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Book
Palliative Care in Neurology
Authors: --- ---
Year: 2020 Publisher: Frontiers Media SA

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Over the last 50 years palliative care has usually been associated with cancer patients but more recently there has been increased discussion of the role of palliative care for neurological patients. In the past years, neurology has moved from being a purely diagnostic area to a very therapeutically active one. A further step needs to be taken to modify the therapeutic activity from “cure” to “care” depending on the patient’s disease trajectory. Palliative care has been associated with care at the end of life, whereas it may be appropriate earlier in the disease progression, and will extend after death in the support of bereaved families. The care of patients with neurological disease, and their families, will encompass the psychological, spiritual and existential issues and neurologists, and the teams in which they work, should develop skills to consider all aspects of care, in order to maximize the quality of life of all involved, and enable patients to die peacefully.


Book
Grief worlds : a study of emotional experience
Author:
ISBN: 0262372606 0262372614 0262544806 Year: 2023 Publisher: Cambridge, Massachusetts : The MIT Press,

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"A phenomenological exploration of the emotional experience of grief. Written by one of the leading figures philosophical psychology"--


Book
Wegbegleitung, Trost und Hoffnung : Interdisziplinäre Beiträge zum Umgang mit Sterben, Tod und Trauer
Authors: ---
ISBN: 3847403354 3938094672 Year: 2013 Publisher: Leverkusen Verlag Barbara Budrich

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Was tun, wenn ein Mensch im Sterben liegt? Begleiten und somit Trost spenden - aber wie? Die Beiträge des interdisziplinären Bandes geben beruflich oder privat mit dem Tod konfrontierten Menschen Rat, wie Sterbende auf ihrem letzten Weg zu unterstützen sind. So leiten sie an zu einer ganzheitlichen Sterbebegleitung. What may be done when a person is dying? Accompany and thus give comfort - but how? The contributions of this interdisciplinary volume give professional or individual advice to people confronted with death on how to support dying people in their last days and hours. In this way they lead to a holistic palliative and terminal care. Der Band enthält Beiträge für unterschiedliche Zielgruppen. Einige sind wichtig für die Ausbildung und Weiterbildung von Ehrenamtlichen, Studierenden und Hauptamtlichen, die direkt mit Sterbenden oder ihren Angehörigen arbeiten bzw. sich darauf vorbereiten. Socialnet.de, 17.02.2017 Dem interdisziplinären Konzept folgend kommen neben der Theologie auch andere Disziplinen zu Wort, etwa ein sehr lesenswerter Beitrag über den Umgang mit Sterben, Tod und Trauer in der Literatur oder eine Beschreibung der verschiedenen Phasen des Trauerns und unterschiedlicher Therapiemöglichkeiten. Interessant sind auch die Praxisbeispiele im zweiten Teil und vorbildlich die kommentierten Literaturhinweise. Erwachsenenbildung 3/2013


Book
Mendings
Author:
ISBN: 1478023732 1478019107 Year: 2023 Publisher: Durham : Duke University Press,

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"Through five formally distinct yet interlinked essays, Mendings tells an intimate story about family, selfhood, and the love and loss lodged in garments, and a broader story about clothes and mending as tools for navigating the vicissitudes of living. In dialogue with clothing lovers, fiber artists, evolutionary biologists, historians, and environmentalists, the book illuminates the crucial roles that clothing plays in enabling us to communicate; to cultivate relationships with ourselves and with others; to counter injustice and make meaning from violence and grief; and to experience the joys of creativity, artistry, and self-fashioning. In addition to featuring artwork by Nina Katchadourian, Elena Herzog, Celia Pym, Merrill Goldstein, Gali Cnaani and others, Mendings includes photographs of childhood letters, family artifacts, journal entries, and paintings and sketches by the author and her family."--

Noah's rainbow : a father's emotional journey from the death of his son to the birth of his daughter
Author:
ISBN: 1003070361 1000156532 0895033151 Year: 2006 Publisher: Routledge

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Book
Focus on Family Historians : How Ancestor Research Affects Self-Understanding and Well-Being
Authors: ---
Year: 2022 Publisher: Basel MDPI - Multidisciplinary Digital Publishing Institute

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The articles in this Special Issue of Genealogy titled “Focus of Family Historians: How Ancestor Research Affects Self-Understanding and Well-Being” cover topics including the psychosocial motivations that impel family history research, its therapeutic and healing aspects, and the emotional outcomes of dealing with unexpected findings. Broader issues, such as the ubiquity of ancestral acknowledgement and veneration throughout history and its links with religion are also explored. Papers include scholarly interpretations of case-based material, empirical research, and interpretive literature reviews emanating from a wide range of social science disciplines.


