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Between 1932 and 1972, approximately six hundred African American men in Alabama served as unwitting guinea pigs in what is now considered one of the worst examples of arrogance, racism, and duplicity in American medical research--the Tuskegee syphilis study. Told they were being treated for "bad blood," the nearly four hundred men with late-stage syphilis and two hundred disease-free men who served as controls were kept away from appropriate treatment and plied instead with placebos, nursing visits, and the promise of decent burials. Despite the publication of more than a dozen reports in respected medical and public health journals, the study continued for forty years, until extensive media coverage finally brought the experiment to wider public knowledge and forced its end.This edited volume gathers articles, contemporary newspaper accounts, selections from reports and letters, reconsiderations of the study by many of its principal actors, and works of fiction, drama, and poetry to tell the Tuskegee story as never before. Together, these pieces illuminate the ethical issues at play from a remarkable breadth of perspectives and offer an unparalleled look at how the study has been understood over time.

Syphilis --- African Americans --- Alabama --- Human Experimentation In Medicine --- Medical --- Social Science --- History --- African American men --- Human experimentation in medicine

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"In the nearly 40 years since implementation of federal regulations governing the protection of human participants in research, the number of clinical studies has grown exponentially. These studies have become more complex, with multisite trials now common, and there is increasing use of archived biospecimens and related data, including genomics data. In addition, growing emphasis on targeted cancer therapies requires greater collaboration and sharing of research data to ensure that rare patient subsets are adequately represented. Electronic records enable more extensive data collection and mining, but also raise concerns about the potential for inappropriate or unauthorized use of data, bringing patient protections into a new landscape. There are also long-standing concerns about the processes and forms used to obtain informed consent from patients participating in clinical studies. These changes and challenges raise new ethical and practical questions for the oversight of clinical studies, and for protecting patients and their health information in an efficient manner that does not compromise the progress of biomedical research. Contemporary Issues for Protecting Patients in Cancer Research is the summary of a workshop convened by the National Cancer Policy Forum of the Institute of Medicine in February 2014 to explore contemporary issues in human subjects protections as they pertain to cancer research, with the goal of identifying potential relevant policy actions. Clinical researchers, government officials, members of Institutional Review Boards, and patient advocates met to discuss clinical cancer research and oversight. This report examines current regulatory provisions that may not adequately protect patients or may be hindering research, and discusses potential strategies and actions to address those challenges"--

Human experimentation in medicine --- Patients --- Moral and ethical aspects --- Civil rights

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Human experimentation in medicine --- Expérimentation humaine en médecine --- History --- Moral and ethical aspects --- Histoire --- Aspect moral --- Expérimentation humaine en médecine --- History, Modern 1601 --- -Investigative Techniques --- Research --- Ethics --- Biomedical Research --- Humanities --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Science --- Natural Science Disciplines --- Disciplines and Occupations --- Human Experimentation --- Bioethical Issues --- History, 20th Century --- Human experimentation in medicine - France - History - 20th century --- Human experimentation in medicine - Moral and ethical aspects - France - History - 20th century

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Human experimentation in medicine --- Informed consent (Medical law) --- Standards --- Experimentation on humans, Medical --- Medical experimentation on humans --- Medical ethics --- Medicine --- Medicine, Experimental --- Clinical trials --- Research

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Clinical trials --- Minorities --- Women --- Controlled clinical trials --- Patient trials of new treatments --- Randomized clinical trials --- Trials, Clinical --- Clinical medicine --- Human experimentation in medicine --- Research