TY - BOOK ID - 65605434 TI - Genetic testing and the governance of risk in the contemporary economy : comparative reflections in the insurance and employment law contexts AU - Khoury, Lara AU - Blackett, Adelle AU - Vanhonnaeker, Lukas PY - 2020 SN - 3030436993 3030436985 PB - Cham, Switzerland : Springer, DB - UniCat KW - Private international law. KW - Conflict of laws. KW - Labor law. KW - Human rights. KW - Biomedical engineering. KW - Genetic engineering. KW - Private International Law, International & Foreign Law, Comparative Law . KW - Labour Law/Social Law. KW - Human Rights. KW - Biomedical Engineering/Biotechnology. KW - Genetic Engineering. KW - Designed genetic change KW - Engineering, Genetic KW - Gene splicing KW - Genetic intervention KW - Genetic surgery KW - Genetic recombination KW - Biotechnology KW - Transgenic organisms KW - Clinical engineering KW - Medical engineering KW - Bioengineering KW - Biophysics KW - Engineering KW - Medicine KW - Basic rights KW - Civil rights (International law) KW - Human rights KW - Rights, Human KW - Rights of man KW - Human security KW - Transitional justice KW - Truth commissions KW - Employees KW - Employment law KW - Industrial relations KW - Labor law KW - Labor standards (Labor law) KW - Work KW - Working class KW - Industrial laws and legislation KW - Social legislation KW - Choice of law KW - Conflict of laws KW - Intermunicipal law KW - International law, Private KW - International private law KW - Private international law KW - Law KW - Legal polycentricity KW - Law and legislation KW - Legal status, laws, etc. KW - Civil law KW - Human chromosome abnormalities KW - Diagnosis KW - Law and legislation. KW - Medical laws and legislation UR - https://www.unicat.be/uniCat?func=search&query=sysid:65605434 AB - This book addresses emerging questions concerning who should bear responsibility for shouldering risk, as well as the viability of existing and experimental governance mechanisms in connection with new technologies. Scholars from 14 jurisdictions unite their efforts in this edited collection to provide a comparative analysis of how various legal systems are tackling the challenges produced by the legal aspects of genetic testing in insurance and employment. They cover the diverse set of norms that surround this issue, and share insights into relevant international, regional and national incursions into the field. By doing so, the authors offer a basis for comparative reflection, including on whether transnational standard setting might be useful or necessary for the legal aspects of genetic testing as they relate to the insurance and employment contexts. The respective texts cover a broad range of topics, including the prevalence of genetic testing in the contexts of insurance and employment, and policy factors that might affect this prevalence, such as the design of national health or social insurance systems, of private insurance schemes or the availability of low-cost direct-to-consumer genetic testing. Further, the field of genetics is gaining in importance at the international and regional levels. Relevant concepts – mainly genetic tests and genetic data/information – have been internationally defined, and these definitions have influenced definitions adopted nationally. International law also recognizes a “special status” for human genetic data. The authors therefore also consider these definitions and the recognition of the special status of human genetic data within regional and national legal orders. They investigate the range of norms that specifically address the use of genetic testing in employment and insurance, encompassing international sources – including human rights norms – that may be binding or non-binding, as well national statutory, regulatory and soft-law mechanisms. Accordingly, some of the texts examine general frameworks relevant to genetic testing in each country, including those that stem from general anti-discrimination rules and norms protecting rights to autonomy, self-determination, confidentiality and privacy. In closing, the authors provide an overview of the efficiency of their respective legal regimes’ approaches – specific and generalist – to genetic testing or disclosure of genetic information in the employment or insurance contexts, including the effect of lack of legal guidance. In this regard, some of the authors highlight the need for transnational action in the field and make recommendation for future legal developments. ER -