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Siblings --- Kinship --- Frères et soeurs --- Parenté --- Sociological aspects. --- Aspect sociologique

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Drawing on a broad range of personal accounts, this is the first detailed study of siblinghood in wartime. The relative youth of the fighting men of the Great War intensified the emotional salience of sibling relationships. Long separations, trauma and bereavement tested sibling ties forged through shared childhoods, family practices, commitments and interests. We must not equate the absence of a verbal language of love with an absence of profound feelings. Quieter familial values of kindness, tolerance and unity, instilled by parents and reinforced by moral instruction, strengthened bonds between brothers and sisters. Examining the nexus of cultural and familial emotional norms, this study reveals the complex acts of mediation undertaken by siblings striving to reconcile conflicting obligations to society, the army and loved ones in families at home. Brothers enlisted and served together. Siblings witnessed departures and homecomings, shared family responsibilities, confided their anxieties and provided mutual support from a distance via letters and parcels. The strength soldier-brothers drew from each other came at an emotional cost to themselves and their comrades. The seismic casualties of the First World War proved a watershed moment in the culture of mourning and bereavement. Grief narratives reveal distinct patterns of mourning following the death of a loved sibling, suggesting a greater complexity to male grief than is often acknowledged. Surviving siblings acted as memory keepers, circumventing the anonymisation of the dead in public commemorations by restoring the particular war stories of their brothers.

Fiction / Historical / World War I --- First World War. --- brothers and sisters. --- emotions. --- family relationships. --- grief. --- masculinities. --- memory. --- siblings. --- soldiers. --- youth.

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Depuis les années 1970, grandir dans une famille recomposée concerne un nombre croissant d’individus. Des liens inédits unissent beaux-parents et beaux-enfants, demi et « quasi » frères et sœurs, dans une ordonnance différente des lieux et des temps de la vie familiale. Apparaissent de nouvelles manières de vivre et de penser les liens de famille, qui interrogent nos repères traditionnels. Que signifie être père ou mère, beau-père ou belle-mère dans les familles recomposées ? Est-ce donner la vie, donner son nom et ses biens, nourrir et élever un enfant et le chérir, l’adopter ? Que signifie être frère ou sœur ? Avoir eu les mêmes parents biologiques, avoir partagé son enfance dans un même lieu ? Des relations amoureuses et sexuelles entre « quasi » frères et sœurs sont-elles licites ? C’est à ces questions que tente de répondre ce livre à travers l’exploration ethnographique d’une trentaine d’histoires familiales, où le point de vue des « beaux-enfants », devenus adultes, constitue le principal éclairage. A partir de leurs récits, mis en perspective par le recours à l’histoire et à l’anthropologie, Agnès Martial met au jour l’incertitude des termes, des rôles et des statuts qui constituent la trame familiale recomposée dans notre société. En interrogeant les relations entre générations, souvent perturbées par la séparation du couple parental et la notion d’inceste telle qu’elle émerge des pratiques, des discours et du droit, son analyse des familles recomposées permet de mieux comprendre le contenu des relations de filiation, de germanité et d’alliance dans les sociétés occidentales contemporaines.

Sociology of the family. Sociology of sexuality --- Ethnology. Cultural anthropology --- Remarriage --- Kinship --- Parent and child --- Brothers and sisters --- Remariage --- Parenté --- Parents et enfants --- Frères et soeurs --- Parenté --- Frères et soeurs --- Parenting --- Families --- Familles recomposées. --- Belles-familles. --- Beaux-parents. --- Beaux-enfants. --- Stiefgezinnen. --- Familierelaties. --- Etnografie. --- 4.280. --- Parent behavior --- Parental behavior in humans --- Child rearing --- Parenthood --- Siblings. --- parenté --- famille recomposée --- parentalité --- ethnologie de la France --- foyer familial

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This Special Issue of the journal Children constitutes an opportune moment to reflect on the psychosocial needs of children living with rare diseases and of their families. As medical advances, treatments, and developments have enabled many of these children to survive infancy and to live into adulthood, progress brings with it concerns and opportunities to enhance the psychosocial quality of life of children living with rare diseases, and of their families. This Special Issue reflects the current state of psychosocial research, which is primarily qualitative in nature. There are no scientifically rigorous randomized clinical trials to create an evidence base of effective psychosocial interventions for the provision of care to children with rare diseases and to their families; nevertheless, the papers within this Special Issue provide a reflection on the state of the science, including ideas about future research and practice. In this next section we share observations about the contributions made by each of the 13 articles, which cover a diverse range of topics.

Psychology --- cancer --- childhood cancer --- adaptation --- psychological --- neoplasm --- oncology --- sibling --- social support --- social adjustment --- palliative care --- end-of-life care --- equity --- public health approach --- compassionate communities --- caregiving --- parents --- psychosocial support --- rare disease --- advance care planning --- decision-making --- family caregiver --- psychosocial care --- communication --- pediatric --- adolescents and young adults --- healthcare needs --- chronic illness --- AYA transition --- Beckwith–Wiedemann syndrome --- emotional-behavioral problems --- psychosocial difficulties --- psychomotor development --- preschool-age children --- pediatric chronic illness --- rare diseases --- family caregivers --- gender differences --- genetic or rare diseases --- health outcomes --- illness perception --- parenting stress --- siblings --- bereavement --- emotions --- psychosocial distress --- pediatrics --- complex chronic conditions --- pediatric to adult transition --- special needs --- interventions --- care coordination --- transition readiness --- family burden --- parental need --- urea cycle disorders --- E-IMD --- inherited metabolic diseases --- medullary thyroid carcinoma --- psychosocial --- young adults --- life-limiting conditions --- adolescents --- age-appropriate --- development --- cognitive functions --- children --- families --- medical complexity --- policy --- advocacy --- n/a --- Beckwith-Wiedemann syndrome