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Sickle cell anemia --- Medical genetics

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Why do racial and ethnic controversies become attached, as they often do, to discussions of modern genetics? How do theories about genetic difference become entangled with political debates about cultural and group differences in America? Such issues are a conspicuous part of the histories of three hereditary diseases: Tay-Sachs, commonly identified with Jewish Americans; cystic fibrosis, often labeled a "Caucasian" disease; and sickle cell disease, widely associated with African Americans. In this captivating account, historians Keith Wailoo and Stephen Pemberton reveal how these diseases -- fraught with ethnic and racial meanings for many Americans -- became objects of biological fascination and crucibles of social debate. Peering behind the headlines of breakthrough treatments and coming cures, they tell a complex story: about different kinds of suffering and faith, about unequal access to the promises and perils of modern medicine, and about how Americans consume innovation and how they come to believe in, or resist, the notion of imminent medical breakthroughs. With Tay-Sachs, cystic fibrosis, and sickle cell disease as a powerful backdrop, the authors provide a glimpse into a diverse America where racial ideologies, cultural politics, and conflicting beliefs about the power of genetics shape disparate health care expectations and experiences.&

Genetic disorders --- Ethnic groups --- Tay-Sachs disease --- Cystic fibrosis --- Sickle cell anemia --- Research --- Moral and ethical aspects --- Diseases --- Genetic aspects --- Genetic Diseases, Inborn --- Anemia, Sickle Cell. --- Cystic Fibrosis. --- Health Services Accessibility. --- Tay-Sachs Disease. --- #SBIB:316.334.3M11 --- #SBIB:316.334.3M51 --- Amaurotic familial idiocy --- Amaurotic family idiocy --- Gangliosidosis GM2 type 1 --- GM2 gangliosidosis, Type 1 --- Hexosaminidase A deficiency (Tay-Sachs) --- Sachs disease --- Type 1 GM2 gangliosidosis --- Gangliosidoses --- Access to health care --- Accessibility of health services --- Availability of health services --- Medical care --- CF (Disease) --- Fibrocystic disease of pancreas --- Mucoviscidosis --- Pancreatic cystic fibrosis --- Fibrosis --- Lungs --- Pancreas --- Drepanocytic anemia --- Meniscocytosis --- Sickle cell disease --- Blood hyperviscosity syndrome --- Hemoglobinopathy --- Hemolytic anemia --- Ethnic identities --- Ethnic nations (Ethnic groups) --- Groups, Ethnic --- Kindred groups (Ethnic groups) --- Nationalities (Ethnic groups) --- Peoples (Ethnic groups) --- Ethnology --- Congenital diseases --- Disorders, Genetic --- Disorders, Inherited --- Genetic diseases --- Hereditary diseases --- Inherited diseases --- Medical genetics --- Moral and ethical aspects. --- Diseases. --- Genetic aspects. --- ethnology. --- prevention & control. --- Medische sociologie: concepten en theorieën --- Organisatie van de gezondheidszorg: modellen van therapeutisch handelen --- Access --- Ethnology. --- Prevention & control. --- Research&delete& --- Genetic disorders - Research - Moral and ethical aspects --- Ethnic groups - Diseases --- Tay-Sachs disease - Genetic aspects --- Cystic fibrosis - Genetic aspects --- Sickle cell anemia - Genetic aspects --- Droit médical