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Biomedical research today has a high public profile, largely because of patient advocacy. Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. This book shows how advocates have transformed health research, often - but not always - for the better. Dresser is the first to examine patient advocacy through the lens of research ethics. She exposes the bright and dark sides of patients' expanded opportunities to enroll in clinical trials and join researchers in planning and evaluating studies. She considers the virtues and drawbacks of giving patients more influence over how the government invests its research dollars. She argues that advocates should do more to promote ethical human studies and responsible media reporting about research. Patient advocates can help make research more ethical, but advocacy raises ethical issues of its own. This book clearly and vividly recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates. This volume shows how advocates have transformed health research, often - but not always - for the better. Dresser examines patient advocacy through the lens of research ethics. Her book recounts the advocacy contribution to research and explores the thorny ethical issues facing research advocates.
Medical ethics. --- Patient advocacy. --- onderzoeksethiek --- patient advocacy --- wetenschappelijk onderzoek --- éthique de la recherche --- recherche scientifique --- Medical ethics --- Patient advocacy --- Advocacy, Health care --- Advocacy, Patient --- Health care advocacy --- Nonlegal patient advocacy --- Social patient advocacy --- Biomedical ethics --- Clinical ethics --- Ethics, Medical --- Health care ethics --- Medical care --- Medicine --- Moral and ethical aspects --- Advance directives (Medical care) --- Patients' associations --- Bioethics --- Professional ethics --- Nursing ethics --- Social medicine --- Quality control
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The thirteen case studies presented in this publication describe experiences with implementing public health programs that intend to address social determinants and to have a great impact on health equity. They also document the real-life challenges in implementing such programs, including the challenges in scaling up, managing policy changes, managing intersectoral processes, adjusting design and ensuring sustainability.--Publisher's description. This publication complements the previous publication by the Department of Ethics, Equity, Trade and Human Rights entitled "Equity, social determinants and public health programmes", which analysed social determinants and health equity issues in 13 public health programmes, and identified possible entry points for interventions to address those social determinants and inequities at the levels of socioeconomic context, exposure, vulnerability, health outcomes and health consequences.-- Publisher's description.
Gezondheidszorg--Oordeelkundig gebruik --- Health care rationing --- Health resources rationing --- Medical care rationing --- Patient advocacy --- Patienten--Bescherming --- Patienten--Verdediging --- Patients--Defense --- Patients--Protection --- Rationing of health care --- Rationing of medical care --- Soins de santé--Usage rationnel --- Health Status Disparities. --- Health Priorities. --- Health Services Accessibility. --- Healthcare Disparities. --- Socioeconomic Factors. --- Health care rationing. --- Patient advocacy. --- Public health. --- Soins médicaux --- Patients --- Santé publique --- Rationnement --- Droits --- Soins médicaux --- Santé publique --- EPUB-ALPHA-S EPUB-LIV-FT LIVSANTE LIVDROIT LIBRE-B --- Public health --- Economic aspects --- Advocacy, Health care --- Advocacy, Patient --- Health care advocacy --- Nonlegal patient advocacy --- Social patient advocacy --- Medical care --- Advance directives (Medical care) --- Patients' associations --- Medical economics --- Medical policy --- Rationing --- Community health --- Health services --- Hygiene, Public --- Hygiene, Social --- Public health services --- Public hygiene --- Social hygiene --- Health --- Human services --- Biosecurity --- Health literacy --- Medicine, Preventive --- National health services --- Sanitation --- Quality control
