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"The inspiring memoir of a young woman who is slowly losing her sight and hearing yet continues to live each day with grace and purpose. Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Like The Diving Bell and the Butterfly, Rebecca's story is an exquisite reminder to live each day to its fullest. When Rebecca was twelve, her parents were told that she would be completely blind before she turned thirty. At eighteen, she fell through a window, shattering her body. In college, she found out that due to a rare genetic disorder-Usher Syndrome Type III-she was losing her hearing as well. Since then, she has earned two Master's degrees from Columbia University, ridden a six-hundred-mile bike race, hiked the Inca Trail, and established a thriving career-all while maintaining a vibrant social life. In Not Fade Away, Rebecca charts her journey from a teenager who tried to hide her disabilities, to a woman who is able to face the world exactly as she is. She meditates on what she's lost-the sound of laughter and skies full of stars, which she can now only imagine (though, she quips, "It's not like anyone can see stars in New York anyway")-and what she's found in return: an exquisite sense of intimacy with family and friends who've stuck by her, and a profound appreciation for everything she still has. Even though Rebecca inhabits a gradually darkening world, she refuses to let that stop her from living life with joy and enthusiasm."--

Retinitis pigmentosa --- Usher's syndrome --- People with disabilities --- Retinitis pigmentosa --- Usher's syndrome --- People with disabilities --- Persons. --- Hearing Loss, Sensorineural. --- Deaf-Blind Disorders. --- Retinitis Pigmentosa. --- Behavioral Disciplines and Activities. --- Deafness. --- Psychiatry and Psychology --- Abnormalities, Multiple. --- Hearing Loss. --- Eye Diseases, Hereditary. --- Blindness. --- Retinal Dystrophies. --- Named Groups --- Congenital Abnormalities. --- Vision Disorders. --- Hearing Disorders. --- Retinal Degeneration. --- Genetic Diseases, Inborn. --- Ear Diseases. --- Congenital, Hereditary, and Neonatal Diseases and Abnormalities. --- Retinal Diseases. --- Sensation Disorders. --- Eye Diseases. --- Disease. --- Neurologic Manifestations. --- Otorhinolaryngologic Diseases. --- Nervous System Diseases. --- Signs and Symptoms. --- Pathological Conditions, Signs and Symptoms. --- Usher Syndromes. --- Psychotherapy. --- Patients. --- Patients --- Patients --- Patients --- Patients --- Alexander, Rebecca --- Health.

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The Journal of Intellectual Disability Research is devoted exclusively to the scientific study of intellectual disability and publishes papers reporting original observations in this field. The subject matter is broad and includes, but is not restricted to, findings from biological, educational, genetic, medical, psychiatric, psychological and sociological studies, and ethical, philosophical, and legal contributions that increase knowledge on the treatment and prevention of intellectual disability and of associated impairments and disabilities, and/or inform public policy and practice. Expert reviews on themes in which recent research has produced notable advances will be included. Such reviews will normally be by invitation. Anyone expert in his/her particular field wishing to submit an uninvited review is advised to seek prior guidance from the Editor. The Journal also includes brief reports, occasional letters, and an 'Hypothesis' section. All papers are assessed by expert referees.

