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1. Historiek - 2. Schema van de wet van 31 maart 2010 - 3. Achtergrond : Cijfergegevens. De vraag naar een specifieke aansprakelijkheidsregeling - 4. Inhoudelijke bespreking : Inleidende bepaling. Voorwaarden voor schadevergoeding door het fonds . Het Fonds voor medische ongevallen. Procedure voor het Fonds. Opheffing van de wetten van 15 mei 2007 (art. 33). Wijziging van art. 1 Wet van 16 maart 1954 (art. 34). Inwerkingtreding van de wet (art. 35). Invoeging van hoofdstukken met betrekking tot specifieke categorieën slachtoffers.

Tort and negligence --- Medical law --- gezondheidszorg --- aansprakelijkheid (recht) --- gezondheidsrecht --- schadevergoedingen --- Belgium --- Medical laws and legislation --- Patient advocacy --- Medical records --- Physicians' malpractice insurance --- Compensation (Law) --- Physicians --- Medical personnel --- Medical errors --- Torts --- Médecine --- Patients --- Dossiers médicaux --- Assurance de responsabilité médicale --- Indemnisation --- Médecins --- Personnel médical --- Erreurs médicales --- Responsabilité civile --- Law and legislation --- Malpractice --- Droit --- Droits --- Responsabilité professionnelle --- Medische fouten (gez). --- Patiëntenrecht (gez). --- Damages --- E-books --- Schadevergoedingen --- Gezondheidszorg --- 601.7 --- medische fouten (gez) --- patiëntenrecht (gez) --- 05.04 b --- 13.12 --- PHL-Central Office 12 --- schadevergoeding --- Aansprakelijkheid : Schade --- Responsabilité : Dommage --- Schadevergoeding --- Droit médical --- Belgique --- Santé publique --- Personnel médical --- Services de santé --- Dommage corporel --- Responsabilité professionnelle

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Dit boek bevat een grondige en kritische analyse van de Wet Verwerking van Persoonsgegevens (Wet van 8 december 1992 tot bescherming van de verwerking van persoonsgegevens) waarin vooral het gebruik van medische gegevens voor onderzoek veel aandacht krijgt. In het eerste deel wordt het begrip medisch persoonsgegeven toegelicht. Nagegaan wordt wat het verschil is tussen persoonsgegevens en anonieme gegevens, wat persoonsgegevens tot medische persoonsgegevens maken en of genetische persoonsgegevens een apart juridisch regime vereisen. Na een feitelijk overzicht van het gebruik van medische persoonsgegevens geeft de auteur een algemene analyse van de geheimhoudingsplicht, de Wet Verwerking van Persoonsgegevens en de Wet Sociale Kruispuntbank. In het tweede deel van het boek wordt nagegaan hoe in Nederland, Duitsland en Frankrijk het gebruik van medische gegevens voor onderzoek is geregeld. De resultaten van dit rechtsvergelijkend onderzoek worden in deel III vergeleken met de Belgische Wet Verwerking van Persoonsgegevens. De auteur is van oordeel dat die wet om verschillende redenen tekort schiet. Hij formuleert een model waarin de belangen van patiënten, behandelende artsen en onderzoekers beter worden afgewogen. In dit model nemen de commissies voor medische ethiek een niet onbelangrijke plaats in. I. Verkenning van het onderzoeksdomein : 1. Medische persoonsgegevens omschreven en afgebakend - 2. Beschikken over medische persoonsgegevens : verschillende niveaus, andere belangen - 3.- Overzicht van wetgeving - II. Rechtsvergelijkend onderzoek naar het juridisch statuut van het medisch persoonsgegeven aan de hand van het gebruik van medische persoonsgegevens voor medisch-wetenschappelijk onderzoek : 1. Beschikken over medische persoonsgegevens als invalshoek van het rechtsvergelijkend onderzoek - 2. Medisch-wetenschappelijk onderzoek en het toestemmingsprincipe - 3. Gecodeerde gegevens en het geen-bezwaar principe - III. Naar een situationele regeling van het beschikken over medische persoonsgegevens : 1. De kunst van het wegen van belangen - 2. Statuut van het medisch persoonsgegeven naar Belgisch recht : analyse en beoordeling - 3. Een juridisch model voor het beschikken over gegevens voor medisch-wetenschappelijk onderzoek

