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It is now possible for physicians to recognize that a pregnant woman's foetus is facing life-threatening problems, perform surgery on the foetus, and if it survives, return it to the woman's uterus to finish gestation. Although foetal surgery has existed in various forms for three decades, it is only just beginning to capture the public's imagination. These still largely experimental procedures raise all types of medical, political and ethical questions. Who is the patient? What are the technical difficulties involved in foetal surgery? How do reproductive politics seep into the operating room, and how do medical definitions and meanings flow out of medicine and into other social spheres? How are ethical issues defined in this practice and who defines them? Is foetal surgery the kind of medicine we want? What is involved in reframing foetal surgery as a women's health issue, rather than simply a paediatric concern? In this ethnographic study of the social, cultural and historical aspects of foetal surgery, Monica Casper addresses these questions."The Making of the Unborn Patient" examines two important and connected events of the second half of the 20th century: the emergence of foetal surgery as a new medical specialty and the debut of the unborn patient. Drawing on a wide range of sources, Casper shows how biomedical work has intersected with reproductive politics for three decades to generate new cultural meanings of foetuses, women and medicine itself. Since its inception, foetal surgery has been controversial both inside and outside of medicine precisely because it transgresses a number of boundaries, challenging our most cherished assumptions about pregnancy, maternal sacrifice, foetal life and death, and the limits of technology. Like many other medical innovations, especially those at the beginnings and ends of human life, foetal surgery is proceeding rapidly but without careful reflection about what it means and without public debate about its consequences. Foetal surgery is risky, expensive and fraught with peril for both women and their foetuses. This book offers a critical social and cultural analysis of this nascent yet significant innovation in biomedicine.Analyzing original data, Casper explores early foetal surgery efforts and the emergence of the unborn patient in the 1960s. She examines several related practices, including foetal physiology, diagnostic technologies, animal experimentation, and foetal wound healing research, and the ways in which they have shaped foetal surgery. She presents ethnographic data collected at one of the premier US foetal treatment facilities, offering a behind-the-scenes look at the various kinds of work involved in operating on human foetuses. She also examines the many ethical dilemmas involved in research on human subjects in experimental foetal surgery. Perhaps most significantly, the book draws attention to the many ways in which foetal surgery affects women's health.
Fetus --- Surgery --- Social aspects --- Moral and ethical aspects --- foetale geneeskunde --- bio-ethiek (medische, biomedische ethiek, bio-ethische aspecten) --- médecine foetale --- bioéthique (éthique médicale, biomédicale, aspects bioéthiques) --- Foetus --- Unborn child --- Embryology --- Reproduction --- Surgery&delete& --- Fetus - Surgery - Social aspects --- Fetus - Surgery - Moral and ethical aspects
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Fetus --- Sociology --- Humanism --- Patient Rights --- Evaluation Studies as Topic --- Epidemiologic Study Characteristics as Topic --- Jurisprudence --- Biomedical Research --- Ethics --- Ethics, Clinical --- Investigative Techniques --- Embryonic Structures --- Professional Staff Committees --- Surgical Procedures, Operative --- Reproduction --- Health Occupations --- Disciplines and Occupations --- Humanities --- Epidemiologic Methods --- Quality Assurance, Health Care --- Social Sciences --- Human Rights --- Professional Practice --- Ethics, Professional --- Health Care Evaluation