Physiology of nerves and sense organs --- Psychiatry --- psychiatrie --- personen met een mentale beperking --- orthopedagogiek --- personen met een beperking --- Mental retardation --- Déficience intellectuelle --- Research --- Periodicals --- Recherche --- Périodiques --- Intellectual Disability --- Intellectual Disability. --- Mental Retardation. --- Mental Disorders. --- Recherche. --- Handicap intellectuel. --- Research. --- Deficiency, Mental --- Intellectual Development Disorder --- Mental Deficiency --- Mental Retardation, Psychosocial --- Disability, Intellectual --- Idiocy --- Mental Retardation --- Retardation, Mental --- Deficiencies, Mental --- Development Disorder, Intellectual --- Development Disorders, Intellectual --- Disabilities, Intellectual --- Disorder, Intellectual Development --- Disorders, Intellectual Development --- Intellectual Development Disorders --- Intellectual Disabilities --- Mental Deficiencies --- Mental Retardations, Psychosocial --- Psychosocial Mental Retardation --- Psychosocial Mental Retardations --- Retardation, Psychosocial Mental --- Retardations, Psychosocial Mental --- Abnormalities, Multiple --- Cockayne Syndrome --- Cri-du-Chat Syndrome --- De Lange Syndrome --- Fragile X Syndrome --- Laurence-Moon Syndrome --- Prader-Willi Syndrome --- Rubinstein-Taybi Syndrome --- Rett Syndrome --- Angelman Syndrome --- Williams Syndrome --- Mentally Disabled Persons --- Brain Diseases, Metabolic, Inborn --- Bardet-Biedl Syndrome --- Chemistry --- Health Sciences --- Life Sciences --- Social Sciences --- Biochemistry --- Clinical Medicine --- General and Others --- Cytology, Cell Biology --- Genetics --- Persons with Mental Disabilities --- Déficience intellectuelle. --- Trouble psychopathologique --- Psychopathologie --- Mental retardation - Research - Periodicals. --- Intellectual Disability - periodicals --- Intellectual disability --- Developmental Disabilities. --- Behavior Disorders --- Diagnosis, Psychiatric --- Mental Disorders, Severe --- Psychiatric Diagnosis --- Mental Illness --- Psychiatric Diseases --- Psychiatric Disorders --- Psychiatric Illness --- Illness, Mental --- Mental Disorder --- Mental Disorder, Severe --- Mental Illnesses --- Psychiatric Disease --- Psychiatric Disorder --- Psychiatric Illnesses --- Severe Mental Disorder --- Severe Mental Disorders --- Mentally Ill Persons --- Intellectual disabilities --- Mental deficiency --- Developmental disabilities --- Psychology, Pathological --- People with mental disabilities

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Learning disabilities --- Learning disabled --- Learning disabled children --- Learning disabled youth --- Learning Disorders. --- Mental Retardation. --- Learning disabilities. --- Learning disabled. --- Learning disabled children. --- Learning disabled youth. --- Trouble d'apprentissage. --- Intellectual Disability. --- Learning Disabilities. --- LD adults --- Learning disabled adults --- Slow-learning adults --- Learning disorders --- Deficiency, Mental --- Intellectual Development Disorder --- Mental Deficiency --- Mental Retardation, Psychosocial --- Disability, Intellectual --- Idiocy --- Mental Retardation --- Retardation, Mental --- Deficiencies, Mental --- Development Disorder, Intellectual --- Development Disorders, Intellectual --- Disabilities, Intellectual --- Disorder, Intellectual Development --- Disorders, Intellectual Development --- Intellectual Development Disorders --- Intellectual Disabilities --- Mental Deficiencies --- Mental Retardations, Psychosocial --- Psychosocial Mental Retardation --- Psychosocial Mental Retardations --- Retardation, Psychosocial Mental --- Retardations, Psychosocial Mental --- Academic Disorder, Developmental --- Adult Learning Disorders --- Developmental Disorders of Scholastic Skills --- Learning Disorders, Adult --- Learning Disturbance --- Scholastic Skills Development Disorders --- Developmental Academic Disorder --- Learning Disabilities --- Academic Disorders, Developmental --- Adult Learning Disorder --- Developmental Academic Disorders --- Disabilities, Learning --- Disability, Learning --- Disturbance, Learning --- Disturbances, Learning --- Learning Disability --- Learning Disorder --- Learning Disorder, Adult --- Learning Disturbances --- Learning Disorders --- Youth with mental disabilities --- Children with mental disabilities --- People with mental disabilities --- Cognition disorders --- Disabilities --- Minimal brain dysfunction in children --- Abnormalities, Multiple --- Cockayne Syndrome --- Cri-du-Chat Syndrome --- De Lange Syndrome --- Fragile X Syndrome --- Laurence-Moon Syndrome --- Prader-Willi Syndrome --- Rubinstein-Taybi Syndrome --- Rett Syndrome --- Angelman Syndrome --- Williams Syndrome --- Mentally Disabled Persons --- Brain Diseases, Metabolic, Inborn --- Bardet-Biedl Syndrome --- Dyslexia --- Intellectual Disability --- Adult Learning Disabilities --- Developmental Academic Disability --- Developmental Disabilities of Scholastic Skills --- Academic Disabilities, Developmental --- Academic Disability, Developmental --- Adult Learning Disability --- Developmental Academic Disabilities --- Disabilities, Adult Learning --- Disabilities, Developmental Academic --- Disability, Adult Learning --- Disability, Developmental Academic --- Learning Disabilities, Adult --- Learning Disability, Adult --- Persons with Mental Disabilities --- Disorder, Learning --- Disorders, Learning

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Intellectual Disability --- Disabled Persons --- Developmental Disabilities --- Developmental disabilities --- Developmentally disabled children --- Developmentally disabled --- rehabilitation --- Research --- Education --- Developmental Disabilities. --- Disabled. --- Mental Retardation --- Personnes atteintes de troubles du développement --- Enfants atteints de troubles du développement --- Développement, Troubles du --- Developmental disabilities. --- rehabilitation. --- Recherche --- Périodiques. --- Éducation --- Research. --- United States. --- Disabled --- Children with developmental disabilities --- Disabled, Developmentally --- Deficiency, Mental --- Intellectual Development Disorder --- Mental Deficiency --- Mental Retardation, Psychosocial --- Disability, Intellectual --- Idiocy --- Retardation, Mental --- Deficiencies, Mental --- Development Disorder, Intellectual --- Development Disorders, Intellectual --- Disabilities, Intellectual --- Disorder, Intellectual Development --- Disorders, Intellectual Development --- Intellectual Development Disorders --- Intellectual Disabilities --- Mental Deficiencies --- Mental Retardations, Psychosocial --- Psychosocial Mental Retardation --- Psychosocial Mental Retardations --- Retardation, Psychosocial Mental --- Retardations, Psychosocial Mental --- Development Disorders, Child --- Child Development Deviations --- Child Development Disorders --- Child Development Disorders, Specific --- Developmental Delay Disorders --- Disabilities, Developmental --- Child Development Deviation --- Child Development Disorder --- Development Deviation, Child --- Development Deviations, Child --- Development Disorder, Child --- Developmental Delay Disorder --- Developmental Disability --- Deviation, Child Development --- Disability, Developmental --- ABŞ --- ABSh --- Ameerika Ühendriigid --- America --- Amerika Birlăshmish Shtatlary --- Amerika Birlăşmi Ştatları --- Amerika Birlăşmiş Ştatları --- Amerika ka Kelenyalen Jamanaw --- Amerika Qūrama Shtattary --- Amerika Qŭshma Shtatlari --- Amerika Qushma Shtattary --- Amerika --- Amerikai Egyesült Államok --- Amerikanʹ Veĭtʹsėndi︠a︡vks Shtattnė --- Amerikări Pĕrleshu̇llĕ Shtatsem --- Amerikas Forenede Stater --- Amerikayi Miatsʻyal Nahangner --- Ameriketako Estatu Batuak --- Amirika Carékat --- AQSh --- Ar. ha-B. --- Arhab --- Artsot ha-Berit --- Artzois Ha'bris --- Bí-kok --- Ē.P.A. --- EE.UU. --- Egyesült Államok --- ĒPA --- Estados Unidos --- Estados Unidos da América do Norte --- Estados Unidos de América --- Estaos Xuníos --- Estaos Xuníos d'América --- Estatos Unitos --- Estatos Unitos d'America --- Estats Units d'Amèrica --- Ètats-Unis d'Amèrica --- États-Unis d'Amérique --- Fareyniḳṭe Shṭaṭn --- Feriene Steaten --- Feriene Steaten fan Amearika --- Forente stater --- FS --- Hēnomenai Politeiai Amerikēs --- Hēnōmenes