Book
Emotional life of contemporary public memorials : towards a theory of temporary memorials
Author:
ISBN: 9089640185 9786611988425 1281988421 904850340X 9789048503407 9781281988423 6611988424 9789089640185 Year: 2008 Publisher: Amsterdam : ©2008 Amsterdam University Press,

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In The Emotional Life of Contemporary Public Memorials: Towards a Theory of Temporary Memorials Erika Doss examines this contemporary phenomenon of public commemoration in terms of changed cultural and social practices regarding mourning, memory, and publ


Book
Cette mort qui n’en est pas une
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ISBN: 2859394346 2757426230 9782859394349 Year: 2020 Publisher: Villeneuve d'Ascq : Presses universitaires du Septentrion,

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Je résumerai ce que j’ai proposé dans ce livre, et qui est en réalité fort simple. Nécros (Antiquité), faux mort ou fausse morte (Moyen Âge), mort imparfaite (Encyclopédie), mort clinique ou mort relative maintenant, montrent deux choses. La première c’est qu’on peut se tromper sur les apparences de la mort. La deuxième c’est que ce mort apparent est vivant et non pas mort, car il n’y a pas de vie du mort au sens empirique du terme, quoique la mort puisse être ou n’être pas au sens métaphysique. Or, ce qui complique et obscurcit tout, est la confusion ancestrale de ces survies sous l’apparence de mort, de cette manière de quatrième état de vie (une anesthésie naturelle en quelque sorte) avec une vie du mort, c’est-à-dire cette idée qu’il y a un « état de mort » comme il y a un état de vie (ou plutôt trois états de vie : veille, rêve et sommeil profond). Et que cet état de mort, que les Grecs désignaient par nécros, les superstitions médiévales par fantôme, revenant, est intermédiaire entre la vie et la négation complète et totale de la vie qu’est thanatos pour les Grecs ou, pour les chrétiens et les religions en général, la résurrection ou vie future. J’ai tenté de voir ce qu’il y de positif dans des analyses dont l’apparence est négative, idéologiquement fausse et irrationnelle.


Book
Youth suicide prevention and intervention : best practices and policy implications
Authors: ---
ISBN: 3031061276 3031061268 9783031061271 Year: 2022 Publisher: Cham : Springer International Publishing AG,

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This open access book focuses on the public health crisis of youth suicide and provides a review of current research and prevention practices. It addresses important topics, including suicide epidemiology, suicide risk detection in school and medical settings, critical cultural considerations, and approaches to lethal means safety. This book offers cutting-edge research on emerging discoveries in the neurobiology of suicide, psychopharmacology, and machine learning. It focuses on upstream suicide prevention research methods and details how cost-effective approaches can mitigate youth suicide risk when implemented at a universal level. Chapters discuss critical areas for future research, including how to evaluate the effectiveness of suicide prevention and intervention efforts, increase access to mental health care, and overcome systemic barriers that undermine generalizability of prevention strategies. Finally, this book highlights what is currently working well in youth suicide prevention and, just as important, which areas require more attention and support. Key topics include: The neurobiology of suicide in at-risk children and adolescents. The role of machine learning in youth suicide prevention. Suicide prevention, intervention, and postvention in schools. Suicide risk screening and assessment in medical settings. Culturally informed risk assessment and suicide prevention efforts with minority youth. School mental health partnerships and telehealth models of care in rural communities. Suicide and self-harm prevention and interventions for LGBTQ+ youth. Risk factors associated with suicidal behavior in Black youth. Preventing suicide in youth with autism spectrum disorder (ASD) and intellectual disability (ID). Youth Suicide Prevention and Intervention is a must-have resource for policy makers and related professionals, graduate students, and researchers in child and school psychology, family studies, public health, social work, law/criminal justice, sociology, and all related disciplines.


Book
Psychosocial Considerations for Children and Adolescents Living with Rare Diseases
Authors: ---
ISBN: 3036550909 3036550895 Year: 2022 Publisher: MDPI - Multidisciplinary Digital Publishing Institute

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This Special Issue of the journal Children constitutes an opportune moment to reflect on the psychosocial needs of children living with rare diseases and of their families. As medical advances, treatments, and developments have enabled many of these children to survive infancy and to live into adulthood, progress brings with it concerns and opportunities to enhance the psychosocial quality of life of children living with rare diseases, and of their families. This Special Issue reflects the current state of psychosocial research, which is primarily qualitative in nature. There are no scientifically rigorous randomized clinical trials to create an evidence base of effective psychosocial interventions for the provision of care to children with rare diseases and to their families; nevertheless, the papers within this Special Issue provide a reflection on the state of the science, including ideas about future research and practice. In this next section we share observations about the contributions made by each of the 13 articles, which cover a diverse range of topics.

Keywords

Psychology --- cancer --- childhood cancer --- adaptation --- psychological --- neoplasm --- oncology --- sibling --- social support --- social adjustment --- palliative care --- end-of-life care --- equity --- public health approach --- compassionate communities --- caregiving --- parents --- psychosocial support --- rare disease --- advance care planning --- decision-making --- family caregiver --- psychosocial care --- communication --- pediatric --- adolescents and young adults --- healthcare needs --- chronic illness --- AYA transition --- Beckwith–Wiedemann syndrome --- emotional-behavioral problems --- psychosocial difficulties --- psychomotor development --- preschool-age children --- pediatric chronic illness --- rare diseases --- family caregivers --- gender differences --- genetic or rare diseases --- health outcomes --- illness perception --- parenting stress --- siblings --- bereavement --- emotions --- psychosocial distress --- pediatrics --- complex chronic conditions --- pediatric to adult transition --- special needs --- interventions --- care coordination --- transition readiness --- family burden --- parental need --- urea cycle disorders --- E-IMD --- inherited metabolic diseases --- medullary thyroid carcinoma --- psychosocial --- young adults --- life-limiting conditions --- adolescents --- age-appropriate --- development --- cognitive functions --- children --- families --- medical complexity --- policy --- advocacy --- n/a --- Beckwith-Wiedemann syndrome

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