.
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