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Book
Families and end-of-life treatment decisions : an international perspective
Authors: --- --- ---
ISSN: 20333498 ISBN: 9782802740667 2802740660 2802740687 Year: 2013 Volume: 6 Publisher: Bruxelles: Bruylant,

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Abstract

"The book of life is the supreme book that we can neither close nor reopen at will."This quotation from Lamartine, the French poet, once a perfect illustration of the end of life in bygone societies, can no longer be said to apply. In fact, today, in one out of two cases in our modern societies, it is the medical team who closes this book without any intention of cutting life short. Generally, however, the physicians do not make this decision alone. While a competent patient increasingly participates in medical decisions, including when it’s a matter of life or death, those nearest to him (usually the family but not always) endorse this responsibility once he becomes incapable of expressing his wishes. Many questions surround not only this concept of «nearest and dearest», or “loved ones”, but also their roles and legitimacy. Whether they act as the patient’s legal representative, authorised agent or trustee, or if they are stripped of all legal power, will the «loved one» be simply consulted by the caregivers on the presumed wishes of the patient regarding end-of-life choices? Or must they guarantee him a genuine right of self-determination? To this end, will they be granted a right of information only about the patient’s condition, or even access to his medical records? Will their role be affected by the existence of living wills drawn up by the patient in question ? The outcome of debates between legal experts and physicians, philosophers and sociologists from seventeen countries, the chapters in this book analyse the current status and role of these relatives (and non- relatives) close to the patient at the end of life. Numerous European national laws are thus compared and are also benchmarked against other practices, in North and South America, in Africa and in some Asian countries. Beyond the legal, cultural and ethical differences that clearly separate these various traditions, a recurrent question arises: more than providing paternalistic protection, does the “loved one” not always have to ensure respect for what «their patient» would have wanted, thus guaranteeing up to the end of his life a basic right, namely his decision-making autonomy? If this book demonstrates the difficulty of such a task in different contexts, it also attempts to pave the way to a more humanistic approach across cultures to advocate respect for the patient at the very end of his life.


Book
La protection des données médicales : les défis du XXIe siècle
Authors: --- ---
ISBN: 9782874551222 2874551228 2874558656 Year: 2008 Publisher: Louvain-la-Neuve: Anthemis,

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[Français] La réglementation des données médicales est aujourd’hui un thème majeur du droit médical et du droit des nouvelles technologies. L’importance du sujet provient de l’exploitation croissante des technologies de l’information et de la communication dans le secteur des soins de santé et des risques nouveaux que cela entraîne pour les droits et libertés des citoyens. Les contributeurs au présent ouvrage ont été sélectionnés en vue de fournir une approche multidisciplinaire de haut niveau de la matière. Réunies, leurs contributions donnent une vision globale des défis à résoudre dans les années futures afin d’assurer la protection des citoyens au regard des traitements de données médicales.[English] The regulation of the processing of medical data is a major topic of discussion in Medical Law and in IT Law. Its significance results from the intensive use of information and communication technologies in healthcare and from the new threats their use creates to the rights and freedoms of citizens. The contributors were selected in order to yield a multidisciplinary approach. Together their contributions provide a global vision of the challenges to be addressed in the next few years as to ensure the protection of citizens regarding the processing of medical data.

Keywords

Medical law --- Human rights --- Professional ethics. Deontology --- WX 173 Medical records. Medical record administrators --- Medical Records --- legislation and jurisprudence --- Congresses --- Jurisprudence --- Medical records --- Data protection --- Dossiers médicaux --- Protection de l'information (Informatique) --- Law and legislation --- Access control --- Data processing --- Droit --- Accès --- Contrôle --- Informatique --- Medical informatics. --- Law and legislation. --- Access control. --- Medical informatics --- Habeas data --- Privacy, Right of --- Medical laws and legislation --- Confidential communications --- Medical ethics --- Clinical informatics --- Health informatics --- Medical information science --- Information science --- Medicine --- Physicians --- E-books --- Droit médical --- Secret médical --- Protection des données personnelles --- Cybersanté --- E-health --- Ethique --- Bioéthique --- Télématique médicale --- Droit médical --- Confidentiality --- Medical Informatics --- Records as Topic --- Information Science --- Forensic Psychiatry --- Informatics --- Patient Rights --- Data Collection --- Human Rights --- Social Control, Formal --- Organization and Administration --- Psychiatry --- Health Care Economics and Organizations --- Sociology --- Behavioral Sciences --- Health Care Evaluation Mechanisms --- Epidemiologic Methods --- Health Services Administration --- Health Care --- Investigative Techniques --- Social Sciences --- Behavioral Disciplines and Activities --- Quality of Health Care --- Public Health --- Environment and Public Health --- Anthropology, Education, Sociology and Social Phenomena --- Psychiatry and Psychology --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Health Care Quality, Access, and Evaluation --- Law, General & Comparative --- Law, Politics & Government --- Protection de l'information (informatique) --- Dossiers médicaux --- Data protection. --- Accès -- Contrôle.

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