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La génétique est une science qui avance à pas de géants et influence de plus en plus nos perceptions des problèmes de société et de santé. Selon le philosophe-médecin Hank ten Have, « La culture occidentale serait profondément entraînée dans un processus de généticisation » qui touche de nombreuses sphères de la vie humaine. Comment cette nouvelle « donne » affecte-t-elle les questions de responsabilité ? Comment dessiner les contours de cette notion ? Le glissement de la génétique vers la « généticisation » entraîne-t-il une déresponsabilisation ou même la destruction des valeurs démocratiques ? Les normes juridiques et les encadrements éthiques actuels sont-ils suffisants pour encadrer les progrès de la génétique ? Comment une société peut-elle faire face à la « généticisation » ? Les contributions du présent ouvrage sont issues du septième séminaire d'experts de l'IIREB et émanent d'experts franco-québécois de disciplines variées, juristes, médecins, philosophes, historiens, sociologues, éthiciens, anthropologues qui ont confronté leurs points de vue sur cette question. Puisse cet ouvrage collectif contribuer, tant pour les citoyens, les pouvoirs publics et les chercheurs à enrichir leur réflexion !

Medical law --- Social ethics --- Professional ethics. Deontology --- Tort and negligence --- Genetics --- Liability (Law) --- Bioethics --- Human genetics --- Responsabilité (Droit) --- Bioéthique --- Génétique humaine --- Congresses --- Law and legislation --- Congrès --- Droit --- Responsabilité (Droit) --- Bioéthique --- Génétique humaine --- Congrès --- Human genetics - Law and legislation - Congresses --- Human genetics - Law and legislation - France - Congresses --- Human genetics - Law and legislation - Canada - Congresses --- Responsabilité (droit) --- Dépistage génétique --- Personnel médical --- Protection de l'information (informatique) --- Déontologie

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Biotechnology is a recognized research area that has increasingly advanced into new technologies and modern practices raising several legal, ethical and regulatory issues. The revolutionary speed of biotech innovations has had a significant impact on the protection of the rights of the individual. Fundamental rights provide a framework within which the justification of limitations and restrictions to biotechnology innovations and research results have to be assessed. The legal regulation of scientific research and scientific investigations impact more and more directly on the freedom of research and therapies as well as on the broad diffusion of knowledge. Closely related is also the debated question of the technological manipulation of life and the boundary of scientific knowledge with regard to the topical question of genetic invention patents and their side effects on access to scientific information and health care opportunities. Drawing on expertise from different disciplines, the volume comprises invited papers and plenary presentations given at the conference entitled “Biotech Innovations & Fundamental Rights” that took place on Januray 20-21 2011 at the Department of Juridical Sciences of the University of Ferrara. Each contribution covers a different aspect of the legal and scientific issues involved in regulation of biotechnology. In particular the focus of attention has been given to genetic research, genetic data, freedom of scientific research in genetics and biotech patents.

Biotechnology -- Patents. --- Biotechnology -- Research -- Law and legislation. --- Human genetics -- Law and legislation. --- Biotechnology --- Human genetics --- Law, Politics & Government --- Law, General & Comparative --- Law and legislation --- Research --- Law and legislation. --- Law. --- Human genetics. --- Biochemistry. --- Constitutional law. --- Constitutional Law. --- Human Genetics. --- Biochemistry, general. --- Law and biology --- Biopiracy --- Biological chemistry --- Chemical composition of organisms --- Organisms --- Physiological chemistry --- Biology --- Chemistry --- Medical sciences --- Genetics --- Heredity, Human --- Human biology --- Physical anthropology --- Constitutional law --- Constitutional limitations --- Constitutionalism --- Constitutions --- Limitations, Constitutional --- Public law --- Administrative law --- Composition --- Interpretation and construction