Politeies tēs Amerikēs --- Hiwsisayin Amerikayi Miatsʻeal Tērutʻiwnkʻ --- Istadus Unidus --- Jungtinės Amerikos valstybės --- Mei guo --- Mei-kuo --- Meiguo --- Mî-koet --- Miatsʻyal Nahangner --- Miguk --- Na Stàitean Aonaichte --- NSA --- S.U.A. --- SAD --- Saharat ʻAmērikā --- SASht --- Severo-Amerikanskie Shtaty --- Severo-Amerikanskie Soedinennye Shtaty --- Si︠e︡vero-Amerikanskīe Soedinennye Shtaty --- Sjedinjene Američke Države --- Soedinennye Shtaty Ameriki --- Soedinennye Shtaty Severnoĭ Ameriki --- Soedinennye Shtaty Si︠e︡vernoĭ Ameriki --- Spojené staty americké --- SShA --- Stadoù-Unanet Amerika --- Stáit Aontaithe Mheiriceá --- Stany Zjednoczone --- Stati Uniti --- Stati Uniti d'America --- Stâts Unîts --- Stâts Unîts di Americhe --- Steatyn Unnaneysit --- Steatyn Unnaneysit America --- SUA --- Sŭedineni amerikanski shtati --- Sŭedinenite shtati --- Tetã peteĩ reko Amérikagua --- U.S. --- U.S.A. --- United States of America --- Unol Daleithiau --- Unol Daleithiau America --- Unuiĝintaj Ŝtatoj de Ameriko --- US --- USA --- Usono --- Vaeinigte Staatn --- Vaeinigte Staatn vo Amerika --- Vereinigte Staaten --- Vereinigte Staaten von Amerika --- Verenigde State van Amerika --- Verenigde Staten --- VS --- VSA --- Wááshindoon Bikéyah Ałhidadiidzooígíí --- Wilāyāt al-Muttaḥidah --- Wilāyāt al-Muttaḥidah al-Amirīkīyah --- Wilāyāt al-Muttaḥidah al-Amrīkīyah --- Yhdysvallat --- Yunaeted Stet --- Yunaeted Stet blong Amerika --- ZDA --- Združene države Amerike --- Zʹi︠e︡dnani Derz︠h︡avy Ameryky --- Zjadnośone staty Ameriki --- Zluchanyi︠a︡ Shtaty Ameryki --- Zlucheni Derz︠h︡avy --- ZSA --- Abnormalities, Multiple --- Cockayne Syndrome --- Cri-du-Chat Syndrome --- De Lange Syndrome --- Fragile X Syndrome --- Laurence-Moon Syndrome --- Prader-Willi Syndrome --- Rubinstein-Taybi Syndrome --- Rett Syndrome --- Angelman Syndrome --- Williams Syndrome --- Mentally Disabled Persons --- Brain Diseases, Metabolic, Inborn --- Bardet-Biedl Syndrome --- Children with disabilities --- Child development deviations --- People with disabilities --- Disabilities --- AB --- America (Republic) --- Amerika (Republic) --- Amerikanʹ Veĭtʹsėndi͡avks Shtattn --- Saharat ʻAmērik --- Si͡evero-Amerikanskīe Soedinennye Shtaty --- Soedinennye Shtaty Si͡evernoĭ Ameriki --- Spojené staty americk --- Stáit Aontaithe Mheirice --- Wááshindoon Bikéyah Ałhidadiidzooígí --- Zʹi͡ednani Derz͡havy Ameryky --- Zluchanyi͡a Shtaty Ameryki --- Zlucheni Derz͡havy --- Disabled Persons. --- Child Development Disorders. --- Physically Disabled --- Handicapped --- People with Disabilities --- Persons with Disabilities --- Physically Challenged --- Physically Handicapped --- Disabilities, People with --- Disabilities, Persons with --- Disability, Persons with --- Disabled Person --- Disabled, Physically --- Handicapped, Physically --- People with Disability --- Person, Disabled --- Persons with Disability --- Persons, Disabled --- Rehabilitation Research --- Bedridden Persons --- Immobilization --- Sports for Persons with Disabilities --- Health Services for Persons with Disabilities --- Persons with Mental Disabilities --- Spojené obce severoamerick --- Disabled Children. --- Child, Disabled --- Children with Disabilities --- Children, Disabled --- Handicapped Children --- Children with Disability --- Children, Handicapped --- Disability, Children with --- Disabled Child --- Troubles du développement --- United States --- Spojené obce severoamerické --- SUA (Stati Uniti d'America) --- Η.Π.Α. --- Ηνωμένες Πολιτείες της Αμερικής --- Америка (Republic) --- Американь Вейтьсэндявкс Штаттнэ --- Америкӑри Пӗрлешӳллӗ Штатсем --- САЩ --- Съединените щати --- Злучаныя Штаты Амерыкі --- ولايات المتحدة --- ولايات المتّحدة الأمريكيّة --- ولايات المتحدة الامريكية --- 미국 --- Periodicals. --- Disabled Children --- Child. --- Children --- Minors --- Amerikanʹ Veĭtʹsėndi͡avks Shtattnė --- É.-U. --- ÉU --- Disabled Persons.. --- Child Development Disorders, Pervasive. --- Persons with Disabilities. --- Intellectual Disability. --- Personnes atteintes de troubles du développement --- Enfants atteints de troubles du développement --- Troubles du développement --- Périodiques. --- Éducation