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Rachel Adams's life had always gone according to plan. She had an adoring husband, a beautiful two-year-old son, a sunny Manhattan apartment, and a position as a tenured professor at Columbia University. Everything changed with the birth of her second child, Henry. Just minutes after he was born, doctors told her that Henry had Down syndrome, and she knew that her life would never be the same. In this honest, self-critical, and surprisingly funny book, Adams chronicles the first three years of Henry's life and her own transformative experience of unexpectedly becoming the mother of a disabled child. A highly personal story of one family's encounter with disability, Raising Henry is also an insightful exploration of today's knotty terrain of social prejudice, disability policy, genetics, prenatal testing, medical training, and inclusive education. Adams untangles the contradictions of living in a society that is more enlightened and supportive of people with disabilities than ever before, yet is racing to perfect prenatal tests to prevent children like Henry from being born. Her book is gripping, beautifully written, and nearly impossible to put down. Once read, her family's story is impossible to forget.

Children with Down syndrome --- Mothers of children with Down syndrome --- Mothers and sons --- Sons and mothers --- Mother and child --- Sons --- Developmentally disabled children --- Adams, Rachel, --- Down syndrome --- Parents of developmentally disabled children --- Children with developmental disabilities --- Children with disabilities --- Child development deviations --- 21 trisomy --- Down's syndrome --- Mongolism --- Mongolism (Disease) --- Trisomy 21 --- Human chromosome abnormalities --- Intellectual disability --- Syndromes --- Human chromosome 21 --- Patients

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When Alison Piepmeier - scholar of feminism and disability studies, and mother of Maybelle, an eight-year-old girl with Down syndrome - died of cancer in August 2016, she left behind an important unfinished manuscript about motherhood, prenatal testing, and disability. George Estreich and Rachel Adams pick up where she left off, honouring the important research of their friend and colleague, as well as adding new perspectives to her work. Based on interviews with parents of children with Down syndrome, as well as women who terminated their pregnancies because their fetus was identified as having the condition, 'Unexpected' paints an intimate, nuanced picture of reproductive choice in today's world. At a time when medical technology is rapidly advancing, 'Unexpected' provides a much-needed perspective on our complex, and frequently troubling, understanding of Down syndrome.

Mothers of children with Down syndrome.