TY - BOOK ID - 17982736 TI - When science offers salvation : patient advocacy and research ethics. PY - 2001 SN - 0195143132 PB - Oxford Oxford university press DB - UniCat KW - Medical ethics. KW - Patient advocacy. KW - onderzoeksethiek KW - patient advocacy KW - wetenschappelijk onderzoek KW - éthique de la recherche KW - recherche scientifique KW - Medical ethics KW - Patient advocacy KW - Advocacy, Health care KW - Advocacy, Patient KW - Health care advocacy KW - Nonlegal patient advocacy KW - Social patient advocacy KW - Biomedical ethics KW - Clinical ethics KW - Ethics, Medical KW - Health care ethics KW - Medical care KW - Medicine KW - Moral and ethical aspects KW - Advance directives (Medical care) KW - Patients' associations KW - Bioethics KW - Professional ethics KW - Nursing ethics KW - Social medicine KW - Quality control UR - https://www.unicat.be/uniCat?func=search&query=sysid:17982736 AB - Biomedical research today has a high public profile, largely because of patient advocacy. Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. This book shows how advocates have transformed health research, often - but not always - for the better. Dresser is the first to examine patient advocacy through the lens of research ethics. She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the government invests its research dollars. She argues that advocates should do more to promote ethical human studies and responsible media reporting about research. Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own. This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates. This volume shows how advocates have transformed health research, often - but not always - for the better. Dresser examines patient advocacy through the lens of research ethics. Her book recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates. ER -