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The management of chronic diseases is one of the tasks of all members of the health team, and different models need to be applied in the practice of chronic care management. One of these models is home care services. There are two main sections in this book. In the first part of the section, the concept of caregiving and care at home is explained. In the second part, the responsibilities of caregivers at home and the responsibilities of caregivers of people who have health problems that occur during different periods of life are discussed. In the second section, the problems of caregivers are also included. I would like to think that what is quoted in this book, which contains examples from different cultures of the world for home care approaches, will contribute to the development of home care services. This book is presented to all health professionals working in the field of health services as well as health politics professionals and students trained in these areas.

Caregivers. --- Care givers --- Carers --- Family caregivers --- Home health caregivers --- Informal caregivers --- Volunteers --- Medicine --- Neurology --- Mental and Behavioural Disorders and Diseases of the Nervous System --- Health Sciences

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316.323.65 --- Caregivers --- -Social service --- -Women volunteers in social service --- -330.342.146 <492> --- 351.84*6 --- #A0101A --- 660 Welzijn --- Volunteer social service by women --- Women in volunteer social service --- Voluntarism --- Volunteer workers in social service --- Benevolent institutions --- Philanthropy --- Relief stations (for the poor) --- Social service agencies --- Social welfare --- Social work --- Human services --- Care givers --- Carers --- Family caregivers --- Home health caregivers --- Informal caregivers --- Volunteers --- Verzorgingsstaat. Welvaartsstaat --- 316.323.65 Verzorgingsstaat. Welvaartsstaat --- Social service --- Women volunteers in social service --- 330.342.146 <492>

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This Special Issue of the journal Children constitutes an opportune moment to reflect on the psychosocial needs of children living with rare diseases and of their families. As medical advances, treatments, and developments have enabled many of these children to survive infancy and to live into adulthood, progress brings with it concerns and opportunities to enhance the psychosocial quality of life of children living with rare diseases, and of their families. This Special Issue reflects the current state of psychosocial research, which is primarily qualitative in nature. There are no scientifically rigorous randomized clinical trials to create an evidence base of effective psychosocial interventions for the provision of care to children with rare diseases and to their families; nevertheless, the papers within this Special Issue provide a reflection on the state of the science, including ideas about future research and practice. In this next section we share observations about the contributions made by each of the 13 articles, which cover a diverse range of topics.

Psychology --- cancer --- childhood cancer --- adaptation --- psychological --- neoplasm --- oncology --- sibling --- social support --- social adjustment --- palliative care --- end-of-life care --- equity --- public health approach --- compassionate communities --- caregiving --- parents --- psychosocial support --- rare disease --- advance care planning --- decision-making --- family caregiver --- psychosocial care --- communication --- pediatric --- adolescents and young adults --- healthcare needs --- chronic illness --- AYA transition --- Beckwith–Wiedemann syndrome --- emotional-behavioral problems --- psychosocial difficulties --- psychomotor development --- preschool-age children --- pediatric chronic illness --- rare diseases --- family caregivers --- gender differences --- genetic or rare diseases --- health outcomes --- illness perception --- parenting stress --- siblings --- bereavement --- emotions --- psychosocial distress --- pediatrics --- complex chronic conditions --- pediatric to adult transition --- special needs --- interventions --- care coordination --- transition readiness --- family burden --- parental need --- urea cycle disorders --- E-IMD --- inherited metabolic diseases --- medullary thyroid carcinoma --- psychosocial --- young adults --- life-limiting conditions --- adolescents --- age-appropriate --- development --- cognitive functions --- children --- families --- medical complexity --- policy --- advocacy --- n/a --- Beckwith-Wiedemann syndrome

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Many families experience the challenges of caregiver depression and early childhood developmental delays. Although relationship-based services could help caregivers to deal with such issues at the family level, numerous obstacles prevent adequate screening and identification, referral, and service delivery. The Helping Families Raise Healthy Children initiative implemented in Allegheny County, Pennsylvania, addressed these challenges by training and supporting both early intervention and behavioral health providers in relationship-based care. The relationship-based care approach helped providers in both systems focus on the parent-child relationship in their work with the family. The initiative also addressed some of the logistical barriers to engagement in behavioral health treatment by providing in-home behavioral health services to families in need. The lessons learned from the initiative helped shape the recommendations for implementing the type of effort outlined in this tool kit, which provides information and resources for implementing depression screening within the early intervention system, strengthening cross-system collaborations, and implementing relationship-based care in the early intervention and behavioral health systems --