Mechanisms --- Analytical, Diagnostic and Therapeutic Techniques and Equipment --- Reproductive Physiological Processes --- Health Care Quality, Access, and Evaluation --- Research --- Social Control, Formal --- Anatomy --- Science --- Philosophy --- Reproductive Physiological Phenomena --- Organization and Administration --- Health Care Economics and Organizations --- Quality of Health Care --- Public Health --- Health Care --- Behavioral Sciences --- Health Services Administration --- Reproductive and Urinary Physiological Phenomena --- Natural Science Disciplines --- Environment and Public Health --- Behavioral Disciplines and Activities --- Anthropology, Education, Sociology and Social Phenomena --- Psychiatry and Psychology --- Phenomena and Processes --- Clinical Trials as Topic --- Ethics Committees --- Ethics Committees, Research --- Informed Consent --- Ethics, Medical --- Feminism --- Fetal Research --- Sociology, Medical --- Pregnancy --- Obstetric Surgical Procedures --- Medicine --- Health & Biological Sciences --- Gynecology & Obstetrics --- Natural Sciences --- Physical Sciences --- Discipline, Natural Science --- Disciplines, Natural Science --- Natural Science --- Natural Science Discipline --- Physical Science --- Science, Natural --- Science, Physical --- Sciences, Natural --- Sciences, Physical --- Physiology, Reproductive and Urinary --- Reproductive and Urinary Physiological Phenomenon --- Reproductive and Urinary Physiology Concepts --- Reproductive and Urinary Physiology Phenomenon --- Reproductive and Urinary Tract Physiological Concepts --- Reproductive and Urinary Tract Physiological Phenomena --- Reproductive and Urinary Tract Physiological Phenomenon --- Reproductive and Urinary Tract Physiology --- Reproductive and Urinary Physiology --- Reproductive and Urinary Physiology Phenomena --- Administration, Health Services --- Health Services --- Proxemics --- Behavioral Science --- Proxemic --- Science, Behavioral --- Sciences, Behavioral --- Community-Based Distribution --- Contraceptive Distribution --- Delivery of Healthcare --- Dental Care Delivery --- Distribution, Non-Clinical --- Distribution, Nonclinical --- Distributional Activities --- Healthcare --- Healthcare Delivery --- Healthcare Systems --- Non-Clinical Distribution --- Nonclinical Distribution --- Delivery of Dental Care --- Health Care Delivery --- Health Care Systems --- Activities, Distributional --- Activity, Distributional --- Care, Health --- Community Based Distribution --- Community-Based Distributions --- Contraceptive Distributions --- Deliveries, Healthcare --- Delivery, Dental Care --- Delivery, Health Care --- Delivery, Healthcare --- Distribution, Community-Based --- Distribution, Contraceptive --- Distribution, Non Clinical --- Distributional Activity --- Distributions, Community-Based --- Distributions, Contraceptive --- Distributions, Non-Clinical --- Distributions, Nonclinical --- Health Care System --- Healthcare Deliveries --- Healthcare System --- Non Clinical Distribution --- Non-Clinical Distributions --- Nonclinical Distributions --- System, Health Care --- System, Healthcare --- Systems, Health Care --- Systems, Healthcare --- Community Health --- Environment, Preventive Medicine & Public Health --- Environment, Preventive Medicine and Public Health --- Health, Community --- Health, Public --- Preventive Medicine --- Education, Public Health Professional --- Pharmacy Audit --- Quality of Care --- Quality of Healthcare --- Audit, Pharmacy --- Care Quality --- Health Care Quality --- Healthcare Quality --- Pharmacy Audits --- Healthcare Economics and Organizations --- Health Care Economics --- Health Economics --- Healthcare Economics --- Care Economic, Health --- Economic, Health --- Economic, Health Care --- Economic, Healthcare --- Economics, Health Care --- Health Care Economic --- Health Economic --- Healthcare Economic --- Administration and Organization --- Administrative Technics --- Administrative Techniques --- Coordination, Administrative --- Logistics --- Supervision --- Technics, Administrative --- Techniques, Administrative --- Administration --- Administrative Coordination --- Administrative Technic --- Administrative Technique --- Technic, Administrative --- Technique, Administrative --- Clinical Ethics --- Clinical Medicine --- Ethicists --- Ethics Committees, Clinical --- Ethics Consultation --- Egoism --- Ethical Issues --- Metaethics --- Moral Policy --- Natural Law --- Situational Ethics --- Ethical Issue --- Ethics, Situational --- Issue, Ethical --- Issues, Ethical --- Law, Natural --- Laws, Natural --- Moral Policies --- Natural Laws --- Policies, Moral --- Policy, Moral --- Censorship, Research --- Experimental Medicine --- Investigational Medicine --- Investigative Medicine --- Research, Biomedical --- Research, Medical --- Medical Research --- Medicine, Experimental --- Medicine, Investigational --- Medicine, Investigative --- Animals, Laboratory --- Constitutional Law --- Court Decision --- Law --- Legal Aspects --- Legal Obligations --- Legal Status --- State Interest --- Litigation --- Medical Jurisprudence --- Aspect, Legal --- Aspects, Legal --- Constitutional Laws --- Court Decisions --- Decision, Court --- Decisions, Court --- Interest, State --- Interests, State --- Jurisprudence, Medical --- Law, Constitutional --- Laws --- Laws, Constitutional --- Legal Aspect --- Legal Obligation --- Litigations --- Obligation, Legal --- Obligations, Legal --- State Interests --- Status, Legal --- Defamation --- Lawyers --- Study Characteristic, Epidemiologic --- Study Characteristics, Epidemiologic --- Critique --- Evaluation Indexes --- Evaluation Methodology --- Evaluation Report --- Evaluation Research --- Methodology, Evaluation --- Pre-Post Tests --- Qualitative Evaluation --- Quantitative Evaluation --- Theoretical Effectiveness --- Use-Effectiveness --- Critiques --- Effectiveness, Theoretical --- Evaluation Methodologies --- Evaluation Reports --- Evaluation, Qualitative --- Evaluation, Quantitative --- Evaluations, Qualitative --- Evaluations, Quantitative --- Indexes, Evaluation --- Methodologies, Evaluation --- Pre Post Tests --- Pre-Post Test --- Qualitative Evaluations --- Quantitative Evaluations --- Report, Evaluation --- Reports, Evaluation --- Research, Evaluation --- Test, Pre-Post --- Tests, Pre-Post --- Use Effectiveness --- Patient's Rights --- Patients' Rights --- Right to Treatment --- Patient Right --- Patient's Right --- Patients Rights --- Patients' Right --- Right to Treatments --- Right, Patient --- Right, Patient's --- Right, Patients' --- Rights, Patient --- Rights, Patient's --- Rights, Patients' --- Treatment, Right to --- Treatments, Right to --- Patient Advocacy --- Truth Disclosure --- Bioethical Issues --- General Social Development and Population --- Foetus --- Unborn child --- Embryology --- Obstetric Surgical Procedure --- Obstetrical Surgery --- Obstetrical Surgical Procedures --- Procedure, Obstetric Surgical --- Procedures, Obstetric Surgical --- Surgery, Obstetric --- Surgical Procedure, Obstetric --- Surgical Procedures, Obstetric --- Obstetric Surgeries --- Obstetric Surgery --- Obstetrical Surgeries --- Obstetrical Surgical Procedure --- Procedure, Obstetrical Surgical --- Procedures, Obstetrical Surgical --- Surgeries, Obstetric --- Surgeries, Obstetrical --- Surgery, Obstetrical --- Surgical Procedure, Obstetrical --- Surgical Procedures, Obstetrical --- Obstetrics --- Gestation --- Pregnancies --- Litter Size --- Maternal-Fetal Relations --- Pregnant Women --- Sociology of Medicine --- Medical Sociology --- Fetal Experimentation --- Fetal Cell Research --- Fetal Tissue Research --- Cell Research, Fetal --- Experimentation, Fetal --- Research, Fetal --- Research, Fetal Cell --- Research, Fetal Tissue --- Human Experimentation --- Fetal Tissue Transplantation --- Ethics, Research --- Feminist Ethics --- Ethics, Feminist --- Women's Rights --- Medical Ethics --- Professionalism --- Bioethics --- Fetal Tissue --- Fetuses --- Mummified Fetus --- Retained Fetus --- Fetal Structures --- Fetal Structure --- Fetal Tissues --- Fetus, Mummified --- Fetus, Retained --- Structure, Fetal --- Structures, Fetal --- Tissue, Fetal --- Tissues, Fetal --- Embryo, Mammalian --- Consent, Informed --- Treatment Refusal --- Mental Competency --- Disclosure --- Therapeutic Misconception --- Board, Institutional Review --- Boards, Institutional Review --- Ethics Committee, Research --- IRB --- IRBs --- Institutional Review Board --- Research Ethics Committee --- Research Ethics Committees --- Review Board, Institutional --- Review Boards, Institutional --- Institutional Review Boards --- Committee, Research Ethics --- Committees, Research Ethics --- Clinical Trials Data Monitoring Committees --- Regional Ethics Committees --- Institutional Ethics Committees --- Committee, Ethics --- Committee, Institutional Ethics --- Committee, Regional Ethics --- Committees, Ethics --- Committees, Institutional Ethics --- Committees, Regional Ethics --- Ethics Committee --- Ethics Committee, Institutional --- Ethics Committee, Regional --- Ethics Committees, Institutional --- Ethics Committees, Regional --- Institutional Ethics Committee --- Regional Ethics Committee --- Advisory Committees --- Ethical Review --- Animal Care Committees --- Clinical Trial as Topic --- Clinical Protocols --- Drug Evaluation --- Drugs, Investigational --- Therapies, Investigational --- Reproductive Physiologic Concepts --- Reproductive Physiological Phenomenon --- Reproductive Physiological Process --- Reproductive Physiological Concepts --- Concept, Reproductive Physiologic --- Concept, Reproductive Physiological --- Concepts, Reproductive Physiologic --- Concepts, Reproductive Physiological --- Phenomena, Reproductive Physiological --- Phenomenon, Reproductive Physiological --- Physiologic Concept, Reproductive --- Physiologic Concepts, Reproductive --- Physiological Concept, Reproductive --- Physiological Process, Reproductive --- Physiological Processes, Reproductive --- Process, Reproductive Physiological --- Processes, Reproductive Physiological --- Reproductive Physiologic Concept --- Reproductive Physiological Concept --- Pharmacy Philosophy --- Philosophical Overview --- Hedonism --- Stoicism --- Overview, Philosophical --- Overviews, Philosophical --- Pharmacy Philosophies --- Philosophical Overviews --- Philosophies --- Philosophies, Pharmacy --- Philosophy, Pharmacy --- Sciences --- Anatomies --- Regulation --- Social Control --- Control, Social --- Controls, Social --- Formal Social Control --- Formal Social Controls --- Regulations --- Social Controls --- Public Policy --- Laboratory Research --- Research Activities --- Research and Development --- Research Priorities --- Activities, Research --- Activity, Research --- Development and Research --- Priorities, Research --- Priority, Research --- Research Activity --- Research Priority --- Research, Laboratory --- Healthcare Quality, Access, and Evaluation --- Embryos --- Embryo --- Prenatal Structures --- Embryonic Structure --- Prenatal Structure --- Structure, Embryonic --- Structure, Prenatal --- Structures, Embryonic --- Structures, Prenatal --- Investigative Technics --- Investigative Technic --- Investigative Technique --- Technic, Investigative --- Technics, Investigative --- Technique, Investigative --- Techniques, Investigative --- Healthcare Evaluation Mechanisms --- Evaluation Mechanism, Healthcare --- Evaluation Mechanisms, Healthcare --- Healthcare Evaluation Mechanism --- Mechanism, Healthcare Evaluation --- Mechanisms, Healthcare Evaluation --- Professional Ethics --- Ethic, Professional --- Professional Ethic --- Professional Misconduct --- Practice, Professional --- Practices, Professional --- Professional Practices --- Collective Human Rights --- Equal Rights --- Linguistic Rights --- Right to Housing and Shelter --- Rights of Indigenous Peoples --- Human Rights, Collective --- Indigenous Peoples Rights --- Rights, Collective Human --- Rights, Equal --- Rights, Linguistic --- Social Justice --- Human Rights Abuses --- Science, Social --- Sciences, Social --- Social Science --- Health Care Quality