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Book
Trust in Biobanking : Dealing with Ethical, Legal and Social Issues in an Emerging Field of Biotechnology
Authors: --- ---
ISBN: 3540788441 9786613708557 1280798165 354078845X Year: 2012 Publisher: Berlin, Heidelberg : Springer Berlin Heidelberg : Imprint: Springer,

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Abstract

Biobanks are promising instruments of biomedical research and of transnational medicine in particular. Ethical, legal and social issues associated with biobanking, however, have recently led to a more critical view on this concept. All efforts addressing these concerns have been grounded on well-established standards of biomedical ethics such as informed consent procedures, protection of individual autonomy, benefit sharing etc. By additionally highlighting the widely neglected aspect of trust, this book aims at broadening the horizon of the ELSI-debate and thus filling a gap in current research on biobanking. The contributions of leading experts and junior researchers cover a wide field of disciplines relevant for biobanking including law, ethics, medicine, public health, social sciences, philosophy and theology.

Keywords

Biobanks -- Moral and ethical aspects -- Congresses. --- Biobanks. --- Bioethics -- Congresses. --- Bioethics. --- Ethics --- Genetics --- Medicine --- Health Facilities --- Health Occupations --- Health Care Quality, Access, and Evaluation --- Health Care Facilities, Manpower, and Services --- Biology --- Humanities --- Health Care --- Disciplines and Occupations --- Biological Science Disciplines --- Natural Science Disciplines --- Bioethics --- Biological Specimen Banks --- Genetics, Medical --- Law, Politics & Government --- Health & Biological Sciences --- Biology - General --- Law, General & Comparative --- Biotechnology --- Moral and ethical aspects. --- Social aspects. --- Bio-banks --- Biological specimen banks --- Law. --- Biotechnology. --- Ethics. --- Medical laws and legislation. --- Public international law. --- Public International Law. --- Medical Law. --- Philosophy of Medicine. --- Biomedicine general. --- Philosophy. --- Law of nations --- Nations, Law of --- Public international law --- Law --- Law, Medical --- Medical personnel --- Medical registration and examination --- Physicians --- Surgeons --- Medical policy --- Medical jurisprudence --- Medical logic --- Deontology --- Ethics, Primitive --- Ethology --- Moral philosophy --- Morality --- Morals --- Philosophy, Moral --- Science, Moral --- Philosophy --- Values --- Chemical engineering --- Genetic engineering --- Acts, Legislative --- Enactments, Legislative --- Laws (Statutes) --- Legislative acts --- Legislative enactments --- Jurisprudence --- Legislation --- Legal status, laws, etc. --- Law and legislation --- Biological resource centers --- Biological specimens --- Public health laws. --- Medicine-Philosophy. --- Medicine. --- Public International Law . --- Clinical sciences --- Medical profession --- Human biology --- Life sciences --- Medical sciences --- Pathology --- Communicable diseases --- Public health --- Medical laws and legislation --- Health Workforce --- Medicine—Philosophy. --- Biomedicine, general.


Book
Between Moral Hazard and Legal Uncertainty : Ethical, Legal and Societal Challenges of Human Genome Editing
Authors: --- ---
ISBN: 3658226609 3658226595 Year: 2018 Publisher: Wiesbaden : Springer Fachmedien Wiesbaden : Imprint: Springer VS,

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Abstract

Genome Editing Techniques are seen to be at the frontier of current research in the field of emerging biotechnologies. The latest revolutionary development, the so-called CRISPR technology, represents a paradigmatic example of the ambiguity of such techniques and has resulted in an international interdisciplinary debate on whether or not it is necessary to ban the application of this technique by means of a moratorium on its use for human germline modifications, particularly in human embryos in the reproduction process. However, given that other germline engineering techniques like mitochondrial (mt) DNA transfer techniques are already permitted and applied, the question arises what lies at the root of the apparent social unease about the modification of the human germline by Genome Editing Techniques like CRISPR. Against this background, the book seeks to make a substantial contribution to the current debate about a responsible and participatory framework for research on emerging biotechnologies by analysing underlying perceptions, attitudes, arguments and the reasoning on Genome Editing Techniques. Contents Mapping the current legal framing Theoretical Challenges Orientation markers for a Governance Frame in dealing with Genome Editing Target Groups Scientist, Policy Makers, Lecturers and students in the fields of Ethics, Philosophy, Theology, Law, Social and Political Science. The Editors Matthias Braun is assistant Professor at the Chair of Systematic Theology II (Ethics), Friedrich-Alexander University Erlangen-Nuremberg. Hannah Schickl is research assistant in the Interdisciplinary Research Group “Gene Technology Report”, Berlin-Brandenburg Academy of Sciences and Humanities. Peter Dabrock is Professor of Systematic Theology/Ethics at the Friedrich-Alexander University Erlangen-Nuremberg and Chair of the German Ethics Council.