Medical law --- gezondheidscommissies --- bio-ethiek --- Professional ethics. Deontology --- Belgium --- Deontologie --- Droit privé --- Droit social --- Déontologie --- Geneeskunde --- Médecine --- Privaatrecht --- Sociaal recht --- Medical laws and legislation --- Privacy, Right of --- Confidential communications --- Medicine --- Droit à la vie privée --- Comparative studies --- Physicians --- Research --- Law and legislation --- Droit --- Etudes comparatives --- Secret professionnel --- Recherche --- Patient Rights --- Patient Advocacy --- Research. --- 351.84*7 <493> --- 347.721 <493> --- 342.721 --- medische gegevens (persoonsgegevens) --- lichaamsmateriaal (lichaam, menselijk lichaamsmateriaal) --- patiëntenrechten (rechten van de patiënt) --- biomedisch, medisch-wetenschappelijk onderzoek --- recht (wetgeving, rechtspraak, rechtsbeginselen, juridische aspecten, aansprakelijkheid) --- België --- Academic collection --- #GBIB:CBMER --- 11.01 --- 342.721 Persoonlijke vrijheid. Privacy. Wetgeving i.v.m. transplantatie van organen --- Persoonlijke vrijheid. Privacy. Wetgeving i.v.m. transplantatie van organen --- 347.721 <493> Handelsverenigingen. Bedrijfsconcentratie. Economische concentratie. Financiele concentratie. Holding--België --- Handelsverenigingen. Bedrijfsconcentratie. Economische concentratie. Financiele concentratie. Holding--België --- 351.84*7 <493> Medisch recht. Gezondheidsrecht. Wetgeving i.v.m. ziekenhuizen--België --- Medisch recht. Gezondheidsrecht. Wetgeving i.v.m. ziekenhuizen--België --- Laboratory Research --- Research Activities --- Research and Development --- Research Priorities --- Activities, Research --- Activity, Research --- Development and Research --- Priorities, Research --- Priority, Research --- Research Activity --- Research Priority --- Research, Laboratory --- Ethics, Research --- legislation & jurisprudence. --- données médicales --- matériel corporel humain, (corps humain) --- droits du patient --- recherche biomédicale --- droit (aspects juridiques, législation, jurisprudence, principes de droit, responsabilité) --- Belgique --- Verzekeringsgeneeskunde ; Levensverzekering --- Médecine --- Droit à la vie privée --- Data protection --- Database searching --- Medical records --- Data processing --- legislation & jurisprudence

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This open access book is a collection of articles based on presentations from the 2020 Advancing the Science of Cancer in Latinos conference that gives an overview of conference outcomes. The vision of the conference has been to unite researchers, scientists, physicians and other healthcare professionals, patient advocates and students from across the world to discuss research advancements, identify gaps, and develop actionable goals to translate basic research findings into clinical best practices, effective community interventions, and professional training programs to decrease cancer risks and eliminate cancer disparities for Latinos. This conference comes at an especially important time when Latinos – the largest and youngest minority group in the U.S. – are expected to face a 142% rise in cancer cases in the coming years. Disparities continue to impact this population in critical areas: access to preventive and clinical care, changeable risk behaviors, quality of life, and mortality. Each chapter summarizes the presentation and includes current knowledge in the specific topic areas, identified gaps, and opportunities for future research. Topics explored include: Applying an Exposome-Wide (ExWAS) Approach to Latino Cancer Disparities Supportive Care Needs and Coping Strategies Used by Latino Men Cancer Survivors Optimizing Engagement of the Latino Community in Cancer Research Latino Population Growth and the Changing Demography of Cancer Implementation Science to Enhance the Value of Cancer Research in Latinos A Strength-Based Approach to Cancer Prevention in Latinxs Overcoming Clinical Research Disparities by Advancing Inclusive Research Advancing the Science of Cancer in Latinos: Building Collaboration for Action will appeal to a wide readership due to its comprehensive coverage of topics ranging from basic science and community prevention research to clinical practice to policy. The book is an essential resource for physicians and other medical professionals, researchers, scientists, academicians, patient advocates, and students. It also will appeal to policy-makers, NCI-designated cancer centers, academic centers, state health departments, and community organizations.

Cancer—Epidemiology. --- Social structure. --- Equality. --- Public health. --- Race. --- Medical care. --- Ethnology—Latin America. --- Culture. --- Cancer Epidemiology. --- Social Structure. --- Public Health. --- Race and Ethnicity Studies. --- Health Care. --- Latino Culture. --- Cultural sociology --- Culture --- Sociology of culture --- Civilization --- Popular culture --- Delivery of health care --- Delivery of medical care --- Health care --- Health care delivery --- Health services --- Healthcare --- Medical and health care industry --- Medical services --- Personal health services --- Public health --- Physical anthropology --- Community health --- Hygiene, Public --- Hygiene, Social --- Public health services --- Public hygiene --- Social hygiene --- Health --- Human services --- Biosecurity --- Health literacy --- Medicine, Preventive --- National health services --- Sanitation --- Egalitarianism --- Inequality --- Social equality --- Social inequality --- Political science --- Sociology --- Democracy --- Liberty --- Organization, Social --- Social organization --- Anthropology --- Social institutions --- Social aspects --- Latinx cancer --- Health equity --- health threats in the LatinoLatina community --- vulnerable populations and cancer health disparities --- cancer outcomes and survivorship --- precision medicine --- engaging Latinos in cancer research --- emerging healthcare policies --- implementation science and innovative technology --- hot topics in LatinoLatina cancer health disparities --- cancer and lifestyles --- cancer patient advocacy --- cancer therapies and clinical trials --- HPV vaccination for cancer prevention --- Cancer --- Ethnology --- MEDICAL / Oncology / General. --- Epidemiology. --- health equity --- Health promotion --- Hispanic Americans --- Latin Americans --- Diseases --- Hispanic or Latino. --- Neoplasms. --- Health Inequities. --- United States. --- health threats in the LatinoLatina community --- hot topics in LatinoLatina cancer health disparities