Assessment --- Health Care Quality Assurance --- Healthcare Quality Assessment --- Healthcare Quality Assurance --- Quality Assessment, Healthcare --- Quality Assurance, Healthcare --- Quality Assessment, Health Care --- Assessment, Healthcare Quality --- Assessments, Healthcare Quality --- Assurance, Healthcare Quality --- Assurances, Healthcare Quality --- Healthcare Quality Assessments --- Healthcare Quality Assurances --- Quality Assessments, Healthcare --- Quality Assurances, Healthcare --- Epidemiologic Method --- Epidemiological Methods --- Methods, Epidemiologic --- Epidemiological Method --- Method, Epidemiologic --- Method, Epidemiological --- Methods, Epidemiological --- Epidemiology --- Health Professions --- Health Occupation --- Health Profession --- Profession, Health --- Professions, Health --- Occupations --- Human Reproductive Index --- Human Reproductive Indexes --- Reproductive Period --- Human Reproductive Indices --- Index, Human Reproductive --- Indexes, Human Reproductive --- Indices, Human Reproductive --- Period, Reproductive --- Periods, Reproductive --- Reproductive Index, Human --- Reproductive Indices, Human --- Reproductive Periods --- Ghost Surgery --- Operative Procedures --- Operative Surgical Procedure --- Operative Surgical Procedures --- Procedure, Operative Surgical --- Procedures, Operative Surgical --- Surgery, Ghost --- Surgical Procedure, Operative --- Surgical Procedures --- Operative Procedure --- Procedure, Operative --- Procedure, Surgical --- Procedures, Operative --- Procedures, Surgical --- Surgical Procedure --- General Surgery --- Committee, Professional Staff --- Committees, Professional Staff --- Professional Staff Committee --- Staff Committee, Professional --- Staff Committees, Professional --- Hospital Administration --- Social aspects --- Surgery --- Moral and ethical aspects --- organization & administration --- ethics --- methods --- Epidemiologic Study Characteristics. --- Diagnostic Techniques and Procedures. --- Psychology --- Factors, Psychological --- Psychological Factors --- Psychological Side Effects --- Psychologists --- Psychosocial Factors --- Side Effects, Psychological --- Factor, Psychological --- Factor, Psychosocial --- Factors, Psychosocial --- Psychological Factor --- Psychological Side Effect --- Psychologist --- Psychosocial Factor --- Side Effect, Psychological --- Diagnostic Technics and Procedures --- Technics and Procedures, Diagnostic --- Techniques and Procedures, Diagnostic --- Diagnostic Testing --- Testing, Diagnostic --- Diagnosis --- Sensitivity and Specificity --- Vocations --- Occupation --- Vocation --- Occupational Groups --- Sociology. --- Humanism. --- Patient Rights. --- Evaluation Studies as Topic. --- Jurisprudence. --- Biomedical Research. --- Ethics. --- Ethics, Clinical. --- Investigative Techniques. --- Embryonic Structures. --- Professional Staff Committees. --- Surgical Procedures, Operative. --- Reproduction. --- Health Occupations. --- Occupations. --- Humanities. --- Epidemiologic Methods. --- Quality Assurance, Health Care. --- Social Sciences. --- Human Rights. --- Professional Practice. --- Ethics, Professional. --- Health Care Evaluation Mechanisms. --- Reproductive Physiological Phenomena. --- Health Care Quality, Access, and Evaluation. --- Research. --- Social Control, Formal. --- Anatomy. --- Science. --- Philosophy. --- Organization and Administration. --- Health Care Economics and Organizations. --- Quality of Health Care. --- Public Health. --- Delivery of Health Care. --- Behavioral Sciences. --- Health Services Administration. --- Reproductive and Urinary Physiological Phenomena. --- Natural Science Disciplines. --- Environment and Public Health. --- Behavioral Disciplines and Activities. --- Psychology. --- Clinical Trials as Topic. --- Ethics Committees. --- Ethics Committees, Research. --- Informed Consent. --- Fetus. --- Ethics, Medical. --- Feminism. --- Fetal Research. --- Sociology, Medical. --- Pregnancy. --- Obstetric Surgical Procedures. --- Surgery. --- Moral and ethical aspects.