Depression, Mental --- Caregivers --- Parent and child --- Crisis intervention (Mental health services) --- Community mental health services --- Children --- Child development --- Family Relations --- Mental Health Services --- Community Health Services --- Health Planning --- Professional Practice --- Mood Disorders --- Health Services --- Behavioral Disciplines and Activities --- Health Care Economics and Organizations --- Family --- Organization and Administration --- Mental Disorders --- Health Services Administration --- Psychiatry and Psychology --- Health Care Facilities, Manpower, and Services --- Health Care --- Psychology, Social --- Behavior and Behavior Mechanisms --- Depressive Disorder --- Referral and Consultation --- Community Mental Health Services --- Health Plan Implementation --- Parent-Child Relations --- Psychiatry --- Health & Biological Sciences --- Psychiatric Disorders, Individual --- Psychology --- Health and hygiene --- Administration, Health Services --- Behavior Disorders --- Diagnosis, Psychiatric --- Mental Disorders, Severe --- Psychiatric Diagnosis --- Disorder, Mental --- Disorder, Severe Mental --- Disorders, Behavior --- Disorders, Mental --- Disorders, Severe Mental --- Mental Disorder --- Mental Disorder, Severe --- Severe Mental Disorder --- Severe Mental Disorders --- Administration and Organization --- Administrative Technics --- Administrative Techniques --- Coordination, Administrative --- Logistics --- Supervision --- Technics, Administrative --- Techniques, Administrative --- Administration --- Administrative Coordination --- Administrative Technic --- Administrative Technique --- Technic, Administrative --- Technique, Administrative --- Extended Family --- Family Life Cycle --- Family Research --- Filiation --- Kinship Networks --- Relatives --- Family Life Cycles --- Family Members --- Family, Reconstituted --- Stepfamily --- Extended Families --- Families --- Families, Extended --- Families, Reconstituted --- Family Member --- Family, Extended --- Kinship Network --- Life Cycle, Family --- Life Cycles, Family --- Network, Kinship --- Networks, Kinship --- Reconstituted Families --- Reconstituted Family --- Research, Family --- Stepfamilies --- Healthcare Economics and Organizations --- Services, Health --- Health Service --- Service, Health --- Affective Disorders --- Affective Disorder --- Disorder, Affective --- Disorder, Mood --- Disorders, Affective --- Disorders, Mood --- Mood Disorder --- Practice, Professional --- Practices, Professional --- Professional Practices --- PL93-641 --- Public Law 93-641 --- Health and Welfare Planning --- National Health Planning and Resources Development Act of 1974 --- Planning, Health and Welfare --- State Health Planning, United States --- Planning, Health --- Public Law 93 641 --- Community Healthcare --- Health Services, Community --- Services, Community Health --- Community Health Care --- Care, Community Health --- Community Health Service --- Community Healthcares --- Health Care, Community --- Health Service, Community --- Healthcare, Community --- Healthcares, Community --- Service, Community Health --- Health Services, Mental --- Services, Mental Health --- Services, Mental Hygiene --- Mental Hygiene Services --- Health Service, Mental --- Hygiene Service, Mental --- Hygiene Services, Mental --- Mental Health Service --- Mental Hygiene Service --- Service, Mental Health --- Service, Mental Hygiene --- Family Dynamics --- Family Relationships --- Family Relationship --- Dynamic, Family --- Dynamics, Family --- Family Dynamic --- Family Relation --- Relation, Family --- Relations, Family --- Relationship, Family --- Relationships, Family --- Child study --- Development, Child --- Childhood --- Kids (Children) --- Pedology (Child study) --- Youngsters --- Mental health clinics --- Crisis intervention (Psychiatry) --- Emergency mental health services --- Intervention, Crisis (Mental health services) --- Child and parent --- Children and parents --- Parent-child relations --- Parents and children --- Care givers --- Carers --- Family caregivers --- Home health caregivers --- Informal caregivers --- Dejection --- Depression, Unipolar --- Depressive disorder --- Depressive psychoses --- Melancholia --- Mental depression --- Unipolar depression --- Parent Child Relationship --- Parent-Child Relationship --- Child Relationship, Parent --- Child Relationships, Parent --- Parent Child Relations --- Parent Child Relationships --- Parent-Child Relation --- Parent-Child Relationships --- Relation, Parent-Child --- Relations, Parent-Child --- Relationship, Parent Child --- Relationship, Parent-Child --- Relationships, Parent Child --- Relationships, Parent-Child --- Health Plan Implementations --- Implementation, Health Plan --- Implementations, Health Plan --- Plan Implementation, Health --- Plan Implementations, Health --- Assertive Community Treatment --- Health Services, Community Mental --- Services, Community Mental Health --- Services, Mental Health Community --- Mental Health Services, Community --- Community Treatment, Assertive --- Treatment, Assertive Community --- Consultation and Referral --- Health Service Gatekeepers --- Hospital Referrals --- Referral --- Referral, Hospital --- Referrals, Hospital --- Consultation --- Gatekeepers, Health Service --- Hospital Referral --- Second Opinion --- Consultations --- Gatekeeper, Health Service --- Health Service Gatekeeper --- Opinion, Second --- Opinions, Second --- Referrals --- Second Opinions --- Depression, Endogenous --- Depression, Neurotic --- Depressive Syndrome --- Neurosis, Depressive --- Unipolar Depression --- Depressions, Endogenous --- Depressions, Neurotic --- Depressions, Unipolar --- Depressive Disorders --- Depressive Neuroses --- Depressive Neurosis --- Depressive Syndromes --- Disorder, Depressive --- Disorders, Depressive --- Endogenous Depression --- Endogenous Depressions --- Melancholias --- Neuroses, Depressive --- Neurotic Depression --- Neurotic Depressions --- Syndrome, Depressive --- Syndromes, Depressive --- Unipolar Depressions --- Social Psychology --- Psychologies, Social --- Social Psychologies --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Healthcare Facilities, Manpower, and Services --- organization & administration --- Development --- Mentally Ill Persons --- Grandparents --- Planning Techniques --- Public Health Administration --- Social Work --- Community Health Planning --- Developmental biology --- Developmental psychobiology --- Child rearing --- Age groups --- Life cycle, Human --- Alternatives to psychiatric hospitalization --- Community health services --- Community psychiatry --- Mental health services --- Brief psychotherapy --- Psychiatric emergencies --- Children and adults --- Interpersonal relations --- Parental alienation syndrome --- Sandwich generation --- Volunteers --- Affective disorders --- Neurasthenia --- Neuroses --- Manic-depressive illness --- Melancholy --- Sadness --- Tertiary Care Centers --- Depression, Mental. --- Psychology, Perceptual --- Perceptual Psychology --- Psychiatric Diseases --- Psychiatric Disorders --- Psychiatric Illness --- Psychiatric Disease --- Psychiatric Disorder --- Psychiatric Illnesses --- Psychology. --- Bipolar disorder