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Health services accessibility.

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Health services accessibility.

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"In recent years, patients' out-of-pocket costs for cancer care have been rising rapidly. These costs include health insurance deductibles, coinsurance, and copayments for covered services, as well as services that are not covered by insurance. Many cancer patients are especially vulnerable financially because their illness and/or treatment impedes their ability to work, with some patients losing employment altogether. Even with insurance, cancer patients often experience financial hardships, such as going into debt, depleting all assets to pay for cancer treatment, and personal bankruptcy. Although many elements contribute to the cost of cancer care, one important component is the cost of new cancer drugs, which has been escalating rapidly in recent years. To explore the issue of cancer drug costs and patient access to affordable, appropriate drug therapies, the Institute of Medicine's National Cancer Policy Forum convened a workshop on ensuring patient access to affordable cancer drugs in June 2014. Affordability was considered from both individual and societal perspectives. The workshop featured discussion panels as well as invited presentations from clinicians, researchers, representatives from the health insurance and pharmaceutical industries, and patient advocates. Ensuring Patient Access to Affordable Cancer Drugs summarizes the presentation and discussion of the workshop."--

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Approximately 7.4 million people in the United States live with an intellectual or developmental disability (IDD). According to a 2001 report from the U.S. Surgeon General, individuals with IDD face exceptional challenges to staying healthy and getting appropriate health services when they are sick. Though the nation has taken important steps in the two decades since the release of that report, people with IDD still face significant barriers that impede greater access to quality health care and meeting their health goals. These barriers include being excluded from public campaigns to promote wellness, difficulty finding health care professionals who will accept them as patients and know how to meet their specialized needs, and struggling with unwieldy payment structures designed when people with IDD often died young or spent their lives in residential institutions. To explore the challenges and opportunities for creating an optimal care system for individuals with IDD, the National Academies of Sciences, Engineering, and Medicine Board on Population Health and Public Health Practice hosted a three-part virtual public workshop, Optimizing Care Systems for People with Intellectual and Developmental Disabilities, on December 8, 10, and 14, 2021. It featured invited presentations and discussions that explored questions related to models of care, workforce, cross-discipline and cross-sector coordination, and financing and payment for care. This publication summarizes the presentations and discussions of the workshop.

Health services accessibility.

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Health services accessibility.