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Nurses --- Nursing --- Patient advocacy --- Nurses. --- Nursing. --- Patient advocacy. --- United States. --- Advocacy, Health care --- Advocacy, Patient --- Health care advocacy --- Nonlegal patient advocacy --- Social patient advocacy --- Clinical nursing --- Nurses and nursing --- Nursing process --- Registered nurses --- RNs (Registered nurses) --- ABŞ --- ABSh --- Ameerika Ühendriigid --- America --- Amerika Birlăshmish Shtatlary --- Amerika Birlăşmi Ştatları --- Amerika Birlăşmiş Ştatları --- Amerika ka Kelenyalen Jamanaw --- Amerika Qūrama Shtattary --- Amerika Qŭshma Shtatlari --- Amerika Qushma Shtattary --- Amerika --- Amerikai Egyesült Államok --- Amerikanʹ Veĭtʹsėndi︠a︡vks Shtattnė --- Amerikări Pĕrleshu̇llĕ Shtatsem --- Amerikas Forenede Stater --- Amerikayi Miatsʻyal Nahangner --- Ameriketako Estatu Batuak --- Amirika Carékat --- AQSh --- Ar. ha-B. --- Arhab --- Artsot ha-Berit --- Artzois Ha'bris --- Bí-kok --- Ē.P.A. --- EE.UU. --- Egyesült Államok --- ĒPA --- Estados Unidos --- Estados Unidos da América do Norte --- Estados Unidos de América --- Estaos Xuníos --- Estaos Xuníos d'América --- Estatos Unitos --- Estatos Unitos d'America --- Estats Units d'Amèrica --- Ètats-Unis d'Amèrica --- États-Unis d'Amérique --- Fareyniḳṭe Shṭaṭn --- Feriene Steaten --- Feriene Steaten fan Amearika --- Forente stater --- FS --- Hēnomenai Politeiai Amerikēs --- Hēnōmenes Politeies tēs Amerikēs --- Hiwsisayin Amerikayi Miatsʻeal Tērutʻiwnkʻ --- Istadus Unidus --- Jungtinės Amerikos valstybės --- Mei guo --- Mei-kuo --- Meiguo --- Mî-koet --- Miatsʻyal Nahangner --- Miguk --- Na Stàitean Aonaichte --- NSA --- S.U.A. --- SAD --- Saharat ʻAmērikā --- SASht --- Severo-Amerikanskie Shtaty --- Severo-Amerikanskie Soedinennye Shtaty --- Si︠e︡vero-Amerikanskīe Soedinennye Shtaty --- Sjedinjene Američke Države --- Soedinennye Shtaty Ameriki --- Soedinennye Shtaty Severnoĭ Ameriki --- Soedinennye Shtaty Si︠e︡vernoĭ Ameriki --- Spojené staty americké --- SShA --- Stadoù-Unanet Amerika --- Stáit Aontaithe Mheiriceá --- Stany Zjednoczone --- Stati Uniti --- Stati Uniti d'America --- Stâts Unîts --- Stâts Unîts di Americhe --- Steatyn Unnaneysit --- Steatyn Unnaneysit America --- SUA --- Sŭedineni amerikanski shtati --- Sŭedinenite shtati --- Tetã peteĩ reko Amérikagua --- U.S. --- U.S.A. --- United States of America --- Unol Daleithiau --- Unol Daleithiau America --- Unuiĝintaj Ŝtatoj de Ameriko --- US --- USA --- Usono --- Vaeinigte Staatn --- Vaeinigte Staatn vo Amerika --- Vereinigte Staaten --- Vereinigte Staaten von Amerika --- Verenigde State van Amerika --- Verenigde Staten --- VS --- VSA --- Wááshindoon Bikéyah Ałhidadiidzooígíí --- Wilāyāt al-Muttaḥidah --- Wilāyāt al-Muttaḥidah al-Amirīkīyah --- Wilāyāt al-Muttaḥidah al-Amrīkīyah --- Yhdysvallat --- Yunaeted Stet --- Yunaeted Stet blong Amerika --- ZDA --- Združene države Amerike --- Zʹi︠e︡dnani Derz︠h︡avy Ameryky --- Zjadnośone staty Ameriki --- Zluchanyi︠a︡ Shtaty Ameryki --- Zlucheni Derz︠h︡avy --- ZSA --- Patient Advocacy --- Clinical Ombudsman --- Patient Ombudsman --- Patient Ombudsmen --- Patient Representatives --- Ombudsman, Clinical --- Ombudsman, Patient --- Ombudsmen, Patient --- Patient Representative --- Representative, Patient --- Representatives, Patient --- Nursing Personnel --- Personnel, Nursing --- Registered Nurses --- Nurse --- Nurse, Registered --- Nurses, Registered --- Registered Nurse --- Nursings --- Medical care --- Advance directives (Medical care) --- Patients' associations --- Care of the sick --- Medicine --- Medical personnel --- Commitment of Mentally Ill --- Patient Rights --- Quality control --- AB --- America (Republic) --- Amerika (Republic) --- Amerikanʹ Veĭtʹsėndi͡avks Shtattn --- Saharat ʻAmērik --- Si͡evero-Amerikanskīe Soedinennye Shtaty --- Soedinennye Shtaty Si͡evernoĭ Ameriki --- Spojené staty americk --- Stáit Aontaithe Mheirice --- Wááshindoon Bikéyah Ałhidadiidzooígí --- Zʹi͡ednani Derz͡havy Ameryky --- Zluchanyi͡a Shtaty Ameryki --- Zlucheni Derz͡havy --- Patient Advocacy. --- Spojené obce severoamerick --- verpleegkunde --- Amerikanʹ Veĭtʹsėndi͡avks Shtattnė --- É.-U. --- ÉU --- Spojené obce severoamerické
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