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The U.S. infant mortality rate is among the highest in the industrialized world, and Black babies are far more likely than white babies to die in their first year of life. Maternal mortality rates are also very high. Though the infant mortality rate overall has improved over the past century with public health interventions, racial disparities have not. Racism, poverty, lack of access to health care, and other causes of death have been identified, but not yet adequately addressed. The tragedy is twofold: it is undoubtedly tragic that babies die in their first year of life, and it is both tragic and unacceptable that most of these deaths are preventable. Despite the urgency of the problem, there has been little public discussion of infant loss. The question this book takes up is not why babies die; we already have many answers to this question. It is, rather, who cares that babies, mostly but not only Black and Native American babies, are dying before their first birthdays? More importantly, what are we willing to do about it? This book tracks social and cultural dimensions of infant death through 58 alphabetical entries, from Absence to ZIP Code. It centers women's loss and grief, while also drawing attention to dimensions of infant death not often examined. It is simultaneously a sociological study of infant death, an archive of loss and grief, and a clarion call for social change.
Protection maternelle et infantile --- Discrimination dans les soins medicaux --- Nourrissons indiens d'Amerique --- Nourrissons noirs americains --- Nourrissons --- Maternal and infant welfare --- Racism --- Discrimination in medical care --- Maternal health services --- Indian infants --- African American infants --- Infants --- Sante et hygiene --- Sante et hygiene. --- Mortalite --- Health aspects --- Health and hygiene --- Health and hygiene. --- Mortality --- United States. --- infant mortality, infant, mortality rate, Black babies, African American, maternal mortality, maternal health, Baby health, public health, health interventions, race, racial disparities, racism, equity, poverty, access, lack of access, access to health care, healthcare, death, babies die, preventable death, infant loss, why babies die, Native American, loss, grief, sociology, sociological, social change, abuse, Angel Babies, bereavement, bereavement support, breastfeeding, children's rights, Congressional Black Caucus, disability, doula, Epigenetics, birth, birth rates, baby, black baby, African American baby, survival, socioeconomic, poor families, pregnancy, motherhood, prenatal. --- Discrimination in medical care.
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We know more about the physical body—how it begins, how it responds to illness, even how it decomposes—than ever before. Yet not all bodies are created equal, some bodies clearly count more than others, and some bodies are not recognized at all. In Missing Bodies, Monica J. Casper and Lisa Jean Moore explore the surveillance, manipulations, erasures, and visibility of the body in the twenty-first century. The authors examine bodies, both actual and symbolic, in a variety of arenas: pornography, fashion, sports, medicine, photography, cinema, sex work, labor, migration, medical tourism, and war. This new politicsof visibility can lead to the overexposure of some bodies—Lance Armstrong, Jessica Lynch—and to the near invisibility of others—dead Iraqi civilians, illegal immigrants, the victims of HIV/AIDS and "natural" disasters.Missing Bodies presents a call for a new, engaged way of seeing and recovering bodies in a world that routinely, often strategically,obscures or erases them. It poses difficult, even startling questions: Why did it take so long for the United States media to begin telling stories about the "falling bodies" of 9/11? Why has the United States government refused to allow photographs or filming of flag-draped coffins carrying the bodies of soldiers who are dying in Iraq? Why are the bodies of girls and women so relentlessly sexualized? By examining the cultural politics at work in such disappearances and inclusions of the physical body the authors show how the social, medical and economic consequences of visibility can reward or undermine privilege in society.
Body image. --- Equality. --- Human body (Philosophy). --- Masculinity. --- Mortality. --- PHILOSOPHY --- Movements --- Humanism. --- Human body (Philosophy) --- #SBIB:39A9 --- #SBIB:316.7C121 --- Egalitarianism --- Inequality --- Social equality --- Social inequality --- Political science --- Sociology --- Democracy --- Liberty --- Masculinity (Psychology) --- Sex (Psychology) --- Men --- Mortality, Law of --- Death --- Demography --- Death (Biology) --- Image, Body --- Imagery (Psychology) --- Mind and body --- Person schemas --- Personality --- Self-perception --- Human body --- Body, Human (Philosophy) --- Philosophy --- Medische antropologie / gezondheid / handicaps --- Cultuursociologie: gedragspatronen, levensstijl --- Body image --- Equality --- Masculinity --- Mortality --- United States --- Casper. --- Jean. --- Lisa. --- Monica. --- Moore. --- body. --- century. --- erasures. --- explore. --- manipulations. --- surveillance. --- twenty-first. --- visibility. --- United States of America --- Aids --- Health --- Children --- Army --- Body --- Technology --- Theory --- Book --- Imaging
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