Digital
Trust in Biobanking : Dealing with Ethical, Legal and Social Issues in an Emerging Field of Biotechnology
Authors: --- ---
ISBN: 9783540788454 Year: 2012 Publisher: Berlin, Heidelberg Springer Berlin Heidelberg

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Abstract


Digital
Between Moral Hazard and Legal Uncertainty : Ethical, Legal and Societal Challenges of Human Genome Editing
Authors: --- ---
ISBN: 9783658226602 Year: 2018 Publisher: Wiesbaden Springer Fachmedien Wiesbaden, Imprint: Springer VS

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Abstract

Genome Editing Techniques are seen to be at the frontier of current research in the field of emerging biotechnologies. The latest revolutionary development, the so-called CRISPR technology, represents a paradigmatic example of the ambiguity of such techniques and has resulted in an international interdisciplinary debate on whether or not it is necessary to ban the application of this technique by means of a moratorium on its use for human germline modifications, particularly in human embryos in the reproduction process. However, given that other germline engineering techniques like mitochondrial (mt) DNA transfer techniques are already permitted and applied, the question arises what lies at the root of the apparent social unease about the modification of the human germline by Genome Editing Techniques like CRISPR. Against this background, the book seeks to make a substantial contribution to the current debate about a responsible and participatory framework for research on emerging biotechnologies by analysing underlying perceptions, attitudes, arguments and the reasoning on Genome Editing Techniques. Contents Mapping the current legal framing Theoretical Challenges Orientation markers for a Governance Frame in dealing with Genome Editing Target Groups Scientist, Policy Makers, Lecturers and students in the fields of Ethics, Philosophy, Theology, Law, Social and Political Science. The Editors Matthias Braun is assistant Professor at the Chair of Systematic Theology II (Ethics), Friedrich-Alexander University Erlangen-Nuremberg. Hannah Schickl is research assistant in the Interdisciplinary Research Group “Gene Technology Report”, Berlin-Brandenburg Academy of Sciences and Humanities. Peter Dabrock is Professor of Systematic Theology/Ethics at the Friedrich-Alexander University Erlangen-Nuremberg and Chair of the German Ethics Council.


Book
Trust in Biobanking : Dealing with Ethical, Legal and Social Issues in an Emerging Field of Biotechnology
Authors: --- --- ---
ISBN: 9783540788454 Year: 2012 Publisher: Berlin Heidelberg Springer Berlin Heidelberg

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Abstract

Biobanks are promising instruments of biomedical research and of transnational medicine in particular. Ethical, legal and social issues associated with biobanking, however, have recently led to a more critical view on this concept. All efforts addressing these concerns have been grounded on well-established standards of biomedical ethics such as informed consent procedures, protection of individual autonomy, benefit sharing etc. By additionally highlighting the widely neglected aspect of trust, this book aims at broadening the horizon of the ELSI-debate and thus filling a gap in current research on biobanking. The contributions of leading experts and junior researchers cover a wide field of disciplines relevant for biobanking including law, ethics, medicine, public health, social sciences, philosophy and theology.


Multi
Synthetic Biology and the Question of Public Participation
Authors: --- --- --- ---
ISBN: 9783031160042 9783031160035 9783031160059 Year: 2023 Publisher: Cham Springer International Publishing :Imprint: Springer

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Abstract

The book considers the relationship between governance and participation, and the ways participation has been understood, framed and applied in the context of synthetic biology (SB) governance approaches. Based on fundamental questions about the scope, purpose, and responsibilities assigned to public participation activities, the authors conducted an literature review of policy reports and articles on SB governance. Against this basis the authors identify key characteristics of synthetic biology, such as the complex interplay of research, engineering and IT expertise in the field, as well as the challenges these characteristics pose in designing governance frameworks. Drawing on insights from the literature on governance and public participation in political science and public policy, the authors contest calls for "earlier" and "more" participation on the basis that such calls fail to consider the necessary structural adjustments and resources needed for such endeavors.

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