TY - BOOK ID - 119428534 TI - Challenging Assumptions Around Dementia : User-led Research and Untold Stories AU - Ashworth, Rosalie. AU - Fyvel, Sue. AU - Hill, Alyson. AU - Maddocks, Chris. AU - Qureshi, Masood. AU - Ross, David. AU - Hay, Stuart. AU - Robertson, Martin. AU - Gilder, Willy. AU - Henry, Winnie. PY - 2023 SN - 3031272234 3031272226 PB - Cham : Springer International Publishing : Imprint: Palgrave Macmillan, DB - UniCat KW - Geriatrics. KW - Clinical psychology. KW - Nervous system KW - Mental health. KW - Clinical health psychology. KW - Psychology KW - Clinical Psychology. KW - Neurological Disorders. KW - Mental Health. KW - Health Psychology. KW - Psychological Methods. KW - Diseases. KW - Methodology. KW - Health psychology KW - Health psychology, Clinical KW - Psychology, Clinical health KW - Psychology, Health KW - Salutogenesis KW - Clinical psychology KW - Medicine and psychology KW - Emotional health KW - Mental hygiene KW - Mental physiology and hygiene KW - Happiness KW - Health KW - Public health KW - Mental illness KW - Psychiatry KW - Psychology, Pathological KW - Medical neurology KW - Nerves KW - Neurologic disorders KW - Neurological disorders KW - Neuropathology KW - Neurology KW - Psychology, Applied KW - Psychological tests KW - Medicine KW - Gerontology KW - Older people KW - Diseases KW - Health and hygiene KW - Demència KW - Assaigs clínics KW - Testimonis UR - https://www.unicat.be/uniCat?func=search&query=sysid:119428534 AB - This open access book explores the expectations surrounding dementia, what it ‘looks like’ and how people have been treated by others. It aims to raise awareness of the different types of dementia, and how they impact the brain, body, and lived experience, including experience of Alzheimer’s disease, Vascular Dementia, Posterior Cortical Atrophy, Frontotemporal Dementia, Semantic Dementia, and Lewy Body Dementia. The co-authors reflect on their experience with informal and formal care, before finishing with a focus on the spectrum of dementia research from clinical trials to user-led research. Throughout the book, co-authors have shared personal stories of how dementia has affected them and people with lived experience of dementia share what they wish people knew about living with the disease. Co-produced by people with lived experience of dementia, academics and health care professionals, this book is an accessible resource about dementia from the perspective of people actively involved in the field and essential reading for healthcare professionals wishing to learn more about the experience of this neuroprogressive condition, as well as policymakers, and members of the public. Dr Rosie Ashworth leads Partners in Research for NRS Neuroprogressive and Dementia Network, UK. As a research psychologist, Rosie is passionate about co-production, ethics, and actively involving people with lived experience in research. She is also the co-lead for ENRICH Scotlands ‘Patient and Public Involvement’ group RICH (Research in Care Homes) Voices, a Fellow with Advanced Higher Education, an advisor to the Dementia Enquirers, and a volunteer for About Dementia. Partners in Research co-authors including Agnes Houston, Chris Maddocks, David Ross, Fred S. Wilson, Masood Qureshi, Martin Robertson, Myra Lamont, Stuart Hay, Sue Fyvel, Willy Gilder, Winnie Henry, and Alyson Hill. ER -