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Le domaine de la santé a été largement transformé depuis une vingtaine d’années par l’action des associations de patients. Ces associations s’impliquent dans la production et la diffusion de connaissances sur les maladies et les questions de santé ; elles jouent un rôle actif dans l’émergence et la consolidation des mobilisations collectives autour des problèmes de santé ; elles sont reconnues comme des acteurs à part entière de la démocratie sanitaire aux côtés des pouvoirs publics, des professionnels et des acteurs économiques. Face aux mutations pressantes du domaine, elles pensent et explorent de nouvelles formes d’action associatives, de nouveaux modes d’intervention publique. Cet ouvrage rend compte directement de l’expérience des associations, à travers une série de discussions collectives conduites avec une cinquantaine d’entre elles. Ces témoignages éclairent la compréhension du fonctionnement associatif et permettent d’appréhender les défis auxquels les associations sont aujourd’hui confrontées ; ils sont destinés à favoriser le dialogue entre les usagers, le monde politique et les professionnels.

Patients' associations --- Patient advocacy --- Consumer Participation --- Organizations, Nonprofit --- Patient Acceptance of Health Care --- Attitude to Health --- Organizations --- Consumer Organizations --- Community Health Services --- Health Care Economics and Organizations --- Delivery of Health Care --- Health Services --- Health Care --- Health Care Quality, Access, and Evaluation --- Health Care Facilities, Manpower, and Services --- Voluntary Health Agencies --- Patient Participation --- Healthcare Facilities, Manpower, and Services --- Healthcare Quality, Access, and Evaluation --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Patient Activation --- Patient Empowerment --- Patient Engagement --- Patient Involvement --- Patient Participation Rates --- Activation, Patient --- Empowerment, Patient --- Engagement, Patient --- Involvement, Patient --- Participation Rate, Patient --- Participation Rates, Patient --- Participation, Patient --- Patient Participation Rate --- Agencies, Voluntary Health --- Agency, Voluntary Health --- Health Agencies, Voluntary --- Health Agency, Voluntary --- Voluntary Health Agency --- Services, Health --- Health Service --- Service, Health --- Healthcare Economics and Organizations --- Community Healthcare --- Health Services, Community --- Services, Community Health --- Community Health Care --- Care, Community Health --- Community Health Service --- Community Healthcares --- Health Care, Community --- Health Service, Community --- Healthcare, Community --- Healthcares, Community --- Service, Community Health --- Organizations, Consumer --- Consumer Organization --- Organization, Consumer --- Non-Governmental Organizations --- Nongovernmental Organizations --- Organizations, Nongovernmental --- Non Governmental Organizations --- Non-Governmental Organization --- Nongovernmental Organization --- Organization --- Organization, Non-Governmental --- Organization, Nongovernmental --- Organizations, Non-Governmental --- Health Attitude --- Attitude, Health --- Attitudes, Health --- Health Attitudes --- Health, Attitude to --- Acceptability of Healthcare --- Acceptors of Health Care --- Health Care Utilization --- Nonacceptors of Health Care --- Patient Acceptance of Healthcare --- Acceptability of Health Care --- Health Care Seeking Behavior --- Care Acceptor, Health --- Care Acceptors, Health --- Care Nonacceptor, Health --- Care Nonacceptors, Health --- Health Care Acceptability --- Health Care Acceptor --- Health Care Acceptors --- Health Care Nonacceptor --- Health Care Nonacceptors --- Healthcare Acceptabilities --- Healthcare Acceptability --- Healthcare Patient Acceptance --- Healthcare Patient Acceptances --- Utilization, Health Care --- Non-Profit Organizations --- Organizations, Non-Profit --- Nonprofit Organizations --- Non Profit Organizations --- Non-Profit Organization --- Nonprofit Organization --- Organization, Non-Profit --- Organization, Nonprofit --- Organizations, Non Profit --- Community Involvement --- Public Participation --- Community Action --- Consumer Involvement --- Action, Community --- Actions, Community --- Community Actions --- Community Involvements --- Consumer Involvements --- Involvement, Community --- Involvement, Consumer --- Involvements, Community --- Participation, Community --- Participation, Consumer --- Participation, Public --- Refusal to Participate --- Public Health Administration --- Social Work --- Community Health Planning --- Public Opinion --- Patient Satisfaction --- Political Activism --- Patient Care Planning --- Patient Participation. --- Voluntary Health Agencies. --- patients --- santé --- cancer --- association de patients --- Malades --- Relations personnel médical-patient --- Associations --- Médecine --- Communication en médecine --- Relations publiques --- France --- Recherche --- 1990-....